myrose Posted April 5, 2008 Report Share Posted April 5, 2008 Is this all natural or just another presrciption medicine like clonidine??? Thanks in advance I think I would like to look into this unless it is medication......never going there again...not after what I have learned.... Link to comment Share on other sites More sharing options...
P_Mom Posted April 5, 2008 Report Share Posted April 5, 2008 Tenex is a prescription medication mainly used to treat high blood pressure. Link to comment Share on other sites More sharing options...
Chemar Posted April 5, 2008 Report Share Posted April 5, 2008 like clonidine, it is a drug prescribed for high blood pressure but used by some for tics. generic name is guanfacine here is info on it http://www.medicinenet.com/guanfacine-oral/article.htm Link to comment Share on other sites More sharing options...
michele Posted April 5, 2008 Report Share Posted April 5, 2008 Dr. Murphy suggested Tennex for tics and impulsive behaviors . She said it works well at reducing tics and helping with behaviors. Our neurologist said Abilify works better then Tennex for some so we are trying it. We are doing better on it. It helps with emotional instability and reduces tics. He has not been tired at all but is only on 1 mg. a day. Michele Is this all natural or just another presrciption medicine like clonidine???Thanks in advance I think I would like to look into this unless it is medication......never going there again...not after what I have learned.... Link to comment Share on other sites More sharing options...
myrose Posted April 6, 2008 Author Report Share Posted April 6, 2008 Abilify????? I was told by our neurologist (when he was trying to PUSH medication) that this Abilify has a side effect of Jerking muscle movements. Be careful with this......PLEASE watch out for dehydration as well especially so in the little ones. When I put my daughter on Clonidine in the beginning when this all started (and before I knew NOTHING of medication) I took a tab to see how it made me feel. She was only taking 1/2 a tab so I took the whole tab. I felt like a zombie! It was terrible. I can't believe I let her feel like that just because of a few tics that actaully bothered ME more than her most times. Then the nightmares started for her (side effect) it was a rare one but YES it was one. I read up on the medicine and the one they wanted to switch her to. Lastly by the GRACE of GOD I found this PLACE! and educated myself on tics and medication. RUDE AWAKENING!!!!!!!!!!!! I will NEVER regret failing sometimes at doing the diet thing or not being able to figure what triggers her when it hits hard.... Alot of times I still cry and cry hard.....this is draining the emotions right out of me. BUT I will ALWAYS REGRET that day I put her on that medicine. thank you to all of you here who showed me a different path that I can feel good about. Link to comment Share on other sites More sharing options...
lurker Posted April 6, 2008 Report Share Posted April 6, 2008 My Rose, The "rare" side effect you mentioned made me wonder if the adverse reaction reporting for drugs is similar to VAERS (vaccine reaction). I'll bet its even worse. I would be willing to bet your neuro didn't report the reaction to the manufacturer or an agency, or inform you as to how it is done. In business and in politics they use "multiples" to determine constituent/customer dissatisfaction. If a congressman or corporation receives so many complaints, they know that there is a number they can multiply the amount of complaints by to get the real number of people who are similarly disgruntled but did not write. I imagine the multiple for side effects is really high and that no one really cares what it is. Link to comment Share on other sites More sharing options...
myrose Posted April 6, 2008 Author Report Share Posted April 6, 2008 I called the office when the nightmares began (she was waking up 2 or 3 times a night) wouldn't go to sleep unless I was holding her hand. It was awful! Anyhow when I called the office to inquire I talked to the nurse not the neurologist. She informed me then that it was a side effect of the clonidine. She said it was rare but happens. She did not instruct me to report anything to anyone. Should I have??? She was on the medicine for a few months or I think. Then it all happened out of the blue. Never again..... Link to comment Share on other sites More sharing options...
michele Posted April 6, 2008 Report Share Posted April 6, 2008 Yes I have read about that jerking side effect. That would be terrible. He has not had that thank God. Also some report restlessness. He does say he is thirsty more often now. Definately more hungry. He is eating so much better. So far so good. We are having no negative side effects. Bedtime used to be a battle. Now he goes off to slepp easily. He is happier and easier to get along with. I do have to admit I am nervous about upping the medicine. I was supposed to go to 2 mg after two weeks but have just remained at 1 because he seems so much better. Abilify????? I was told by our neurologist (when he was trying to PUSH medication) that this Abilify has a side effect ofJerking muscle movements. Be careful with this......PLEASE watch out for dehydration as well especially so in the little ones. When I put my daughter on Clonidine in the beginning when this all started (and before I knew NOTHING of medication) I took a tab to see how it made me feel. She was only taking 1/2 a tab so I took the whole tab. I felt like a zombie! It was terrible. I can't believe I let her feel like that just because of a few tics that actaully bothered ME more than her most times. Then the nightmares started for her (side effect) it was a rare one but YES it was one. I read up on the medicine and the one they wanted to switch her to. Lastly by the GRACE of GOD I found this PLACE! and educated myself on tics and medication. RUDE AWAKENING!!!!!!!!!!!! I will NEVER regret failing sometimes at doing the diet thing or not being able to figure what triggers her when it hits hard.... Alot of times I still cry and cry hard.....this is draining the emotions right out of me. BUT I will ALWAYS REGRET that day I put her on that medicine. thank you to all of you here who showed me a different path that I can feel good about. Link to comment Share on other sites More sharing options...
Chemar Posted April 6, 2008 Report Share Posted April 6, 2008 My Rose, The "rare" side effect you mentioned made me wonder if the adverse reaction reporting for drugs is similar to VAERS (vaccine reaction). I'll bet its even worse. I would be willing to bet your neuro didn't report the reaction to the manufacturer or an agency, or inform you as to how it is done. In business and in politics they use "multiples" to determine constituent/customer dissatisfaction. If a congressman or corporation receives so many complaints, they know that there is a number they can multiply the amount of complaints by to get the real number of people who are similarly disgruntled but did not write. I imagine the multiple for side effects is really high and that no one really cares what it is. my son's severe side effects to the drugs were not reported as far as I know. at the time I was way too freaked out to even consider that. all I could think of was saving his life (no melodrama in those words ) and when it was finally all over and we had our son back, I just moved forward with the diet, supplements and other treatments that have helped him In retrospect tho, I wish we had documented everything at the time and had known who to report it to most of the doc's discounted my pleas that what he was going thru was being caused by the drugs and not his TS/OCD and they just kept wanting to rx more drugs to take care of the new stuff being caused by the other drugs only the one psychiatrist listened and understood and agreed and helped me wean him off an excellent book that helped me see light on this Your Drug May Be Your Problem by Peter Breggin MD adding for Michele and all others who are on meds PLEASE know I fully respect your decisions and also absolutely recognize that for many people the meds work as they are supposed to and the side effects are minimal to none my purpose in always stressing the potential dangers is because of our personal experience. Had I been informed fully and advised correctly by the treating physicians, I would likely not have allowed my son to be on any of those psychiatric drugs Link to comment Share on other sites More sharing options...
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