abbe Posted October 8, 2009 Report Share Posted October 8, 2009 I believe topamax is making Nicholas loose his hair. I am weaning him off abbe Link to comment Share on other sites More sharing options...
faith Posted October 8, 2009 Report Share Posted October 8, 2009 really? what have you seen? hair coming out or patches? does he have short hair or a longer style? how long on this? does it state that as a side effect for this med? Also, what if any improvements have you see re the topomax? thanks Faith Link to comment Share on other sites More sharing options...
mommyof2 Posted October 8, 2009 Report Share Posted October 8, 2009 wow...my son has been on this since December and we haven't noticed any hair loss .... anyone else here on topamax notice it???? We just took him from 50 mg to 25 mg since Sunday..hoping we can stay at a lower dosage and the tics do not come back again. We had an increase in them at the beginning of the summer, blamed it on the generic but it took a good month or more on the brand name to get them back under control and then the vocal was still there... funny that started in june when swimming started and that noise stopped the beginning of sept with no swimming. I am anxous, well not anxious, more curious to see if it happens next summer again.... if so I told my parents, where he swims the post, I may invest in a chlorine free sysem for their pool. Hope Nicholas does good after being weaned off... at least you have other things that seem to be helping him after finding the mold connection...Good luck!!! Mary Link to comment Share on other sites More sharing options...
abbe Posted October 8, 2009 Author Report Share Posted October 8, 2009 Mary, Faith, I checked on the internet and there is a connection of topamax and hair loss. I am losing it at this point from worry. abbe Link to comment Share on other sites More sharing options...
dee45 Posted October 9, 2009 Report Share Posted October 9, 2009 Hi, ANthony has had no side effects. could it be related to diet?? Deanna Link to comment Share on other sites More sharing options...
Guest crystalrojan Posted October 9, 2009 Report Share Posted October 9, 2009 I heard that hair loss is one of the side effects of Topamax medication in children. If you are worried about its side effect you should consult the doctor right away. Link to comment Share on other sites More sharing options...
abbe Posted October 9, 2009 Author Report Share Posted October 9, 2009 Hello, It's not Nicks diet he eats so much and so well for an 8 year old. I did contact Dr. Chung. He said the amount of hair I am seeing is not reason for concern. (this is not Nicks neuro. dr. dr. Chung does not like meds and understands I don't want Nick on them. Nick is on 15 mg now the lowest dose possible. all of the hair lass stories I saw were from women. I am trying to find even one male. Not sure if there is a hormone connection. It is just another sign for me to hurry up and solve this puzzle and get him off of it. He tested 18 for pyroluria and I am taking him next week to Chung to talk about it. abbe Link to comment Share on other sites More sharing options...
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