bubbasmom Posted February 16, 2010 Report Posted February 16, 2010 Seriously, yesterday evening I threw the idea out to my pediatrician the idea that since I had strep B during delivery of my son, could that have effected him. Then this moring I opened my email and there's an email from Beth Maloney regarding a survey regarding the same issue. PROFOUND! My son seems to keep getting strep no matter what antibiotics we use. His cultures are often negative so he's difficult to diagnose. I sincerely think he has strep in his gut. Any thoughts?
ajcire Posted February 16, 2010 Report Posted February 16, 2010 I think I remember seeing that kind of survey done here as well. I saw Beth's survey yesterday as well. I too was strep b positive but my son was delivered via c-section. I was on a lot of intravenous antibiotics at the time of the delivery due to the strep b and a mitro valve prolapse.. so I had 2 different kinds of antibiotics. In fact, my son had thrush from the very start which I guess maybe was due to that.. It's all interesting no doubt... How do you know he's getting strep if his cultures are negative? High titers? Seriously, yesterday evening I threw the idea out to my pediatrician the idea that since I had strep B during delivery of my son, could that have effected him. Then this moring I opened my email and there's an email from Beth Maloney regarding a survey regarding the same issue. PROFOUND! My son seems to keep getting strep no matter what antibiotics we use. His cultures are often negative so he's difficult to diagnose. I sincerely think he has strep in his gut.Any thoughts?
matis_mom Posted February 16, 2010 Report Posted February 16, 2010 I think I remember seeing that kind of survey done here as well.I saw Beth's survey yesterday as well. I too was strep b positive but my son was delivered via c-section. I was on a lot of intravenous antibiotics at the time of the delivery due to the strep b and a mitro valve prolapse.. so I had 2 different kinds of antibiotics. In fact, my son had thrush from the very start which I guess maybe was due to that.. It's all interesting no doubt... How do you know he's getting strep if his cultures are negative? High titers? Seriously, yesterday evening I threw the idea out to my pediatrician the idea that since I had strep B during delivery of my son, could that have effected him. Then this moring I opened my email and there's an email from Beth Maloney regarding a survey regarding the same issue. PROFOUND! My son seems to keep getting strep no matter what antibiotics we use. His cultures are often negative so he's difficult to diagnose. I sincerely think he has strep in his gut.Any thoughts? I was positive for strep B with Matias too... did manage to get one dose of antibiotics before he was born. But I thought strep B did not cross the placenta, so baby is safe while in utero and that's why you are not treated until birth, when they can pick it up in the birth canal. So in theory, if you have a quick delivery or get the abxs, there should be no risk. But, I still wonder. I would be very interested in hearing the result of the survey. With my last baby I tested negative (probably because we were all given Omnicef for 10 days to make sure we did not keep passing strep around), but I still got the antibiotics during delivery, and yes, we got thrush too, but at this point I rather deal with thrush than with strep. Also, for anyone nursing and dealing with thrush, make sure you talk to your OB about getting an oral prescription for yourself. With baby number 7 we did liquid Nystatin for baby plus cream for mom repeateadly and it just kept coming back until I talked to my OB and she said they consider that an incomplete treatment. The mother needs oral antifungals too in order to end the cycle. So, now my little baby got thrush at a week old already, but we've gone through the treatment and are following up with probiotics and hopefully that will be end of it! Isabel
LNN Posted February 16, 2010 Report Posted February 16, 2010 For whatever it's worth, I was negative for strep B when my PANDAS son was born and no one had any illness.
forjpj Posted February 16, 2010 Report Posted February 16, 2010 I am very interested in the results. I had strep B and was given antibiotics during delivery. I have mentioned this to docs, but no one has ever made a connection.
P_Mom Posted February 16, 2010 Report Posted February 16, 2010 Me, too...negative, I mean. No strep, both boys PANDAS.
thereishope Posted February 16, 2010 Report Posted February 16, 2010 Yes, this has been visited on here before.I tested negative for group B strep while pregnant. Also, I, nor any family members, were sick at time of delivery or for the time leading up to delivery. Personally, I think there are multiple causes for people to be susceptible to this disorder. Perhaps for some, it is soley the strain and age, for some it is genetic, maybe for some it being Group B + at time of delivery,etc. For most, it is a mix of many bad (for lack of a better word) things happenning at once. Things that are a cocktail for disaster.
LaraM Posted February 16, 2010 Report Posted February 16, 2010 I tested positive for Group B strep. Around noon the day before my son was delivered, my water broke. I went to the hospital, and my OB ran tests on the fluid I was leaking and said it was inconclusive. She thought I was just incontinent, but honestly I could tell it wasn't an incontinence issue--particularly with the amount/frequency of fluid I was leaking. At the time, I thought "well, she knows better than me", so I went home (no antibiotics either). The next morning, I started having strong contractions. My son was delivered via C-section around 24 hours after I thought my water broke. I only received antibiotics just prior to the c-section (maybe an hour before).
bubbasmom Posted February 16, 2010 Author Report Posted February 16, 2010 We don't know for sure, its just same symptoms then he gets PANDAS like two weeks later every time. Also, I had MVP too. Just tuck that in your brain in case some other similarity comes up. I think I remember seeing that kind of survey done here as well.I saw Beth's survey yesterday as well. I too was strep b positive but my son was delivered via c-section. I was on a lot of intravenous antibiotics at the time of the delivery due to the strep b and a mitro valve prolapse.. so I had 2 different kinds of antibiotics. In fact, my son had thrush from the very start which I guess maybe was due to that.. It's all interesting no doubt... How do you know he's getting strep if his cultures are negative? High titers? Seriously, yesterday evening I threw the idea out to my pediatrician the idea that since I had strep B during delivery of my son, could that have effected him. Then this moring I opened my email and there's an email from Beth Maloney regarding a survey regarding the same issue. PROFOUND! My son seems to keep getting strep no matter what antibiotics we use. His cultures are often negative so he's difficult to diagnose. I sincerely think he has strep in his gut.Any thoughts?
reactive Posted February 16, 2010 Report Posted February 16, 2010 Seriously, yesterday evening I threw the idea out to my pediatrician the idea that since I had strep B during delivery of my son, could that have effected him. Then this moring I opened my email and there's an email from Beth Maloney regarding a survey regarding the same issue. PROFOUND! My son seems to keep getting strep no matter what antibiotics we use. His cultures are often negative so he's difficult to diagnose. I sincerely think he has strep in his gut.Any thoughts? I feel like I should reply to this. I have worked in OBGYN for the last 19 years, the first 7 as a labor and delivery nurse and the rest as a OBGYN nurse practitioner. Group B strep can be found in the vagina or rectum of women, pregnant or not. It can come and go; you can be positive for one pregnancy and not in another. It is standard practice to test for group B strep about a month before delivery. If the woman is negative, no further action is needed. If the woman is positive, it is recommended the woman get antibiotics by a standard protocol before delivery; if the woman labors too quickly and all the antibiotics are not in, most hospitals then treat the newborn. Group B strep can cause sepsis in a newborn; babies can get septic and die very, very quickly. The chance of sepsis and newborn death is low, even with positive strep test, but the antibiotic use in all positive women at delivery has slashed the numbers of newborn morbidity and mortality. It is a risk benefit thing. This form of strep is not the same strep that causes strep tonsillitis or step throat. Even though I am a PANDAS believer, and think my ds9 may have PANDAS or some form of PANDAS, I do not see the connection to rectal/vaginal group B strep.
KeithandElizabeth Posted February 16, 2010 Report Posted February 16, 2010 bubbasmom: Have you done the ASO and ANTI DNASE B titers on the whole family? Our son had a regression post IVIG and his sister and father both had elevated strep levels in their blood work. I also had strep B during delivery. elizabeth
dcmom Posted February 16, 2010 Report Posted February 16, 2010 I can only add my experience: negative for strep at time of delivery, 2 c-sections, 2 robustly healthy babies, robustly healthy kids, both have a particular strain of strep last year, both pandas now.
faith Posted February 16, 2010 Report Posted February 16, 2010 This interests me. I was positive for strep B, but delivered C-section, so not sure if they give antibiotics for that, I assumed they did during delivery. I don't recall why, but I think we've had this discussion before somewhere on the ts side about strep B, don't recall if it was in relation to PANDAS tho. Faith
colleenrn Posted February 16, 2010 Report Posted February 16, 2010 Yes, group B strep is different from group A, yet one of my children's first PANDAS episode he tested positive for GBS (group B strep) in his throat. My kids react to all strep, not just strep A, so I have wondered about this connection. Colleen
sf_mom Posted February 16, 2010 Report Posted February 16, 2010 Also, Group B can manifest Group A. The type of hemolytic reaction displayed on blood agar has long been used to classify the streptococci. Beta -hemolysis is associated with complete lysis of red cells surrounding the colony, whereas alpha-hemolysis is a partial or "green" hemolysis associated with reduction of red cell hemoglobin. Nonhemolytic colonies have been termed gamma-hemolytic. Hemolysis is affected by the species and age of red cells, as well as by other properties of the base medium. Group A streptococci are nearly always beta-hemolytic; related Group B can manifest alpha, beta or gamma hemolysis. Most strains of S. pneumoniae are alpha-hemolytic but can cause ß-hemolysis during anaerobic incubation. Most of the oral streptococci and enterococci are non hemolytic. The property of hemolysis is not very reliable for the absolute identification of streptococci, but it is widely used in rapid screens for identification of S. pyogenes and S. pneumoniae. http://www.tjclarkinc.com/bacterial_diseas...us_pyogenes.htm
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