Introduction...probably gonna be long...

[harpazo_hope]

I've been lurking a bit looking for ways to treat my son at home. I'm feeling really overwhelmed right now and just got over that depressing feeling of being alone in all of this.

 

Anyway... my son is 11. He's had some odd health problems from the time he was two. He had his fists lock up for 3 months and if you tried to open them they popped which caused obvious pain. The doctor said see if it goes away and sent me off. His legs did the same thing many times in his life. My younger son had similar leg problems, and a new doctor said it was probably strep in his knee joints. Now I'm seeing that strep is linked to tourette's? The son with TS was also on antibiotics for the most part of his first year of life.

 

When he was around 7 or 8 he started little nose and mouth tics that seemed normal to me but they progressed to the point that children made fun of him. Then the tics disappeared. A few years later he would have his heart race while sitting. It would pound so hard that I could see it through his shirt. I took him in and the doctor sent him for an EKG which turned out OK. So this would happen off and on for the next few years.

 

It has been the last 2 years that I knew it was probably TS. It started with his reading. When he would read, he'd tic to the point that it took twice to three times as long to finish. Then the horrible anxiety came along. He once asked me if I've ever felt afraid for no reason. He explained that he felt something was really wrong, but he didn't know what. How crazy that a little kid has aching joints and anxiety. Those things aren't supposed to go with childhood.

 

So, now I've ordered a ton of vitamins and minerals, etc. I am hoping something will help him. I think I might have gone overboard. When my son saw the bottles he had instant anxiety and ear piercing screeches. lol I really didn't know what to do, because I was on information overload. The things that went with his joint/muscle pain AND TS stood out to me.

 

I have been eating well most of the time for the last 8 years. If anyone has heard of the Weston A. Price Foundation... that's the kind of nutritional goals we set. www.westonaprice.org

 

I haven't had him tested for allergies yet. I really don't want to take him to the doctor. I'm so tired of being billed for reassuring words and I don't know's. But I am keeping an eye on foods and his behavior.

 

So now I'm here. I just needed to *blah* to someone who knows. No one understands that it breaks my heart to see him jerking his whole body like a seizure or swinging his head so hard it cracks and hurts him. They don't get that my little boy is lost in this body that is out of his control, and I am helpless to do anything. I just hope I did something right with my supplement purchases. *sigh*

 

A few questions. What is PANDA?

 

Has anyone heard about the supplement DIM and tourette's. Someone recommended it for my son, explaining that there's evidence TS is caused by pathogens, and the DIM is helpful for that.

 

My son says he does not know when he is ticcing, or if he is ticcing. Is this normal? I get the feeling he's embarrassed and not telling the truth about this, but who knows?

 

 

Sorry to ramble...

 

 

 

EDITED TO ADD:

My son also is super sensitive, both physically and emotionally. If you bump into him or pat him on the back too firmly he says ow. Everything hurts him. Any insights?

[Hope]

My son also is super sensitive, both physically and emotionally. If you bump into him or pat him on the back too firmly he says ow. Everything hurts him. Any insights?

 

 

My son (almost 9) is also hyper sensitive. Cries easily and complains about the littlest things.

 

I know how overwhelming this journey is right now. We are in the middle of it ourselves. I am still learning everything and taking baby steps toward healing.

 

Hang in there! (((HUGS)))

[patty]

Welcome harpozo,

 

Your son's hyper-sensitivities sounds like sensory issues. Doris Rapp wrote a couple of terrific books on the subject. It was very enlightening.

 

Pat

[CSP]

Welcome h.h.

 

I'm so glad you are here, as I too took a year to get over my fears and start talking to these wonderful people. It is so helpful, and can really brighten up your day. And just a comfort to know we are not alone.

 

I found the farm I get my raw milk from the weston a price foundation, and had baught some of the books they have listed. I did just got the Nourishing Traditions, and made the whey from the raw milk. I was able to make my first fermented vegatable. It worked and I don't have to learn how to can. So now I'm going to make my garden bigger and see what I can grow in my garden that will ferment well. If anything I have had fun learning this old way of preserving food.

 

I'm having a hard time with the whloe TS/PANDAS and just keep praying God will grant me the grace to understand and find ways to help my son.

 

Look forward to having you apart of this cyber family,

C.P.

[harpazo_hope]

Thank you so much for the warm welcomes.

 

So what is PANDAS? When I googled it, I get stuff that goes way over my head.

 

CSP... Enjoy the raw milk! We moved and I haven't been able to locate it yet. Actually, I was thinking it may be the switch from raw to pasteurized that aggravated my son's TS. That, and maybe the mold/mildew in our new home. Or the cell phone tower down the block. I would cut out the milk completely, but I don't want my kefir grains to die. Anyway... I love raw milk. I'm even considering milking my brother-in-law's cow. LOL

 

Your garden sounds wonderful! I can only imagine how good home grown vegetables would be fermented. I haven't tried fermenting much more than cabbage. It's fool proof.

 

Praying along with you!

 

Jasmin

[CSP]

Jasmin,

 

I baught the kifer grains too and made my first batch of homemade kifer. It took about 2 weeks to get it right. So your son was drinking raw milk as his first milk?

 

We have all really loved the milk too. I'm thinking of buying a cow in the future, and having my husband milk it

 

PANDAS is from strep and looks and acts a lot like TS.

 

C.P.

[harpazo_hope]

No... he never liked milk much, just like his mom. We started with the raw milk about 3 or 4 years ago, and both he and I craved the stuff. Then we moved and we both don't care for the store bought milk again, but we still drink kefir.

 

I wish I could get my husband to milk a cow. He milked one for most of his childhood, he'd do great! But he goes to work too early to do it. He'll have to teach the boys and me.

 

I got the PANDAS thing now. I thought if I just googled PANDAS I would get a lot of sites on the animal, so I didn't. I'm finding better info now. Thanks!

[jewels]

Hello hh,

 

Sending you a cyber hug from the UK. I'm a new member too, and have found this forum brimming with wonderful people.

 

You touched a nerve when you mentioned that your heart is breaking. I used to run to the bathroom to have a good cry, when I first saw my dd explode with painful tics. Now I give her lots of kisses and cuddles, and reading this forum has kept me positive that I will find the triggers, and improve her health.

 

Take one day at a time, keep those cuddles going,

 

 

Jules

 

Mummy to a beautiful little girl, whose smiles light up the world.