PANDAS anorexia video link

[EAMom]

Hi Everyone,

 

I hope this link works.

 

http://www.comcast.net/data/fan/html/popup.html?v=62582065

 

I don't know why this kid wasn't on prophylactic antibiotics!

 

I also think it's interesting that they don't say the word PANDAS in the video. They do mention step throat.

 

At least this girl didn't get the tics, psychotic behavior, tantrums, emotional lability, ocd, severe depression, suicidal thoughts (along with the anorexia nervosa) that my dd did!

[kim]

EAMom,

 

I watched that story when it originally aired. It's amazing to me to read the stories on this bd. and see my own boys who have totally different manifestations and yet we have something in common with almost everyone with one or the other son.

 

My youngest stopped eating around 1 yr/15 mos. I've never narrowed it down exactly. All I know is he started eliminating foods from his formally robust diet.

 

I have no options with food elimination. I read your post about (2 pieces of toast within 24 hours?) and think of how many days my youngest son will go with nothing but pretzels in 24 hours. I watch the little girl on the video and the way she just barely touches the food to her lips, and I see my son who does the same thing many days. Not only is he leary of the food, he is SO limited in what he will eat. This is not episodic, it's our life. I also remember a story that was aired about toddlers many years ago. Some of these kids were so bad, they would not even put water in their mouths. They were far too young to have any "self" or body image problems. My son doesn't either. He wants to eat and get almost as frustrated as we get, that he can't. I totally believe in the gene, with a trigger theory.

[kim]

edit...double post

[EAMom]

Is your youngest not eating b/c of PANDAS or do they know what it is?

[BeeRae22]

I couldn't open the link....

[rowingmom]

This is probably not the same link, because they do mention PANS/PANDAS, but it might be similar:

 

http://www.youtube.com/watch?v=pbEM2OVM2kU

[EAMom]

I kind of remember this video. It was a younger girl...kept getting anorexia every time she got strep. No mention getting on long term abs.