Tics among siblings

[CFinEP]

Hello everyone. It's been a while since I have been here. It's been almost two years since my son was thought to have had an episode of PANDAS. We still have incidents where my son goes about a week with various tics but in the two years he has only had two incidents where his tics and strep were linked. My son is now 5, this all started at just under age 3. Anyhow my middle son is about 3 and a 1/2 and he seems to have a blinking tic much how my 5 yr old started. Anyone else have multiple children that all seem to have exhibited the same pattern of tics? I have a third son; he will be 2 in June. I now fear he too may one day tic. Does anyone have any suggestions for me as far as getting my children evaluated as a group? A co-worker of mine suggested seeing a geneticist. I also don't know if I should have my middle son tested for anything. Other than the strep my oldest had he has never been diagnosed with anything else despite have seen various types of doctors.

[kim]

CFinEP,

 

I never had a clue my oldest son had a tic until 7 or 8, it's hard to remember. I do remember the first time he did it, he shook his head from side to side much like a wet dog would. I kind of laughed and said "what was that?" But...he was driving his kindergarden teacher crazy humming in class. That was probably a tic, but I had no idea.

 

He also had sleeping issues, and some things that I thought were just personality traits, from the time he was a toddler. He never had the blinking or twitcy around the eyes stuff.

 

My younger son, like you mentioned, I could tell around 3 because of the movement around his eys (when he sat to watch tv was when I really noticed it) he has had the eye rolls, blinking, shoulder shrugging and very brief periods of the bigger tics, such as head shaking. He is now 10 1/2. I would say their tics have been very different.

 

As far as testing, I'm really interested in Dr. Amy Yasko's work. Anyone, that is exploring answers for syndromes that seem to be expoding, has my attention. I'm especially interested for my boys, kids. Right now, everything here is pretty stable, but we all know that tomorrow may be different.

 

Here are some links to her site.

 

http://www.ch3nutrigenomics.com/phpBB2/welcome.html

 

Genetic testing/available now at www.holisticheal.com

 

There are 3 Dr.s posted on this forum, one is in Calif, that are supposed to be very good with her protocol.

 

I'll try to find them, in case one is near you.

 

Might be something to explore?

[Chemar]

hi CFinEP

 

it may be worth doing PANDAS testing to see whether all the children have high strep antibody titres.....when you say your sone has only had twi incidents when tics and strep were linked...was this strep throat or strep antibodies?