MEMORY PROBLEMS/OCD

[hopefulinsc]

Trying to get an answer. Has anyone ever experienced their child suffering from short and long-term memory loss. My daughter seems to be on her 2nd episode (undiagnosed, as of today) of P.A.N.D.A.s (OCD) This 2nd time around is much milder this time; but, the behavior seems to be more regressive and hyperactive this time. (we believe, but don't know for sure that the 2nd episode was brought on by her HEP A booster shot). What I'm trying to find out is if short/long-term memory difficulties are not unsual with this. Does anyone know if this is not unusual; and, if not, if the memory loss is permanent?

 

Also, has anyone heard of anyone totally going into remission on this after a few episodes? Every hopeful, but very curious about this.

 

Please help with an answer on this.

 

Appreciate any help.....

[Tracey111]

Hi,

 

My son does not have PANDAS or OCD. I am on this forum for tics (almost a year now). His tics have been EXTREMELY mild for a couple of months now.

 

I have just been told that his short term and long term memory processing are more than 15 points below his IQ. Long term is really poor! I was wondering the same thing....does it have anything to do with his tics? Poor baby works so hard and just does not get it sometimes....and other times he shocks me with what he can analyze.

 

It must all be the same part of the brain. He has good days and bad days with what he remembers.

 

I have researched Ginko Biloba and DMAE for memory. Both say not to give to children. The Ginko makes me nervous, because it talks about blood flow to the brain........... and there are lots of blogs about not giving it to children. I recently started the DMAE, but very low doses. I also give him Acetyl L Carnitine, which is listed under improving memory.

 

If it works, the results may be tougher to detect. With the tics, you know which supplements made a difference b/c you see the decrease in tics. Memory is a little different!

 

Anyone else have similar stories????

[EAMom]

Also, has anyone heard of anyone totally going into remission on this after a few episodes? Every hopeful, but very curious about this.

 

I have recently heard about a girl going into remission when she hit puberty...

 

Also, my dd has dyslexic like symptoms...possible problems with orthographic memory. We are not certain that PANDAS has nothing to do with this. We'll see what the neuropsychologist says...

 

Does anyone have experience with either of these issues?

[michele]

Yes my son is now having visual motor delays it affects how he sees things and descrimination of visual material. He reverses when he writes numbers and letters. He can not do diagnol letters and can not cross the midline. Google visual motor integration disorder and a ton comes up. This seems to have gotten worse with repeat PANDAS episodes. They will not diagnose dyslexia in a child of his age which is 6. He is behind in viual, gross and fine motor skills. We seek OT for this twice a week. I am worried how this will affect his reading and Math. I tried to discuss this with the school as a symptom of TS but they just weren't interested.

 

 

Michele

 

Also, has anyone heard of anyone totally going into remission on this after a few episodes? Every hopeful, but very curious about this.

 

I have recently heard about a girl going into remission when she hit puberty...

 

Also, my dd has dyslexic like symptoms...possible problems with orthographic memory. We are not certain that PANDAS has nothing to do with this. We'll see what the neuropsychologist says...

 

Does anyone have experience with either of these issues?

[Tracey111]

Michelle,

 

Keep in mind that you (I THINK) you can get an IEP with TS....or maybe you have one already? It falls under the OHI category, which is other health impared. If your child starts struggling in school....go after this so that you can get accommodations for whatever learning needs he has. Be the squeaky wheel when it comes to this, as the school should listen when you start to bother them!! You can google TS and accommodations and you will find a list of stuff to ask for.

[dut]

Hello.

 

Our 5 yr old dd has had 1 bad PANDAS episode, a small relapse shortly after that one and, with hindsight, possibly 1-2 earlier milder episodes. I can't answer on the memory problem, she was just very foggy in general during the bad episode but can answer regarding remission. She is currently, totally symptom free. She had a 2 week course of amoxicillin which seemed to do the trick and got her to about 10-15% or so of symptom level followed by a symptom increase with a perianal strep infection treated with azithromycin. She then gradually tapered down to no symptoms over a 3 month period.

 

She is once again her normal happy self, all OCD, behaviour changes and tics have gone and while the tics were mild the OCD and numerous behaviour changes were severe. She isn't currently on anything except vitamins but we will be adding some anitbiotic back in prophylactically in time for "strep season". Our doctor has been happy to do this and says she will let us know when she starts seeing strep ramp back up in her practice. We were worried about being permanently on antibiotics but still can't decide if we're making the right choice not having her on them.

[michele]

He had a full MFE done. I prepared for the meeting for weeks. The TSA website and Leslie Packer's tics plus have a ton of good accommodations TS kids could possibly benefit from. I love the handout TS is more then tics. I even brought a parent advocate to the meeting. Last year my son had check marks in reading sounds (beg, mid, end)and Math concepts add and subtract. However the school claimed at the meeting that he was just low to average on his MFE test scores. He was very low 3% in visual motor discrimination though. But when they averaged in all the test scores he came out in the mid to low average range. Then they had his this year teacher show his progress (she had only good things to say) and his last years teacher write a note recommending title 1 reading only not any tutoring help, and explining why he gave him the bad marks on the report card. They went around a table and all backed up the same findings. I tried to go over my list of concerns after they were done but they cut me off and said time was up and we needed to move on. So he gets Title 1 only for now. Luckily it is a small group of 3 kids. I know he is smart but he is frustrated and writing letters and numbers is so hard for him. Math concepts have been hard so far also. He does get an IEP for OT (OHI) but they wouldn't add any accommodations onto it. I even brought books with pages bookmarked that showed accommodations for his weak areas. They were not interested in seeing it. I had handouts too. Basically the meeting was to show me he is doing fine for now and does not qualify for addtional support at this time. Interesting my cousins son who has TS qualified for tutoring up to 40 minutes per day since he was in first grade and he is now in twelfth. Some districts are easier then others to get additional help in. Ours is known as a difficult one. My son does have a wonderful teacher for the second year. I guess if the teachers make the accomodations on their own we are very lucky. She is watching him closely and has filled me in when he struggled on something. The problem with a six year old boy is they say alot of it is age related. For the time he doesn't stick out enough from the pack. Also the school knows I pay for tutoring, and OT privately. He gets alot of help at home too because I am a retired teacher. However I wonder how low a kid needs to be falling behind to qualify for help, if a kid has disibilities and can't qualify. For the time being I will let it ride. I don't want to be known as a parent pain at the school. If I see him fall behind and he gets overly frustrated I will request another meeting. I just know stress can add to their tics and emotional behaviors. Thanks for your input.

 

Michele

Michelle,

 

Keep in mind that you (I THINK) you can get an IEP with TS....or maybe you have one already? It falls under the OHI category, which is other health impared. If your child starts struggling in school....go after this so that you can get accommodations for whatever learning needs he has. Be the squeaky wheel when it comes to this, as the school should listen when you start to bother them!! You can google TS and accommodations and you will find a list of stuff to ask for.