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Posted
We just got back from seeing Dr. Trifiletti and when we went my dd was already on 2000mg of Augmentin XR per our family doctor. He added 500mg of Azithromycin per day. We'll start that tonight and see how it goes.

 

Angela

 

 

Angela,

do you mean that you're going to give the 2000 mg. Augmentin AND the 500 azithromycin at the same time? or do you mean this is a switch?

 

 

both at the same time.

Posted
DS has been on 250mg/day of azith for about 3 months and we've had a lot of ups and downs. I've seen tremendous results at times, but things just aren't getting consistently better and he's in a downward spiral now. His ped has agreed to switch him to 2000mg/day of Augmentin.

 

I had such high hopes for azith, but we do live in Massachusetts and according to what I read by Swedo there are strep strains in the north east that are resistant to azith. Maybe that's the issue. I thought about asking to raise the dose of azith, but decided to try the augmentin. Has anyone else made this switch? Do you think it would have been better to try a higher dose of azith first?

 

PANDAS makes me constantly second guess myself. Aghh!

 

I am also working on getting an appt with Dr. Robert Fuhlbrigge at Children's Hospital in Boston, but he won't have an appt til February.

 

 

Azith does not seem to be working for us here, I'll post about it shortly, but just want to make sure my observations are correct and not just a one or two day fluke. (p.s. we are east coast as well). already did augmentin for a month without any considerable results.

 

Faith

Posted

Faith...what doses did you use? (and child's weight) ?

 

Maybe Keflex would be a good next one to try...or clindamycin? or steroid burst?

Posted

Azith was 250 mg. per day.

 

The augmentin was 1000 mg. per day. He is 10 1/2 and only about 52 lbs.

 

Last week I found a new pediatrician and he did strep/culture and the ASO and Anti Dnase titers (which we've done numerous times in the past anyway) all normal, as usual.

 

I would consider doing Keflex for a bit, I'll have to re-visit one of the coveted docs tho. :)

 

 

Faith

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