Kidney problems

[ShaesMom]

Hi,

 

I shared with some of you that on Wednesday my daughter had an ultrasound of her kidney's and they found something wrong but of course they tell you nothing. Earliest appt we could get with the Urologist was for December 15th. After reviewing the report from Radiology-the appt has been moved to Monday afternoon. They still won't tell me anything but now I am really concerned.

 

Please kee her in your thoughts and prayers on Monday as she has an endoscope & colonoscopy in the morning and then we meet with the urologist in the afternoon.

 

Thanks,

 

Sam

[peglem]

Oh, my goodness. Prayers going up for you guys!

[mama2alex]

Hi Sam,

 

Does the doctor think it could be related to her IVIG treatments? A friend sent us some good info on various brands of IVIG and the precautions section indicated there could be a neg effect on the kidneys. Here's a sentence I pulled from it:

 

"Renal effects are more common with high sucrose content and high osmolality. Make sure patients are not volume depleted prior to administration."

 

Not sure if that's helpful at all. My thoughts and prayers are with you and Shae.

[pixiesmommy]

You are in my thoughts tonight. Please call if you need a shoulder.

 

((hugs))

Manda

[ShaesMom]

Hi Sam,

 

Does the doctor think it could be related to her IVIG treatments? A friend sent us some good info on various brands of IVIG and the precautions section indicated there could be a neg effect on the kidneys. Here's a sentence I pulled from it:

 

"Renal effects are more common with high sucrose content and high osmolality. Make sure patients are not volume depleted prior to administration."

 

Not sure if that's helpful at all. My thoughts and prayers are with you and Shae.

 

 

I think it is unlikely that it relates to the IVIG. She gets Gamunex which does not have any sugar in it. She did receive Gammagard for her two day infusion which does have sugar. I'm sure whatever it is was preexisting.

 

She has a history of chronic UTI's since 2006 including one which was a pseudomonas infection that required hospitalization and IV abx.

 

I have no idea what to even begin researching because I literally know nothing other than there is a problem.

[Kayanne]

I hope it turns out to be nothing of consequence...positve wishes and prayers are being sent your way!

 

Karen

[Suzan]

Hang in there Sam! Please email or call me if you need anything. Of course I will be thinking of you guys this weekend!

 

Susan

[kim]

Sam,

 

I'm thinking of you and Shae this morning and praying (literally) that all goes well.

[colleenrn]

Sam,

 

You all are in my prayers. Good luck and hang in there!

 

Colleen

[FallingApart]

Good luck today!

[chrisw]

Will be lifting Shae, you and family up in prayer. So sorry you all are going through this on top of everything else.

 

Christie

[pixiesmommy]

Thinking of you and holding you all in my heart today as you go through this.

[ShaesMom]

Thank you everyone for the support and the prayers! It brought tears to my eyes to read your posts today. Unfortunately, I have no family and my husbands family in not very supportive so it is nice to know some many are thinking of us.

 

Yesterday was living XXXX for both Shae and myself. She was admitted about 3 pm. She was dehydrated due to her refusal to drink after taking the laxatives and she refused to drink the mag citrate-which I expected.

 

They had to put a tube down her nose and gave her the laxative over a five hour period. She also needed an IV for fluids. She was extremely upset about the tube and asked me why I chose to have them do it. It was not my choice. She also told me that "her life was the worst in our family" and that her "life was bad". I don't really know if it possible for a 7 year old to be suicidal but sometimes I wonder if she is. It was incredibly difficult to hear her say those things and know she feels that way. Maybe it's just the Pandas talking-she has said similar things recently.

 

They didn't find anything visually in the endoscope or colonoscopy (no peptic ulcers). Now we have to wait a week for the biopsies. I did ask about the strep and they said that strep would not show up on the biopsy. Our GI doctor did tell me beforehand that she doubted they would see anything but

 

The Urology appt went well. This is the third different urologist we have seen in four years and he was by far the best. Her kidneys are fine. She possibly has something called UPJ Obstruction. Her renal pelvis on her right side is enlarged and the ureter tube to the bladder is small but not restricted. He wants to do another ultrasound in 6-12 months. In the meantime, if she develops recurrent UTI's, another pseudomonas infection, or has pain on the right side, we need to contact him immediately and have a Lasix Renal Scan. So, it is something we need to monitor but nothing life threatening. I'm glad that we have this information but like my husband said after we left the appt-it could have been handled differently. We both were physically ill with worry over the weekend that it was cancer or she needed an emergency kidney transplant. He did tell us that IVIG should not be a problem.

 

So, I'm off the research UPJ Obstruction.

[pixiesmommy]

I'm so sorry you had to go through all of that (both of you!) I know how it is to have to be the "bad guy" and have the medical procedures done. If Shae is anything like Pix, she doesn't understand or "care" about consequences (ie if you don't drink, you get a tube down your throat.)

 

I'm so glad her kidney issues aren't more serious.

 

((hugs))

Manda

[melanie]

Sorry to hear of this I hope she ok.Praying for you both

 

melanie