Help!

[NicksMom]

I am so overwhelmed with reading about all these different tests these kids have had. Can someone please help me to understand what tests I should be requesting my son's doctor to run. I'm lost when you talk about PANDAS? Igg? We have had him tested for environmental allergies as well as food. They found him to be very sensitive to wheat, dairy, eggs, and peanuts. I have tried reducing his intake of these foods...but he is a teenager. Please any and all advice would be greatly appreciated.

[P_Mom]

I am so overwhelmed with reading about all these different tests these kids have had. Can someone please help me to understand what tests I should be requesting my son's doctor to run. I'm lost when you talk about PANDAS? Igg? We have had him tested for environmental allergies as well as food. They found him to be very sensitive to wheat, dairy, eggs, and peanuts. I have tried reducing his intake of these foods...but he is a teenager. Please any and all advice would be greatly appreciated.

 

Hi Nicks Mom,

Just quick info. on PANDAS.. Stands for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep. This means your kids tics and or ocd come on suddenly and/or dramatically, and also dramatic increase in these behaviors occur after a strep infection. There can also de dramatic increases in this behavior after other illness or infections. Do you recall your son being ill before this recent increase? Just something to consider.

god Bless.

kelly

[faith]

Hi Nicks mom and welcome.

 

If you have had the environmental and food allergy testing, do you mean regular allergy testing? How was that done. The Igg is a blood test type thing that determines foods your child could have an intolerance to or a delayed type allergy. That is usually not done in standard allergist office, most of us have had that through some type of alternative doctor, like a naturopath or eniromental/integrative doctor.

 

You seem to be on the right track. May we get a better picture of your son's history and symptoms? You say he started at age 12? Could there have been anything else you may have not recognized as a tic at any earlier ages? When was his last vaccine of any type?

 

Thanks

Faith

[Chemar]

I bumped up a thread that has some important links in it

 

take a look for Claire's Testing 101

sorry so rushed

http://www.latitudes.org/forums/index.php?showtopic=2459

 

hope that helps

C

[Anna1970]

Hi Nicks Mom,

Just quick info. on PANDAS.. Stands for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep. This means your kids tics and or ocd come on suddenly and/or dramatically, and also dramatic increase in these behaviors occur after a strep infection. There can also de dramatic increases in this behavior after other illness or infections. Do you recall your son being ill before this recent increase? Just something to consider.

god Bless.

kelly

 

 

i am sorry to butt in a post but i just have a question... my son had Strep B Pneumonia whenhe was Born he was in the NICU for a week would that be why he has these Tic's?

i am just wondering b/c i read in the above post about PANDAS

do any of you think it could be a link??

Ann

[faith]

Ann,

How did your son get the strep B? Were you positive for the strep B when you were pregnant? This is a standard test given to the mother I believe. I ask because I was positive for that, and I have asked the board about this strep B before. I believe one or two other moms said they had that too, as I was wondering if this meant anything. I don't believe the strep A that is the association with Pandas is the same thing, but I thought it was worth mentioning. So it would be interesting if you were positive too. I think they do that so then they will know to treat the mother with antibiotic at birthing time so the baby does not contract the strep while coming through the birth canal (where the strep B is, I think). How did they treat your baby at the time?

 

Thanks

Faith

[Anna1970]

faith

 

I tested Neg but was Positive

my son was very sick he was on a ventulartor for about 4 days

i could not hold him for ONE WEEK

he had very strong meds

i have said something to my Doctor about this and he said that strep B was a baby sickness

so i dont know but i9 have been reading so much about Strep and was wondering if anyone knew if it was the same thing

Ann

[P_Mom]

faith

 

I tested Neg but was Positive

my son was very sick he was on a ventulartor for about 4 days

i could not hold him for ONE WEEK

he had very strong meds

i have said something to my Doctor about this and he said that strep B was a baby sickness

so i dont know but i9 have been reading so much about Strep and was wondering if anyone knew if it was the same thing

Ann

Ann,

No worries about butting in on a post, it was actually meant for you, I just got the names mixed up! Anyway, it is worth investigating, about the strep at birth, etc. Reactions come on stronger with each additional infection, so, that MAY be why you didn't notice anything before. With my son's first strep infection, he was almost 3, his reaction was so minimal, mild ocd symptoms, we didn't even worry about it, and it went totally away. Next strep, almost 5, whole different story!! Dramatic ocd/vocal tics. Do your sons symptoms get worse lately after illness, infection, or immunizations? Does he have separation anxiety, clinginess, nighttime fears or other odd behaviors (anger, moodiness, etc.) that goes along with his tics?

 

Kelly

[Anna1970]

faith

 

I tested Neg but was Positive

my son was very sick he was on a ventulartor for about 4 days

i could not hold him for ONE WEEK

he had very strong meds

i have said something to my Doctor about this and he said that strep B was a baby sickness

so i dont know but i9 have been reading so much about Strep and was wondering if anyone knew if it was the same thing

Ann

Ann,

No worries about butting in on a post, it was actually meant for you, I just got the names mixed up! Anyway, it is worth investigating, about the strep at birth, etc. Reactions come on stronger with each additional infection, so, that MAY be why you didn't notice anything before. With my son's first strep infection, he was almost 3, his reaction was so minimal, mild ocd symptoms, we didn't even worry about it, and it went totally away. Next strep, almost 5, whole different story!! Dramatic ocd/vocal tics. Do your sons symptoms get worse lately after illness, infection, or immunizations? Does he have separation anxiety, clinginess, nighttime fears or other odd behaviors (anger, moodiness, etc.) that goes along with his tics?

 

Kelly

well he was just sickl about 1 month ago with Bronical asthma and yes the tic's did come more!! he gets fevers all the time that will last a day or 2 and go aways when i bring him to the doctors there is no reason for the fever but he does not do a strep test on him either!last year when i really noticed the Tic's was when he had a fever bad and could not find any infection just after that was when i noticed the Tic's

as for (separation anxiety, clinginess, nighttime fears or other odd behaviors (anger, moodiness, etc.) that goes along with his tics?)

he just started school this year and he was fine with me leaving him with the teacher at the door but now he needs me to go into the school with him also he says to me when i pick him up where were you i was waiting for you! it is so sad but he is fine in a few mins!

Nighttime well he has and still does wake up all the time at the least 2 to as many as 6 times a night! he just needs to see me and i rub his back he will go back to sleep!

anger, moodiness well if he has been ticing alot he will get upset really easy and lash out at me him yell swear what ever he can do to get it out! i feel so bad for him when he is like this b/c it is like he has got to a point where he cant take no more! (he dont sit and cry or anything like that it is more a frustration thing)KWIM?

i must say the tic's did go away in the summer for a little bit well not totally but it didnt bother him as much!

Ann

[P_Mom]

faith

 

I tested Neg but was Positive

my son was very sick he was on a ventulartor for about 4 days

i could not hold him for ONE WEEK

he had very strong meds

i have said something to my Doctor about this and he said that strep B was a baby sickness

so i dont know but i9 have been reading so much about Strep and was wondering if anyone knew if it was the same thing

Ann

Ann,

No worries about butting in on a post, it was actually meant for you, I just got the names mixed up! Anyway, it is worth investigating, about the strep at birth, etc. Reactions come on stronger with each additional infection, so, that MAY be why you didn't notice anything before. With my son's first strep infection, he was almost 3, his reaction was so minimal, mild ocd symptoms, we didn't even worry about it, and it went totally away. Next strep, almost 5, whole different story!! Dramatic ocd/vocal tics. Do your sons symptoms get worse lately after illness, infection, or immunizations? Does he have separation anxiety, clinginess, nighttime fears or other odd behaviors (anger, moodiness, etc.) that goes along with his tics?

 

Kelly

well he was just sickl about 1 month ago with Bronical asthma and yes the tic's did come more!! he gets fevers all the time that will last a day or 2 and go aways when i bring him to the doctors there is no reason for the fever but he does not do a strep test on him either!last year when i really noticed the Tic's was when he had a fever bad and could not find any infection just after that was when i noticed the Tic's

as for (separation anxiety, clinginess, nighttime fears or other odd behaviors (anger, moodiness, etc.) that goes along with his tics?)

he just started school this year and he was fine with me leaving him with the teacher at the door but now he needs me to go into the school with him also he says to me when i pick him up where were you i was waiting for you! it is so sad but he is fine in a few mins!

Nighttime well he has and still does wake up all the time at the least 2 to as many as 6 times a night! he just needs to see me and i rub his back he will go back to sleep!

anger, moodiness well if he has been ticing alot he will get upset really easy and lash out at me him yell swear what ever he can do to get it out! i feel so bad for him when he is like this b/c it is like he has got to a point where he cant take no more! (he dont sit and cry or anything like that it is more a frustration thing)KWIM?

i must say the tic's did go away in the summer for a little bit well not totally but it didnt bother him as much!

Ann

 

 

Ann,

If I were you I would definitely look into the PANDAS/PITANDS possibility. Did he ever at all get tested for strep when he had the fevers? PANDAS kids can show minimal symptoms with strep (No sore throat) and still have it. Request swabs and better yet, throat cultures. You can even have a bolld test done to check his anti-body levels. It really sounds like PANDAS, but,I am not a doctor and I am just giving you some advice with my own experience. Do his symptoms improve when on an anti-biotic? They could actually still improve on an anti-biotic right now even without a current illness!

 

Kelly