anyone on resperidal

[bubbasmom]

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

[peglem]

My daughter has been on risperdal...glad that's over. At 1st it seemed to help, because she was finally able to sleep and it increased her appetite...but that was short lived. As soon as another PANDAS (we didn't know it was PANDAS when we started, so-hindsight) exacerbation hit, it didn't matter what she was on- then we'd try an increase...another exacerbation and it didn't seem to have any effect anymore. Then, something happened with insurance and while in the process of switching psychiatrists, we ran out...once she got over withdrawal symptoms (when I saw we were going to run short, I began tapering, but quitting completely still sucked), I swear she had the best 2 weeks of her life! Then we got another PANDAS episode....and its a testament to my desperation that I actually tried it again! When she was still having problems on it...I tapered it myself and took her off it (school was really ticked off, but they were the ones who reported extreme rages while she was on it! And they didn't even know she was off it til 6 weeks after!). So it was a failure for us...but sure was a lot of pressure to keep her on it from both psychiatrists and the schools. She has changed schools and psychiatrist (we were actually shown the door the last time we went to that psychiatrist) now! The previous school, since they are not allowed to suggest meds, hired an outside consultant to discuss it with us! (ABA was not working).

Its not that I'm adverse to trying meds (very cautious though), just that we have never found one that helped! Her current psychiatrist respects our experiences and didn't bat an eye when I told her anti-psychotics are off the table. What I noticed in all that- and we found out about the PANDAS in the midst of it all- is that the best mood stabilizer for her seemed to be azithromycin, which is anyway, safer than psych meds. The problem, once you do find the PANDAS, is that the NIMH still recommends treating the PANDAS behaviors (OCD in particular) like you would garden variety OCD..ie-psychiatrically.

Right now my daughter is on Lamictal (she was having seizure activity a few years ago) and we have valium, which I use sparingly for bad anxiety attacks. That's it for psych meds. We've tried many psych meds. with either bad results or none at all.

So, that's our experience...

[Iowamom]

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

[bubbasmom]

You've had IVIG? My son is scheduled tomorrow. I was really hoping to see vast improvement, will I not? My son gets suicidal during rages so I'm desperate to keep him on some kind of meds. He's 12 and 130 pounds I can't physically restrain him much longer.

 

 

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

[Iowamom]

You've had IVIG? My son is scheduled tomorrow. I was really hoping to see vast improvement, will I not? My son gets suicidal during rages so I'm desperate to keep him on some kind of meds. He's 12 and 130 pounds I can't physically restrain him much longer.

 

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!!

Dawn

 

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

[Iowamom]

You've had IVIG? My son is scheduled tomorrow. I was really hoping to see vast improvement, will I not? My son gets suicidal during rages so I'm desperate to keep him on some kind of meds. He's 12 and 130 pounds I can't physically restrain him much longer.

 

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!!

Dawn

 

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!! smile.gif

Dawn

[melanie]

You've had IVIG? My son is scheduled tomorrow. I was really hoping to see vast improvement, will I not? My son gets suicidal during rages so I'm desperate to keep him on some kind of meds. He's 12 and 130 pounds I can't physically restrain him much longer.

 

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!!

Dawn

 

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!! smile.gif

Dawn

 

 

Hi my 15 year old son has been on risperadal since June 2009.Initially is was amazing he started on .25x2 now he is on .5 2x a day its ok not the cure all hes 130lbs also. The psy wanted to raise the dose but we wanted to wait until after the IV.Well its 7 weeks and the results are good and not so good .Were waiting for maybe more IV (we hope) The rages definetly arent as bad as before the risperadal and they are way better then before the IV. last week we had 2 rage attacks post IV and on antibiotics so we arent very happy.Today was a good day and hopefully we will speak to the neuro and he will agree to do the monthly iVs Good luck tomorrow and keeep us posted on the progress with your son.

 

Melanie

[bubbasmom]

Okay, see you and i are kind of in the same boat with the rage deal. 130 pounder can really make things 'interesting' during a fit of rage. Our problem too is trying to keep him from hurting himself during that time.

We had a bad fit yesterday as I said. But one thing really concerned me, he's never done before. I was pinning him down on the ground, squatted over him holding each of his wrists. He said he was hot - and I'm sure he was. But he babbled something that was out of his control kind of. "but my other twenty things....' and I asked him what he meant he just layed there with his eyes closed. He had a very very strange breathing pattern. Enough where I was keeping a very close eye on him, VERY close eye. And he kept his eyes closed. This was all very untypical of his fits. I'm going to call the dr. in the morning to let him know. And today my son does not remember that. I think he almost passed out, like didn't go all the way. Very weird. And all on the day we switched pills. Weird, huh?

 

 

You've had IVIG? My son is scheduled tomorrow. I was really hoping to see vast improvement, will I not? My son gets suicidal during rages so I'm desperate to keep him on some kind of meds. He's 12 and 130 pounds I can't physically restrain him much longer.

 

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!!

Dawn

 

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!! smile.gif

Dawn

 

 

Hi my 15 year old son has been on risperadal since June 2009.Initially is was amazing he started on .25x2 now he is on .5 2x a day its ok not the cure all hes 130lbs also. The psy wanted to raise the dose but we wanted to wait until after the IV.Well its 7 weeks and the results are good and not so good .Were waiting for maybe more IV (we hope) The rages definetly arent as bad as before the risperadal and they are way better then before the IV. last week we had 2 rage attacks post IV and on antibiotics so we arent very happy.Today was a good day and hopefully we will speak to the neuro and he will agree to do the monthly iVs Good luck tomorrow and keeep us posted on the progress with your son.

 

Melanie

[melanie]

Okay, see you and i are kind of in the same boat with the rage deal. 130 pounder can really make things 'interesting' during a fit of rage. Our problem too is trying to keep him from hurting himself during that time.

We had a bad fit yesterday as I said. But one thing really concerned me, he's never done before. I was pinning him down on the ground, squatted over him holding each of his wrists. He said he was hot - and I'm sure he was. But he babbled something that was out of his control kind of. "but my other twenty things....' and I asked him what he meant he just layed there with his eyes closed. He had a very very strange breathing pattern. Enough where I was keeping a very close eye on him, VERY close eye. And he kept his eyes closed. This was all very untypical of his fits. I'm going to call the dr. in the morning to let him know. And today my son does not remember that. I think he almost passed out, like didn't go all the way. Very weird. And all on the day we switched pills. Weird, huh?

 

 

You've had IVIG? My son is scheduled tomorrow. I was really hoping to see vast improvement, will I not? My son gets suicidal during rages so I'm desperate to keep him on some kind of meds. He's 12 and 130 pounds I can't physically restrain him much longer.

 

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!!

Dawn

 

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!! smile.gif

Dawn

 

 

Hi my 15 year old son has been on risperadal since June 2009.Initially is was amazing he started on .25x2 now he is on .5 2x a day its ok not the cure all hes 130lbs also. The psy wanted to raise the dose but we wanted to wait until after the IV.Well its 7 weeks and the results are good and not so good .Were waiting for maybe more IV (we hope) The rages definetly arent as bad as before the risperadal and they are way better then before the IV. last week we had 2 rage attacks post IV and on antibiotics so we arent very happy.Today was a good day and hopefully we will speak to the neuro and he will agree to do the monthly iVs Good luck tomorrow and keeep us posted on the progress with your son.

 

Melanie

 

what do you mean you switched pills? New to the risperadal? Or a new added medication.Today is the day you will get the IV or am I now totally confused ?I have to go to work and they block this forum.Ill catch up with you later .Have a good day.

 

Melanie

[michele]

My 7 yr old recently switched from Abilify to Risperdal. Initially he started on .25 mg 2 times a day. The rages were still bad. Then we went to 3 times a day .25 He still was having meltdowns. So we then went to 1 mg two times a day. It was better but still not great. Then we added Tenex 1 mg two times a day. He is finally settling down from the rages. He still gets mad and yells but not to the degree it was before. I am hoping we can still add an anxiety med like prozac at the next visit for the compulsions and anxiety. He still argues alot and gets on the families nerves. He has not been sick this fall yet other then a mild cold. Last time in June when he had the flu and fever his symptoms really got bad and remined bad all summer. I was not sure if it was the Abilify not working or the illness. He was on 15 mg of Abilify so we decided to try the Risperdal. He also takes clonidine at bedtime .1mg in half. It helps him relax and sleep.

 

Michele

 

Okay, see you and i are kind of in the same boat with the rage deal. 130 pounder can really make things 'interesting' during a fit of rage. Our problem too is trying to keep him from hurting himself during that time.

We had a bad fit yesterday as I said. But one thing really concerned me, he's never done before. I was pinning him down on the ground, squatted over him holding each of his wrists. He said he was hot - and I'm sure he was. But he babbled something that was out of his control kind of. "but my other twenty things....' and I asked him what he meant he just layed there with his eyes closed. He had a very very strange breathing pattern. Enough where I was keeping a very close eye on him, VERY close eye. And he kept his eyes closed. This was all very untypical of his fits. I'm going to call the dr. in the morning to let him know. And today my son does not remember that. I think he almost passed out, like didn't go all the way. Very weird. And all on the day we switched pills. Weird, huh?

 

 

You've had IVIG? My son is scheduled tomorrow. I was really hoping to see vast improvement, will I not? My son gets suicidal during rages so I'm desperate to keep him on some kind of meds. He's 12 and 130 pounds I can't physically restrain him much longer.

 

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!!

Dawn

 

anyone taking resperidal for rage? Any problems? Switched from 2 half mg tablets to 1 whole mg tablet and we had another huge episode. Coincidence?

 

Our 10 yo son is on Risperdal 3mg/day, split as 1mg a.m and 2mg p.m. for rages and the like. It and Namenda (probably more so) have helped some. I repeat, some. Nothing else has. I gather, it needs to be 2x a day. Are you just taking it one time a day? When were were on 1mg, or 2mg it was always split a.m./p.m. Our psych cautioned us about the possibility of akathisia--the an inner feeling of needing to move. I am certain we are seeing that based on what I like to call "the wedgie wiggles"! They have given him a tiny dose of a drug to call that down. I hate it, but we are only out 3 weeks on IVIG. We can't be titrating yet, but that is Dr. K's plan once we get a good stretch of holding improvement. Our experience.

 

Dawn

Bubbasmom-

 

I hope this ends up in the correct place in the thread! The very same reasons we are on it. Our goal is to get him off in time. IVIG with whom?? Dr. K said the older kids tend to have a bumpy road to recovering. He said younger kids tend to improve and just take off. I gather from several of the parents with older IVIG kids experience some pretty bumpy times in the initial weeks post IVIG. We have not had anything as bad as what we have had. I would say it is different. The flipping out times aren't as intense and don't last as long. Is your boy still pre-puberty? Dr. K is very optimistic even though Evan has had this a long time.

 

Best wishes tomorrow!! smile.gif

Dawn

 

 

Hi my 15 year old son has been on risperadal since June 2009.Initially is was amazing he started on .25x2 now he is on .5 2x a day its ok not the cure all hes 130lbs also. The psy wanted to raise the dose but we wanted to wait until after the IV.Well its 7 weeks and the results are good and not so good .Were waiting for maybe more IV (we hope) The rages definetly arent as bad as before the risperadal and they are way better then before the IV. last week we had 2 rage attacks post IV and on antibiotics so we arent very happy.Today was a good day and hopefully we will speak to the neuro and he will agree to do the monthly iVs Good luck tomorrow and keeep us posted on the progress with your son.

 

Melanie

 

what do you mean you switched pills? New to the risperadal? Or a new added medication.Today is the day you will get the IV or am I now totally confused ?I have to go to work and they block this forum.Ill catch up with you later .Have a good day.

 

Melanie

[melanie]

Be careful with the ssri with pandas .Ive tried I think eveyone of them the last one being zoloft with horrible results.Someone posted this awhile ago but I never listen.

Melanie

[fuelforall]

Anyone tried Seroquel?

These are not SSRIs, BTW.

 

Michael

[Iowamom]

Seroquel XR was a flop for us, as was Abilify. Lexapro (SSRI) made him disinhibited--Weeeee. That was fun--Not! If there is one drug that I would give the biggest thumbs up for him, that would be Namenda. A glutamate receptor antagonist. Glutamate is a neurotransmitter. Dawn

[peglem]

If your child takes antipsychotics, something that may help with side effects is bethanechol. Antipsychotics (risperdal, seroquel, haliperodal and others) are anticholinergic. Acetylcholine is a neurotansmitter in among other things, the parasympathetic nervous system (the calm down counterpart to the sympathetic, high alert, system). Bethanechol mimics acetylcholine, so helps to ameliorate the anticholinergic effects of antipsychotics. We kept the bethanechol after ditching the antipsychotics because it does seem to help my daughter a little with calming and fine motor function.