Dr. Murphy is gone. . .

[tnksmom]

We have been dealing with multi symptoms since about April of this year with our 11 y.o son. I have finally gotten our pediatrician to say that it is likely PANDAS due to the overnight onset, tics that get better with antibiotics (he just finished his 3rd course, which I asked for after reading these forums), separation anxiety (so unlike him) etc. Today our treating doctor called to say she must bow out, and defer to our primary pediatrician (whom I like quite well, but who isn't as agressive as the treating doc) for political reasons (office politics, which I understand). She has tried to email Dr. Murphy at Shands, but Dr. Murphy hasn't yet responded. Today I called Shands (our docs are trying to fax our records), only to find out that Dr. Murphy is no longer with them, but somewhere near Tampa. Prior to bowing out, our treating doc did say that a consult with an expert was warranted, and wrote that in a note to our primary, who agrees (thankfully). They both would like Dr. Murphy to see our son if possible, but we cannot find current contact information.

I am desperate to help our son, a feeling I know many of you understand. I am willing to go wherever we need to in the U.S. to get help for him. Can anybody give me current info? I am to the point where I can't hold back the tears anymore. . . I am just scared.

 

Thanks in advance

 

TnKsmom

[CSP]

tnksmom,

 

I don't have info on the Dr. but wanted to respond as I know so well that feeling of wanting to do anything to help our loved one.

 

I thought there was another good Dr. in MD. Would she be someone you would like to see? I can't think of her last name, but first name is Amy. Someone else have the last name?

 

I wish you all the best, and hope you get the help for your son you are looking for.

CP

[Chemar]

I just called Shands and they were very helpful in giving me a new contact number for Dr Tanya Murphy

 

she is now at the University of South Florida (Tampa-St Petersburg area) and the phone # is 1-727-767-8291

 

hope that helps

 

 

The PANDAS doc in Maryland is Dr Susan Swedo

 

not sure of one with Amy first name??

 

I know there was also a recent lot of posts about a group of Docs who specialize in PANDAS but not sure where that is now....will do a search later and edit it in here.

 

found it

it's a group in Chicago area

http://www.latitudes.org/forums/index.php?...0&hl=PANDAS

[CSP]

OOOPS!!!

 

Sorry, I think I was thinking maybe about an autism Dr.???

 

Thanks Chemar,

CP

[tnksmom]

Thank you so much CSP and Chemar! The lady at Shands who gave me the email address was so rude and unhelpful, I had to pry the email out of her and she told me that she had no other contact info. She offered an appointment with a Dr. Kim, but couldn't tell me if he has a special interest in PANDAS or not. Perhaps I just got the wrong person on the line.

 

I am very grateful for your help and am interested in any other leads that anyone can provide. Although we are in Wisconsin, I will travel wherever I need to-- I do have friends (in the medical field, which should be helpful) in Tampa, so I am very familiar with the area at least.

 

Thanks again-

 

TnKS mom

[Mustang Carole]

HI,

 

When you go to your pedi /family dr, take this article with you, written by Dr Murphy last year about PANDAS.

There are some other drs mentioned in same..maybe located closer to you..and also have knowledge about

PANDAS.

http://news.ufl.edu/2007/02/06/strep-tic/

 

Mustang Carole

[Chemar]

not sure if u saw I had edited in above on the Chicago area pediatric group that specialize in PANDAS, tnksmom

this is a thread where other members here also give feedback on them

http://www.latitudes.org/forums/index.php?...0&hl=PANDAS

 

thanks for that other great info too Mustang Carole