qannie47 Posted February 7, 2014 Report Share Posted February 7, 2014 (edited) My son just received an AE dx from a peer review neurologist that our insurance company sent out to determine coverage. He said it was based on my clinical observations as a parent and the 2 O Bands they found in his spinal fluid and not blood serum. I don't think this is the proper dx. I think it was the only one he could give because Pandas is not officially on the books yet...In his letter, he wrote that my son had some very concerning symptoms. I as well though feel that the two dx's are closely linked. p.s. We received reimbursement for past IVIG and approval for monthly IVIG if we wanted them. Edited February 7, 2014 by qannie47 Link to comment Share on other sites More sharing options...
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