IVIG and coverage in New York

[fuelforall]

Hi!

 

Does anyone in NY know of any insurance plan that covers IVIG for PANDAS?

 

Thanks in advance

 

Michael

[ShaesMom]

Hi!

 

Does anyone in NY know of any insurance plan that covers IVIG for PANDAS?

 

Thanks in advance

 

Michael

 

 

I may be wrong but I don't think any insurance covers IVIG for Pandas. It really isn't a "recognized" disease yet. To get insurance to pay for the IVIG you need to have a creative doctor. Our doctor used the code for Common Variable Immune Deficiency (279.06) but we still don't know if insurance will pay for the two day dose she received for her Pandas. Falling Apart had a post about two weeks ago which listed some other codes and ideas for insurance approval. Take a look at that post for some ideas.

[EAMom]

I think NancyD (?) someone that covers PANDAS. Several of us have gotten coverage by using other codes.

[NancyD]

Yes, Harvard Pilgrim Health covers IVIG for PANDAS. It is the only insurance company in MA I could find that would cover it.

 

Nancy

 

I think NancyD (?) someone that covers PANDAS. Several of us have gotten coverage by using other codes.

[FallingApart]

Hello,

 

I got the code that our ped used for our IVIG case and will update my thread with it in just a bit. Everyone here is right, at least regarding our case, that it can't be called PANDAS. We used autoimmune encephalitis, I believe. But, I will update with the exact code on the other thread.

 

Best of luck to you.