Noise sensitivity

[wornoutmom]

Does anyone know what Diana is talking about re: the connection with brain inflammation and where I could read more about this???

 

. Many sensory issues in past with son, but currently he cannot stand the sound of someone chewing or swallowing. I, myself, have noise sensitivity that peaks at certain times out of seemingly nowhere- usually early morning or late at night, . In fact the sound of my typing is really bothering me right now. Its like the volume gets turned up on certain things and it's hard to filter it out into background noise. I am really interested

[coco]

Maybe this pub?

http://neuro.psychiatryonline.org/cgi/cont...full/12/1/117-a

 

Excerpt:

 

"Inflammation of the brain is attended with intolerance of light and sound; which shows that the extremities of the nerves of those senses are at the same time inflamed."

[Kayanne]

At her worst, my daughter would startle when you spoke to her, even if it was a soft voice....defensive is a great word, her posture and startle reflex seemed to be just that.

 

It was one of the first symptoms to disappear when we started the prednisone.

 

She had said that she thinks her art class gets too loud....not sure if this is a sensitivity right now or her concern that her classmates aren't being quiet when they should....she is definitely a rule follower.

 

My husband often covers his ears when I am next to him speaking...I used to think is was because I was too loud because I have mild hearing issues...I'm not so sure about that anymore...He is also very sensitive to smells...

[faith]

My husband often covers his ears when I am next to him speaking...I used to think is was because I was too loud]

 

...... because I get this alot too, dare I admit it. When I'm trying to get my point across about my son and what he did (or didn't do), I start to go up in octave, and my husband likes to put his hand out sort of indicating for me to lower my octave, you know, like a maestro does.......he did that the other day when I was cooking and I said "I got a KNIFE in my hand you know!" ........

[Suzan]

Does anyone know what Diana is talking about re: the connection with brain inflammation and where I could read more about this???

 

. Many sensory issues in past with son, but currently he cannot stand the sound of someone chewing or swallowing. I, myself, have noise sensitivity that peaks at certain times out of seemingly nowhere- usually early morning or late at night, . In fact the sound of my typing is really bothering me right now. Its like the volume gets turned up on certain things and it's hard to filter it out into background noise. I am really interested

 

I am going to bring this up with my doctors this month and see what they say. If I get any good info, I will let you know. Also, I'm goign to try to take advil 3x a day for a while to see if I see an improvement.

 

Susan

[ajcire]

Hmm... my husband covers his ears when I speak too Pretty sure though in my case he is practicing his selective listening.

 

 

My husband often covers his ears when I am next to him speaking...I used to think is was because I was too loud]

 

...... because I get this alot too, dare I admit it. When I'm trying to get my point across about my son and what he did (or didn't do), I start to go up in octave, and my husband likes to put his hand out sort of indicating for me to lower my octave, you know, like a maestro does.......he did that the other day when I was cooking and I said "I got a KNIFE in my hand you know!" ........

[smartyjones]

Hmm... my husband covers his ears when I speak too Pretty sure though in my case he is practicing his selective listening.

 

 

hilarious! although in my case, i'm not pretty sure. . . i'm sure!

[Megs_Mom]

Does anyone know what Diana is talking about re: the connection with brain inflammation and where I could read more about this???

 

. Many sensory issues in past with son, but currently he cannot stand the sound of someone chewing or swallowing. I, myself, have noise sensitivity that peaks at certain times out of seemingly nowhere- usually early morning or late at night, . In fact the sound of my typing is really bothering me right now. Its like the volume gets turned up on certain things and it's hard to filter it out into background noise. I am really interested

 

I think our dd has mild sensory sensitivity - always. But when she gets PANDAS, it turns into a disorder, that can be diagnosed as SPD. We ended up in OT therapy for over a year, along with everything else. It was fun & did help - but it went away or back down to normal level after antibiotic treatments. She was SO sensitive to being "yelled" at, that we developed a new term "is that regular yelling, or Megan yelling" - we'd ask her that all the time. She would literally have panic attacks about loud noise. We had to leave movies, avoid alarms, etc. Noise and light were issues, and clothing went off the chart. During times of crisis, we always had great tools through ERP and OT to help her deal with things - but literally everything about how we managed a day would completely change. I was incredibly organized in those times due to necessity. Afterwards, I can never believe we made it through.

 

My husband is also hyper sensitive to noise (maybe I need to slip him some antibiotics ). I hate traveling with him, as I can't eat anything like a pretzel, apple, type on my computer, etc - I can see him physically react. Drives me nutty, as I really don't think my chewing or typing is that offensive! He is also always telling kids to be quiet, calm down, etc. When my daughter was a baby, you could see her screams go righ through him - annoying to me, nearly intolerable to him. He also talks in a way that I often struggle to hear him - I actually had my hearing checked, early in our relationship, as I thought I might be going deaf, and was tired of saying "what, what?" all the time.

 

My hearing, by the way, is fine. My singing voice - well, let's just say that I think we have identified a clear connection here!

[britneymag]

Does anyone know what Diana is talking about re: the connection with brain inflammation and where I could read more about this???

 

. Many sensory issues in past with son, but currently he cannot stand the sound of someone chewing or swallowing. I, myself, have noise sensitivity that peaks at certain times out of seemingly nowhere- usually early morning or late at night, . In fact the sound of my typing is really bothering me right now. Its like the volume gets turned up on certain things and it's hard to filter it out into background noise. I am really interested

 

I can't stand the sound of open mouths chewing or loud chomping either. I have been this way as far back as I can remember. I get instantly ANGRY!!!! I never related it to my other pandas symptoms but it does make sense.

 

My son can't stand the song of my dd singing but I thought it was just because he didn't like her. LOL He doesn't mind hearing songs on the radio.

 

Melanie

[Megs_Mom]

Does anyone know what Diana is talking about re: the connection with brain inflammation and where I could read more about this???

 

. Many sensory issues in past with son, but currently he cannot stand the sound of someone chewing or swallowing. I, myself, have noise sensitivity that peaks at certain times out of seemingly nowhere- usually early morning or late at night, . In fact the sound of my typing is really bothering me right now. Its like the volume gets turned up on certain things and it's hard to filter it out into background noise. I am really interested

 

I can't stand the sound of open mouths chewing or loud chomping either. I have been this way as far back as I can remember. I get instantly ANGRY!!!! I never related it to my other pandas symptoms but it does make sense.

 

My son can't stand the song of my dd singing but I thought it was just because he didn't like her. LOL He doesn't mind hearing songs on the radio.

 

Melanie

 

I swear my mouth is CLOSED!!! That is very funny - you and my hubby would get along great, although I am not sure where you would eat in our small home! Maybe it is my strong teeth .

[Lotafaith]

I can really see that this forum is where I should be! I did read the "noise sensitivity" forum alot and get the digest daily, there are a WHOLE LOT of these types of sensitivities that I have been reading about here on that web site, they call it several different things, hyperacusis and misophonia is one thing that I found to be true about my son, it was also linked with OCD the more I read. I never saw the word PANDAS on that site and I wonder if any of them had even ever heard of it before. I may post and say something, like us that could be underlying and never addressed. Can anybody tell me once you go see a dr. will they do consultation on the phone? Can anybody reccomend a dr. close to us in the very southern part of Alabama? I would like to find someone who is willing to do abx.

 

does this really get better? Reading these past replies I realize that maybe it might be genetics, I have OCD and my husband does (I diagnosed him) as we get older is it that we learn how to deal with the symptoms better?

 

Thanks everybody for sharing, the noise sensitivity is our biggest issue and many on this forum can relate!

I believe that I have found a place where I can share and learn how to help my son!!!!

 

Lotafaith

[earnestfamily7]

My son and daughter both are sensitive to sound... especially during exasperations.... they cover their ears and are not able to process to many thing at one time... for example if they are coloring or trying to read and the TV is on in another room and is barely audible.... they freak out like it is blaring in their ears.... they also get very upset and confused if they are trying to tell me something and someone interrupts (not by interrupting the conversation) just the noise they make in the room will break their train of thought and get them completely flustered... they are also disturbed by noises we 'take for granted' ... ie... the air-conditioner... a fan.... doors opening... and the vacuum makes them go 'crazy'... they literally will start racing around- jumping - arm flapping... when they were little I used to think that they were silly and just trying to goof around but my son is 9 and still has the same reaction...

 

I find all the sensory issues fascinating... and after being reminded that is it is a sign of inflammation starting giving the ibuprofen again today!

[peglem]

My son and daughter both are sensitive to sound... especially during exasperations.... they cover their ears and are not able to process to many thing at one time... for example if they are coloring or trying to read and the TV is on in another room and is barely audible.... they freak out like it is blaring in their ears.... they also get very upset and confused if they are trying to tell me something and someone interrupts (not by interrupting the conversation) just the noise they make in the room will break their train of thought and get them completely flustered... they are also disturbed by noises we 'take for granted' ... ie... the air-conditioner... a fan.... doors opening... and the vacuum makes them go 'crazy'... they literally will start racing around- jumping - arm flapping... when they were little I used to think that they were silly and just trying to goof around but my son is 9 and still has the same reaction...

 

I find all the sensory issues fascinating... and after being reminded that is it is a sign of inflammation starting giving the ibuprofen again today!

 

That reminds me- my daughter goes through phases where she has to close her eyes when food is in her mouth.

[Worried_Dad]

Here's one of those things that haunts me.

 

Although local specialists (neuros, rheums, ID docs, etc.) have repeatedly dismissed our son's PANDAS diagnosis (and question the whole hypothesis), the OT specialist to whom we originally took our son for "sensory integration disorder" told my wife that she sees this kind of problem frequently, in the wake of viral or bacterial infections. She even gave my wife a xeroxed copy of a recent OT journal article on PANDAS / PITAND and how to approach it from a SID perspective. So while most traditional MD's - researchers and clinicians - argue about whether it exists at all, the "front-line" therapists who see it all the time just accept it as proven and discuss strategies for treating it.

 

Man oh man, how I wish the medical community would get their act together on this. How many children are being misdiagnosed and mistreated while the "PANDAS controversy" rages?!?

 

 

My son and daughter both are sensitive to sound... especially during exasperations.... they cover their ears and are not able to process to many thing at one time... for example if they are coloring or trying to read and the TV is on in another room and is barely audible.... they freak out like it is blaring in their ears.... they also get very upset and confused if they are trying to tell me something and someone interrupts (not by interrupting the conversation) just the noise they make in the room will break their train of thought and get them completely flustered... they are also disturbed by noises we 'take for granted' ... ie... the air-conditioner... a fan.... doors opening... and the vacuum makes them go 'crazy'... they literally will start racing around- jumping - arm flapping... when they were little I used to think that they were silly and just trying to goof around but my son is 9 and still has the same reaction...

 

I find all the sensory issues fascinating... and after being reminded that is it is a sign of inflammation starting giving the ibuprofen again today!

[earnestfamily7]

Worried Dad - (I am not sure how to pull & comment on a quote)

 

I could not agree more... when my son was diagnosed (or psuedo-diagnosed) he was seeing OT for sensory processing issues... we started seeing them in the spring and his 1st major exasperation was late summer/early fall (labor day)... Looking back I really think it is all connected somehow... His OT and the other therapists just upped their protocal for him to try to get him back on track....

 

after his exasperation the antibiotic took care of the severe separation anxiety, hand-washing OCD and 'bad thoughts'/ and most of the reporting but they worked for nearly 2 years on the residual stuff (he also lost core muscle strength or appeared to... ie. he was a great swimmer- on team - and one day at practice starting sinking in the deep end... struggled to get to the wall... scary stuff!)

 

but the sensory stuff... noises, tags, smells - fine and gross motor stuff... all was helped tremendously w/ OT....