motor tics, not quite 100% gone yet, lyme die-off and just lyme+?

[stacestar]

my ds (dx with lyme) is, I'd say about 95%+ symptom free, has been for months. If he complains of anything at all, for the past 4 months, it's just minor joint or foot pain (maybe 4-6x/mo.)

We're doing herbs. My last post was about ticcing that started when we increased the herb dose.

I do believe the ticcing in him was/is the result of toxins, too many at one time. We've been doing several things to detox; maybe could still do more.

 

The tics started with an increase in the herbs, but now...

…fast forward from Oct. 26th to now. Oct. 26th was the last day I gave him his herbs (we're using Beyond Balance) until yesterday. I gave him a 1/4 drop yesterday to start them back up, (and today he had a sniff tic back, although he does have a cold. (*Update is that today, Thursday, no sniff tic really).

 

***so from Oct. 26th to Dec. 8th, he didn't get his lyme herbs, but in all those weeks he never 100% stopped ticcing. There were several times, many days in those weeks, where the ticcing was almost gone, virtually just trace (99% gone), but not 100%; become more with an increase in probiotics or an addition one day of monolaurin, and sometimes with nothing new given.

 

at first I thought it was just lyme die-off, but with no lyme provoking/killing herbs for 6 weeks would he really still be herxing from lyme die off?

I wonder/suspect yeast contributing too.

maybe also the mold under sink was more than we thought, and the vinegar didn't get it all.

 

any thoughts or ideas, I appreciate! Thanks!

Edited December 12, 2014 by stacestar

[katgrein]

I am right there in fustration with the tics. Son has improved so much but the tics are stubborn. When we go off the herbs things die down and have ceased. But we are treating with artemisinin and cant afford to stop right now. I was going to try zeolites-av and see if that may help. But the bart is relentless with neck and face twitching... Kathy

[rowingmom]

I would say that if you are not seeing any pain/psych symptoms indicating lyme/bartonella/babesia, that you may be dealing with yeast/mold/emfs.

 

But then again, DD's motor ticcing began years before her pain symptoms. For us it was bartonella die-off toxins that caused most of her ticcing issues, especially the complex motor tics.

 

Die-off can be produced by the immune system, which is what produces many of the presenting symptoms in the first place, and is not necessarily dependent on antimicrobial treatment.

 

Symptoms will re-emerge pretty quickly if the proper infection hasn't been addressed.

Edited December 13, 2014 by rowingmom

[katgrein]

I totally agree with bart die off causing most of the ticcing. The strangest thing i have witnessed is when my son had bart psych issues the tics stopped. I always prefer the ticcing at this point. I think the artemisinin gets to bartonella as well as babs.

[stacestar]

thanks katgrein and rowingmom for the replies!

 

it's all so complex isn't it. I mean, I'm learning more and more it can often be a combination, but maybe with one thing that is more problematic at one certain time, if that makes sense.

 

I remember something you said once rowingmom, something about that the reason you think your dd is doing so well may be b/c of everything you're giving her, really covering all bases, every angle, and that the darn stuff therefore has no where to hide too.

 

I'm learning that first hand. At the beginning of this lyme stuff, last winter and even into spring, I was wishful thinking and naive, that my son would be the one with no co-infections, and who didn't have "layers" to an onion to peel off. Well, not so, apparently.

 

Again, he's doing well overall, so I won't get discouraged, I'll just keep on trying and moving forward.

 

We have our llmd appt. right after the holidays and I'll talk in depth with her then, (or email her sooner if need be) about yeast (maybe use an anti-fungal?), mold, emf and bartonella ideas. These are things I've been thinking about too. Bart. is something that she's wondered if my son has, but we haven't addressed as much.

 

He did have some foot pain two days last week and some leg pain (don't know if it was shin or bone exactly), and I know these can be on the bart. list, so we'll probably eventually try some bartonella herbs.

 

Targeting yeast, mold even harder, and emf for the first time, is what I"ll do in the meantime.

 

thanks!

[rowingmom]

You will need to look at MTHFR issues as well. I really don't think our kids need to test positive for any of these mutations to suffer the ill effects of improper methylation and therefore detox issues.

 

If your son in is struggling with infections, his methylation pathways, detox ability and mitochondrial function (energy production) will be impacted.

 

"At the beginning of this lyme stuff, last winter and even into spring, I was wishful thinking and naive, that my son would be the one with no co-infections, and who didn't have "layers" to an onion to peel off".

 

I am pretty sure that every one of the parents here who have come, either earlier or later, to the conclusion that lyme/coinfections are involved in their children's physical and neurological problems, have wished this in their hearts as well. I did. But when you see that the present treatment isn't providing the healing you want, when you don't think you are seeing your child's real potential, you simply keep searching. As a parent you have to. And you will.

Edited December 13, 2014 by rowingmom