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Everything posted by Tracey111

  1. I am researching PANDAS. I found the flow chart for diagnosing.....I have a sore throat and my son's throat is scratchy when reading. For a week or so he has had tics after 11 months tic free...this weekend they exploded from a minor eyebrow strectch to full head tonight.....the minor tics have been at least a week (?)....and his attitude has gone south for about a week!!! Is it too late to check for strep in a throat culture? Do I need to do blood tests if I go the DR tomorrow? It appears that everyone in the house should be checked? Is there a way other than all of us going to the D
  2. I tried these Market America supplements for my son when he first started cupping. She sold them to me and told me to stop all of my other supplements. His tics got VERY bad and it scared me, so I took him off of them right away and returned them. I don't know if it was the intial detox of the cupping, or the supplement change, or the supplement itself....but it scared me.
  3. Thank you for replying. He is 8, almost 9. His attitude and frustration level have gone downhill as fast as the tics have returned. He is a different child the last week or two....not his easy going self!!! I don't think it is hormones this young. Supplements were GABA, Acetyl L Carnitine, Mag Taurate, Flax Oil, Ester C, Calcium Citrate, NAC.....that is all I can recall from memory. The diet has been very lax for 11 months and no issues with tics....and when I say very, I mean we haven't had to watch anything. Here is the strange thing......I have a horrible sore throat today a
  4. My son started with eye blink tics two weeks after the Chix pox vaccine.......we spent a year and a half after the vaccine trying to rid the tics......I thought it was TS....now after 11 months of no tics, they are coming back......so I am just starting to research PANDAS..., I KNOW IT WAS THE VACCINE!!! Why else would they show up out of NO WHERE at age 6???
  5. The Epsom Salt Baths helped my son. I made him take them in the summer after he got out of the pool. My older son, who does not have tics, started to ask to take them because he liked the way he felt afterwards ???? I think they helped....but can't tell you the medical reason why. As with the other post on this topic, I think that Magnesium Taurate was a big help as a supplement.
  6. It has been a long time since I have posted. Now, I am looking for anyone with this situation.....especially if you recall my posts from a year or so ago...... My son has been tic-free for 11 months after four cupping sessions....and a dose of antibiotics. We stopped our supplements 11 months ago, which initially I thought were key to keeping tics to a minimum....he has not had supplements or "all-natural" diet in 11 months.....now the tics come back in the same fashion that they first entered. A minor eyebrow lift noticed the last two weeks, but very rare. Then the eyes are starting.
  7. http://www.schoolbehavior.com/Files/tips_tourette.pdf Here is a site I found a long time ago. My son qualified for Special Education Services under "other health impared" due to his tics. ESE support can be WONDERFUL. The school is required by law to give your child whatever accommodations are laid out in the IEP. It is a great protection for children in the learning environment. As an educator, the first thing I do with my class rolls is look to see who is ESE and what their "needs/requirements" are!!! I make sure that I know this as soon as I meet the child. Good luck...
  8. Hi, I have a male 8 year old. His tics disappeared in late March after a month of weekly cupping, one accupuncture treatment and an antibiotic for a bad bug bite on his hand. We stopped all supplements at that time b/c I wanted to see if the supplements REALLY made a difference. He was sniffling last week and sneezing and we saw him tic a few times but not bad......the physciatrist said it could be allergies, but had no answers ! No more tics this week. GABA, Acetyl L Carnitine, and NAC were the supplements that helped with the eye tics. Low salycilate foods were very important b/
  9. I wrote in about a month ago regarding my son's tics being gone after his three weeks of cupping and one acupunture treatment. We have not been back for treatment since March 24th and he is still tic free with no supplements. I stopped his supplements around March 28th. I have more recently been looking at PANDAS. The item that I forgot to mention above was that he had an insect bite on February 27th that got very infected. We got him antibiotics on this day. This was his first antibiotic treatment since the vaccine/tics over a year and a half prior. I noticed his tics were gone one
  10. It is late at night and I should be in bed, so I read this VERY quickly.....but I keep seeing the word toxins.....I am trying to figure out how it is that my son's tics disappeared over the last two weeks......we did 3 or 4 weeks of cupping once a week and then one accupunture treatment. When we moved on to accupuncture, the Dr said that the cupping is more for detox and the accupunture would help more with his focus......could the cupping sessions have had that big of result???? He has been tic free for two weeks and has not had any supplements in that two weeks....this is a first for us in
  11. He did three or four weeks of cupping and then he did one acupuncture treatment. That was 2 1/2 weeks ago. He has another one scheduled for Tuesday. I still have not seen any tics....I am wondering if the detox of the cupping had something to do with all of this too????? I took him to a psychiatrist today because I have tried the Pediatrition, nuerologist, eye specialist, Oriental Medicine Dr, and have not had answers on his comorbid conditions....tics/focus issues/not reading......the psychiatrist mentioned the waxing and waning, but also talked about auto - immune (?) conditions. I a
  12. I am starting to think that my son's tics are one big puzzle!!! When I changed his supplements to the Dr's supplements a month or so ago, he started ticcing like crazy. I flipped out and went back to his normal supplements. Things improved. Well, it has now been over a week since he has had supplements and he is tic free still??? (I thought maybe I saw one or two today when doing some eye excercises, but that is it in over a week.) This is crazy....I have claimed the supplements to be the control of his tics....??? It must be the acupuncture....we have not done any "gut cleanu
  13. Thanks for the replies. Insurance???? Great Idea! I hope they will cover it....assumed they would not. I don't know what points he did, as I was afraid that my son would chicken out if I was in the room. I was told the head, the back, and my son said one near his ankles. We had done 3 or 4 cupping sessions in the prior month and they did not help with tics or focus....but we were trying the GF/Dairy Free diet plus changed supplements. I almost think that the cupping sessions resulted in an increase of tics in the few days following it....almost like a drawing out??? The week
  14. Betty, I can tell you that when I had too many salycilates my son's tics returned in multiples! They were full head swings/jerks vs. eye blinking. I learne this a while ago. I recently tried to go GF and dairy free for his attention issues.....is tics returned GREATLY...I realized I was high salycilate again. I reduced them and went back to my supplements. It worked...... I think amino acids and low saylycilate are key for my son! GABA, NAC and Aceytl L l Carnitine........I hope this information helps!
  15. Hi all, My son had an acupunture treatment about 9 days ago. We are on Spring Break and have been skipping supplements for a few days. Today I thought about hos he has not had supplements in 2-3 days and has had NO TICS in the last few days. The tics have been very limited lately, but I always link them to supplements. Today a friend even noticed that he has no tics. Well, I have not given supplements much this week and the only change was the acupuncture....where the DR focused on attention issues. Has anyone else seen a decrease in tics due to acupunture? When we first went to
  16. Airbucket, Yes he has an IEP...trying with all my might for them to look at SLD, because he is only OHI right now. We have the tics, ADHD, and now some type of vision issue. I find out about the vision issue on Tuesday....but from what I have read it is commonly misdiagnosed as ADD.....the teachers say he can not focus at all....see a lot of that at home, but he could watch five hours of TV or play multiple hours of wii!!!! Focus is slightly better since seeing the Chinese Medicine Dr. and doing an elimination diet...with lots of cheating! One month to try all alternatives before
  17. Head tics for us started when we went all natural.....turns out we had too many high salycilate foods.....he was eating such good food, but he had a huge reaction.....we also added amino acids NAC, Aceytl-L Carnatine, and GABA to our recipe.....I think removing the artificials was key for us, but that ended up in lots of fruits/veggies and we realized it was high in salycilates.........just a thought....I think that Faith saw this same reaction????
  18. I can not find wheatgrass on the salycilate list...does anyone know if it is high salycilate? My Dr. is suggesting it, but I know that my son reacts to salycilates. Thanks for any input!
  19. http://www.zipworld.com.au/~ataraxy/Salicylates_list.html I found a list like this one to guide me when I started reducing them.
  20. I can tell you that Ginko and Grapeseed have come up in all of my personal (ONLINE) research. I have not added either.....I bought the Ginko, but got scared b/c my son is only 7 and it says not to give to children.......I read great things about both supplements.
  21. Faith, Yes, one day he had high salycilates. I noted this in my tracking. I corrected it right away....wow, that is tough when you are gluten and dairy free! God Bless the moms that handle this so well!!!!! I returned the "Market America" supplements on Tuesday. He has not had ANY supplements since Tuesday morning. His tics are actually getting better (since Tuesday morning). I have concerns of shocking this child's system! I am at a loss b/c I still don't have an answer as to if I give him too much stuff, but remember researching it all when I came up with the doses I give
  22. Thanks for all of the replies. Faith, I totally stopped my supplements... He is still ticcing today and I emailed the DR. I told her the amino acids were what finally took the eye tics away and she said to add them back in, but in applesauce....I am going to keep him off of them for one more week to see if maybe the antibiotics from 3 weeks ago could be part of the problem, or the cupping from last week (his marks lasted all week!). She did talk about not having cold drinks with food, and how the ice cream is also cold and it is not good.....so I guess it must be part of the Chine
  23. Welcome! I can tell you that my son does not take the B complex either, but we tried it for a while. I can tell you that the amino acids worked the best to reduce tics for us. GABA, Acetyl L Carnitine, and NAC. We have used Magnesim Taurate for a long time too...Cardiovascular brand, and I think it did a lot. I started with a new Dr. one week ago. I stopped my supplements and went to hers....well no amino acids/greatly reduced magnesium intake and the tics are back. I hope you find a good all natural path! Most people here will tell you that no artificials/preservatives is als
  24. I just read another post from March that says it lowers the dopamine levels.....thanks for informing me, I will research it AND ask the Dr.
  25. Thanks for the input. I have already thought about taking them back.....there was a money back guarantee if he didn't like the taste of them! I have always given him supplements in vanilla ice cream (all natural) to cover the horrible flavor. Applesauce and yogurt didn't work. She told me that b/c it was cream/cold/oily he would absorb hardly any of the supplements......have you ever heard of this? Seems he must have absorbed them b/c he was not ticcing! Thanks
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