Time Table for Healing?

[momaine]

Dd started on Augmentin XR 2000mg about 2.5 weeks ago.(and a week beofre that was on 1000mg regular augmentin) It was around that time that she started on Advil and we saw big improvements from that. It does seem thatin the last 4 or 5 days that her tic is gone. (vocal tic which only showed up under extreme duress and which was also the last symptom to show itself) In writing it, it doesn't sound like its been a long time but I was hoping things would move along a little more quickly. She has had this for 3 years though.

 

How quickly was it before those of you who have been successful treating this were able to see your old child back? Am I hoping for too much?

 

Angela ~ wishing her dd had NO symptoms

[momaine]

Dd started on Augmentin XR 2000mg about 2.5 weeks ago.(and a week beofre that was on 1000mg regular augmentin) It was around that time that she started on Advil and we saw big improvements from that. It does seem thatin the last 4 or 5 days that her tic is gone. (vocal tic which only showed up under extreme duress and which was also the last symptom to show itself) In writing it, it doesn't sound like its been a long time but I was hoping things would move along a little more quickly. She has had this for 3 years though.

 

How quickly was it before those of you who have been successful treating this were able to see your old child back? Am I hoping for too much?

 

Angela ~ wishing her dd had NO symptoms

by the way, i changed my user name. same Angela that has been posting recenlty.

[faith]

Did your daughter have a vocal tic for three years? any other symptoms? was there any strep to erradicate in the last month or you just trying antiboitics? just curious.... (sorry, I am confused due to the name change.......... )

[thereishope]

Even if you didn't change your name, my brain is too fried to keep everyone's "stories" straight.

 

Some have said that it took even up to a month to truly see improvements.If you had to try to put a percentage on improvement, what would it be?

 

As for how long it takes, I feel bad when I say this, but it really does vary child to child. Also, some kids may eventually, need to take further steps to go into remission.

 

For my son, the first two strep triggered exacerbations took about 6 weeks to overcome. The last strep triggered exacerbation took 5 months to completely overcome.

 

In my opinion, as long as you continue to see some improvement, that's good. It's when you have dramatic setbacks lasting awhile or reach a plateau in recovery and you still don't consider your child back to themself that you need to question what is going on.

 

Also, give supplements to help the brain heal from all those years of inflammation. Omega 3's, DHA, are good for the brain.

[Buster]

Here's our time table (and I can send you a graph it it would help :-) )

 

OCD symptoms remitted 2 weeks after azith

movement disorder/motor tremor remitted 4-6 weeks after azith

vocal tic remitted 6-7 weeks after azith

 

We were then stable for the summer. We have some other items that happened, but the general rule has been 4-6 weeks for any dramatic improvements.

 

Buster

 

Dd started on Augmentin XR 2000mg about 2.5 weeks ago.(and a week beofre that was on 1000mg regular augmentin) It was around that time that she started on Advil and we saw big improvements from that. It does seem thatin the last 4 or 5 days that her tic is gone. (vocal tic which only showed up under extreme duress and which was also the last symptom to show itself) In writing it, it doesn't sound like its been a long time but I was hoping things would move along a little more quickly. She has had this for 3 years though.

 

How quickly was it before those of you who have been successful treating this were able to see your old child back? Am I hoping for too much?

 

Angela ~ wishing her dd had NO symptoms

[momaine]

Did your daughter have a vocal tic for three years? any other symptoms? was there any strep to erradicate in the last month or you just trying antiboitics? just curious.... (sorry, I am confused due to the name change.......... )

No, the vocal tic began this fall during the worst exacerbation she has had so far. I haven't seen it for at least 5 days now.

Angela

[momaine]

Thanks Buster. There has been some improvement but then she'll have a tough day and I'll worry that it isn't working. The improvements are small things but they all count. I kissed her cheek both yesterday and today and it did not set off a bunch of repetitions that she could not stop. (That's a sweet one, I miss kissing her and haven't been able to for 3 years) I haven't seen the tic for at least 5 days. Her mood has improved over all. She has slept upstairs (couldn't even go up the stairs a few weeks ago) of her own accord 5 times though it was difficult.

 

Today she asked a LOT of reassurance questions. But that was one of her first symptoms and one of her worst. It hasn't been half bad lately. It used to be the first thing out of her mouth in the morning and the last thing she said before going to bed at night. I keep telling her we need to see these little improvements and focus on those rather than the difficulty she is still having. But at 13 it's hard to be patient. Besides, I'm not patient and I'm much older. I just want that smilely little funny girl back full time.

 

Angela ~ trying to be patient

 

 

 

Here's our time table (and I can send you a graph it it would help :-) )

 

OCD symptoms remitted 2 weeks after azith

movement disorder/motor tremor remitted 4-6 weeks after azith

vocal tic remitted 6-7 weeks after azith

 

We were then stable for the summer. We have some other items that happened, but the general rule has been 4-6 weeks for any dramatic improvements.

 

Buster

[momaine]

I started giving her 8000mg of vitamin D (for the d3 family) plus 1 Omega 3 fish oil capsule per day starting 2 days ago. I just looked up DHA (never heard of it) and it is affordable enough so I'll pick up some of that next time I'm in town. Thank you for your thoughts. It hasn't been a month yet and so I"ll try to be more patient. On the good days I am so hopeful but on those difficult days I worry.

Angela

 

Even if you didn't change your name, my brain is too fried to keep everyone's "stories" straight.

 

Some have said that it took even up to a month to truly see improvements.If you had to try to put a percentage on improvement, what would it be?

 

As for how long it takes, I feel bad when I say this, but it really does vary child to child. Also, some kids may eventually, need to take further steps to go into remission.

 

For my son, the first two strep triggered exacerbations took about 6 weeks to overcome. The last strep triggered exacerbation took 5 months to completely overcome.

 

In my opinion, as long as you continue to see some improvement, that's good. It's when you have dramatic setbacks lasting awhile or reach a plateau in recovery and you still don't consider your child back to themself that you need to question what is going on.

 

Also, give supplements to help the brain heal from all those years of inflammation. Omega 3's, DHA, are good for the brain.

[thereishope]

DHA is what babies get for healthy brain development. I see it that the inflammation has to go down and then the brain needs to repair some of the damage that was caused by the inflammation. Like there's a bruise that needs to go away.

 

 

I started giving her 8000mg of vitamin D (for the d3 family) plus 1 Omega 3 fish oil capsule per day starting 2 days ago. I just looked up DHA (never heard of it) and it is affordable enough so I'll pick up some of that next time I'm in town. Thank you for your thoughts. It hasn't been a month yet and so I"ll try to be more patient. On the good days I am so hopeful but on those difficult days I worry.

Angela

 

Even if you didn't change your name, my brain is too fried to keep everyone's "stories" straight.

 

Some have said that it took even up to a month to truly see improvements.If you had to try to put a percentage on improvement, what would it be?

 

As for how long it takes, I feel bad when I say this, but it really does vary child to child. Also, some kids may eventually, need to take further steps to go into remission.

 

For my son, the first two strep triggered exacerbations took about 6 weeks to overcome. The last strep triggered exacerbation took 5 months to completely overcome.

 

In my opinion, as long as you continue to see some improvement, that's good. It's when you have dramatic setbacks lasting awhile or reach a plateau in recovery and you still don't consider your child back to themself that you need to question what is going on.

 

Also, give supplements to help the brain heal from all those years of inflammation. Omega 3's, DHA, are good for the brain.