EAMom Posted October 1, 2008 Report Share Posted October 1, 2008 Hi Everyone, I hope this link works. http://www.comcast.net/data/fan/html/popup.html?v=62582065 I don't know why this kid wasn't on prophylactic antibiotics! I also think it's interesting that they don't say the word PANDAS in the video. They do mention step throat. At least this girl didn't get the tics, psychotic behavior, tantrums, emotional lability, ocd, severe depression, suicidal thoughts (along with the anorexia nervosa) that my dd did! Link to comment Share on other sites More sharing options...
kim Posted October 1, 2008 Report Share Posted October 1, 2008 EAMom, I watched that story when it originally aired. It's amazing to me to read the stories on this bd. and see my own boys who have totally different manifestations and yet we have something in common with almost everyone with one or the other son. My youngest stopped eating around 1 yr/15 mos. I've never narrowed it down exactly. All I know is he started eliminating foods from his formally robust diet. I have no options with food elimination. I read your post about (2 pieces of toast within 24 hours?) and think of how many days my youngest son will go with nothing but pretzels in 24 hours. I watch the little girl on the video and the way she just barely touches the food to her lips, and I see my son who does the same thing many days. Not only is he leary of the food, he is SO limited in what he will eat. This is not episodic, it's our life. I also remember a story that was aired about toddlers many years ago. Some of these kids were so bad, they would not even put water in their mouths. They were far too young to have any "self" or body image problems. My son doesn't either. He wants to eat and get almost as frustrated as we get, that he can't. I totally believe in the gene, with a trigger theory. Link to comment Share on other sites More sharing options...
kim Posted October 1, 2008 Report Share Posted October 1, 2008 edit...double post Link to comment Share on other sites More sharing options...
EAMom Posted October 3, 2008 Author Report Share Posted October 3, 2008 Is your youngest not eating b/c of PANDAS or do they know what it is? Link to comment Share on other sites More sharing options...
BeeRae22 Posted May 2, 2014 Report Share Posted May 2, 2014 I couldn't open the link.... Link to comment Share on other sites More sharing options...
rowingmom Posted May 2, 2014 Report Share Posted May 2, 2014 This is probably not the same link, because they do mention PANS/PANDAS, but it might be similar: http://www.youtube.com/watch?v=pbEM2OVM2kU Link to comment Share on other sites More sharing options...
EAMom Posted May 3, 2014 Author Report Share Posted May 3, 2014 I kind of remember this video. It was a younger girl...kept getting anorexia every time she got strep. No mention getting on long term abs. Link to comment Share on other sites More sharing options...
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