mom2ck Posted December 12, 2009 Report Share Posted December 12, 2009 We finally got a diagnosis of Aspergers back in Aug. They left the prior tics disorder and ADHD diagnosis on there as they didnt specifically check for those. Even though he has many sensory issues and was seen by an OT, they didn't add SPD to the diagnosis. I have since read "Out of Sync Child" which by the way is awesome. Thanks for the recommendations from the many on here. I see my son in so many ways being SPD. Does this go hand in hand with Aspergers? Are the tics he has been experiencing really Sensory related? I read finger flicking, arm flapping and others are all part of the visual sense and movement. He definately shows tactile issues and some of the others as well. Should we ask for a diagnosis by an OT? Also saw where SPD can be caused by birth trauma. He had the cord around his neck and was purple when he came out. As far as we know, no oxygen was given. Calling to get birth records this coming week as those are the only medical records I don't have. We started seeing a DAN in Oct. and have since ran a couple of tests on him. The allergy tests came back with little allergies. She said that she has had that happen before to others when they were really allergic/intolerant but it didn't show because the immune system is so out of whack. With the other boy, it showed a year later once they started getting him on the right track. Cade is taking magnesium of an evening for constipation and defecating problems. That has helped immensely and we have had less accidents. He is also taking IP6 (inositol) for anxiety/anger issues and was also taking pycnogenol for concentration. But, she discontinued it as it wasn't helping. Also wanted to start 2 others, but I wanted to introduce them slowly. She has also recommended magnesium baths and cream like I have read here before. We did the baths before, but didn't seem to help. Right now I am kind of aggravated as I thought going to the DAN dr. would give us the answers we were searching for. It is costing a lot of $ which is hard to do. The tests didn't give us any answers. Now, more trial and error. Link to comment Share on other sites More sharing options...
faith Posted December 12, 2009 Report Share Posted December 12, 2009 mom2ck, I've been thru the same as you describe, but I guess its necessary to explore all the avenues if we want to try and treat this via the natural route. You never really know what will be the issue that needs attention and may be the key to alleviating or managing these symptoms. some have success, some do not. I have had moderate success, but not absolute. I've had problems doing dietary in recent year because my son is super skinny and is under the growth chart for his age, so I cannot keep much away from him except obvious junk, I've had to abandon much of it in order to get his weight up. Some supplements have seemed to aggravate some symptoms. Its all trial and error really. What I did was take what I could from each practioner and then move on when I didn't think I could go any further. I don't want to keep on "trying this" and "trying that", I didn't really need their brainstorming, I pretty much had enough of my own, lol. So I'd say when deciding to go another route, you pretty much have to get with the guy who does that particular thing. Take what you need, wether it be certain tests, treatment, whatever, and if it helps, great, if it doesn't, then move on. yes, some of this does cost a bit, but if we don't want to use traditional medications, unfortunately I guess its the only way. what things have you tried aside from what you mentioned above? if you see some things helping, its better than going on meds. Faith Link to comment Share on other sites More sharing options...
mom2ck Posted December 12, 2009 Author Report Share Posted December 12, 2009 Faith, I figured you would reply as you have replied to many of my previous posts. It seems we do have a lot in common with our kids. Thanks As for Cade, we started out seeing a Ped., then went to a chiro, then a child psych, then a comprehensive eval by The Autism Program (includes child psych, speech path, and OT), and now a DAN. With each one we got a little more answers. I can say in the last 3 1/2 years since the first diagnosis of ADHD, tics and OCD we have came a long way. Now it is mainly AS. But, it has been a long 3 1/2 years!!! It just seems with all the medical advances it shouldn't take this long to find out something. From all the talk on here about a DAN dr. and allergy tests, we had high hopes, it would finally be the answer. In 3 1/2 years, we have tried numerous medicines some worked ok and some not at all. We also tried Natural Calm & Fish oil and also a limitation on hfcs. He has seen a speech path on a regular basis for 2 years and an OT for the past year. He also sees the school social worker. I realized as his speech improved so did his eating habits. We still have many texture issues, but they have gotten so much better. His speech teacher is awesome!! Now trying to get OT more often. Like all of you on here, we want the best for our child and also want to make life a little easier for him and our family. We have been the med route and really don't want to go back to it. We prefer the natual treatments. But, it is time consuming and expensive. Now I know why so many people just want meds. They want a quick fix or don't have the time/money to do it. However, we feel a more natural way is best and that is why I like to talk on here. Link to comment Share on other sites More sharing options...
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