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Posted

Danny main tic is cursing coperalia(sp) when he hears you speak if you stammer he tics either curses or moves his feet like sammy does in the videos( I was so I hate to say happy when I saw sammy cause I never saw anyone except danny do the feet thing)No one seems to have the cursing tic .I know its neurological PANDAS is a neurological thing but why does his psyc want to give him antipsyh.

Posted

Hi Melanie

 

does your son have a PANDAS diagnosis now?

 

coprolalia is a recognized Tourette tic.

 

conventional neurologists tend to offer antipsychotics for TS, and unfortunately the side effects from the antipsychotics can sometimes be worse than the tics, as we learned by bitter experience when my son was newly diagnosed and in a crisis state with severe tics/OCD and we were desperate and caved to pressure from school, neuro and psych to put him on the meds

 

we certainly saw no decrease in coprolalia then....if anything it got worse, as did his tourettic OCD

 

I dont know if your son has PANDAS diagnosis, nor do I know whether coprolalia is a PANDAS symptom, but I do know from experience to caution you to be very careful of antipsychotics

 

Forgive me for not remembering your son's age, but by age 12 my son had learned really good substitution techniques in cognitive behavioral therapy which helped him "mask" the coprolalia by substitute sounds that still allowed him to release the tic, but in a more socially acceptable way

Posted

My son is seven and has TS with PANDAS and he uses potty language all the time. I believe they are tics. He talks about privates (butts, weiners and sex and has used cuss words too.) Part of his is impulse control too. He tends to act before thinking. I don't know when to wash out his mouth or when to ignore it. It is very tough because he is teaching my two year old alot of bad things. I have him on antipsych meds and antidepressants and tic meds and I don't see it going away. The meltdowns are better and the vocal noises he used to make are less but he still has impulse issues and says alot of mean things without thinking or caring about others feelings. I am not sure what to tell you to make them go away.

 

Hi Melanie

 

does your son have a PANDAS diagnosis now?

 

coprolalia is a recognized Tourette tic.

 

conventional neurologists tend to offer antipsychotics for TS, and unfortunately the side effects from the antipsychotics can sometimes be worse than the tics, as we learned by bitter experience when my son was newly diagnosed and in a crisis state with severe tics/OCD and we were desperate and caved to pressure from school, neuro and psych to put him on the meds

 

we certainly saw no decrease in coprolalia then....if anything it got worse, as did his tourettic OCD

 

I dont know if your son has PANDAS diagnosis, nor do I know whether coprolalia is a PANDAS symptom, but I do know from experience to caution you to be very careful of antipsychotics

 

Forgive me for not remembering your son's age, but by age 12 my son had learned really good substitution techniques in cognitive behavioral therapy which helped him "mask" the coprolalia by substitute sounds that still allowed him to release the tic, but in a more socially acceptable way

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