Rheumy appt this morning

[peglem]

My daughter's ped referred us to the rheumatologist. We had the appt. this morning. A few years ago, this rheumy dismissed us, saying my daughter is just a strep carrier and not PANDAS because the ASO & Dnase titers were not elevated. But this time the Cunningham studies and Allie's results were sent for him. So, we talked...about lots of things. He admitted he doesn't know very much about PANDAS...I shared some of what I know about the Cunningham work and successful treatments...That I would like to do Plasmapheresis 1st, and that we are scheduled with the immunologist tomorrow. He ordered some bloodwork--those darn ASO/AntiDnase again! (she always tests low). He said he needs time to look at the studies-I also gave him a copy of the mouse model paper, Swedo's plasmapheresis/IVIG trials, and that turkish paper w/ the 4 adult case studies w/ PEX. We'll go back in 2 weeks....I've been and will continue to pray very hard about this. I feel encouraged in that he admitted ignorance, but seems open to learning about it....Hey look at me, I'm a medical professor now!

[faith]

LOL! ... good work dr. peg.

[ajcire]

Oh I am crossing my fingers for you!!! I definitely am much more respect for the doctor who says I don't know and need to learn more than the one who is close minded.

[Buster]

We're thinking of you too.

[peglem]

Thanks. If any of you are prayer-type people those are much appreciated, too!

[nevergiveup]

I am praying for you and your daughter. Keep trying. Have you ever had her ANA tested? Rheum like this indicator to justify an autoimmune disorder and treatment.

[peglem]

I am praying for you and your daughter. Keep trying. Have you ever had her ANA tested? Rheum like this indicator to justify an autoimmune disorder and treatment.

Thank you for the prayers- this rheumy tested ANA last time we saw him, it came up negative.