trintiybella Posted July 16, 2013 Report Share Posted July 16, 2013 Dr. T. said lower vitamin D, and he was right. It was wayyyyyy to strong for her. She was on 10000 ui, I now have her down to 4000 ui. It has been crazy over her!!!! She was buzzed and WIDE awake for many many many days. Thank God she slept by 2am last night. Late, but at least not up for 72 hours. Thanks so much everyone. Link to comment Share on other sites More sharing options...
JuliaFaith Posted July 17, 2013 Report Share Posted July 17, 2013 So glad to hear you found something that helps right now! Link to comment Share on other sites More sharing options...
Guest Posted July 17, 2013 Report Share Posted July 17, 2013 Yea that's too high. I accidentally took that amount for a few days and I was wired and anxious and couldn't sleep. 4,000 seems to be my limit. 2,000 may even be better while still therapeutic. Link to comment Share on other sites More sharing options...
trintiybella Posted July 19, 2013 Author Report Share Posted July 19, 2013 Good suggestion. Thanks! Link to comment Share on other sites More sharing options...
philamom Posted July 19, 2013 Report Share Posted July 19, 2013 I cannot get my dd on vitamin d. She becomes extremely oppositional and grumpy. Also cries a lot on it. This is at 400 iu. Her llmd wants her at 4000 iu daily. This seems more than a herx because it does not diminish. I've tried 3 separate times and different brands. Her level is 24. Llmd says it needs to be higher for treatment to work. Time in the sun does not budge it. We've been monitoring it for 2 yrs. Smarty- did you ever get your son past 200 iu? I recall you had problems as well. LLM- do u have a possible explanation? Would the 23 test give a suggestion? Link to comment Share on other sites More sharing options...
lfran Posted July 19, 2013 Report Share Posted July 19, 2013 Vitamin d always makes my son worse with tics and compulsions Link to comment Share on other sites More sharing options...
trintiybella Posted July 19, 2013 Author Report Share Posted July 19, 2013 Very interesting. I am concerned about such low levels "11" but it certainly makes her insomnia much worse. It is not herxing cause it never goes away. I have stuck with it for a long time. Link to comment Share on other sites More sharing options...
philamom Posted July 19, 2013 Report Share Posted July 19, 2013 Trinitybella- my dd is no where as severe as ur daughter but on the bit d she becomes a mess. Can't go to school, has constant issues with her friends, wakes up yelling at the world. All behavioral Her dr could offer no explanation other than to try a different brand. I know its not the case. That's why I love this forum - know im not alone and crazy. We have done a lot of treatment and to see her backslide on vit d is very hard. Ifran- so I take it ur not supplementing? Is his level low? Anyone else children can't take it? Link to comment Share on other sites More sharing options...
philamom Posted July 19, 2013 Report Share Posted July 19, 2013 Sorry for typos. On iPhone Link to comment Share on other sites More sharing options...
Guest Posted July 19, 2013 Report Share Posted July 19, 2013 I did fine on a certain brand which I'll find out and post here later. But when I switched brands and didn't know it was 10,000 IU I felt good for about 2 days, then severe anxiety, then insomnia. Just switching brands can have a huge impact I've found at least with myself. The brand I'm thinking of they have it for babies as well, that one has been the best for me. Okay just googled it's called "carlson" and I get the drops. I have heard from several physicians that the drops are better absorbed (put them on the tongue). Link to comment Share on other sites More sharing options...
philamom Posted July 19, 2013 Report Share Posted July 19, 2013 Carson's was one of the brands I tried. I see bad behavior by the next day on every brand. No good days. Link to comment Share on other sites More sharing options...
JuliaFaith Posted July 20, 2013 Report Share Posted July 20, 2013 At the begin. of treatment my ds took mk-7 along with vitamin D3 to help with absorbtion. He has been taking 'AllergyResearchGroup' vit. D3 complete that also has vit. A and k2 in it as well. He no longer needs to take the MK-7 anymore. They are 2000 IU each. Not sure if they can be ordered on line. Will check. We are all on these right now to get levels up. Link to comment Share on other sites More sharing options...
lfran Posted July 20, 2013 Report Share Posted July 20, 2013 Yes, DS is sort of low -- hovers around 22 for the past few years. I have tried multiple forms and multiple brands (D2. D3, dry, etc) and I've just given up for now. Try for sunshine, but that's not really his thing either. It's not at the top of the list. Trinitybella- my dd is no where as severe as ur daughter but on the bit d she becomes a mess. Can't go to school, has constant issues with her friends, wakes up yelling at the world. All behavioral Her dr could offer no explanation other than to try a different brand. I know its not the case. That's why I love this forum - know im not alone and crazy. We have done a lot of treatment and to see her backslide on vit d is very hard.Ifran- so I take it ur not supplementing? Is his level low?Anyone else children can't take it? Link to comment Share on other sites More sharing options...
Kayanne Posted July 20, 2013 Report Share Posted July 20, 2013 (edited) There is some information that vitamin D needs to be balanced by vitamins A and K: http://blog.cholesterol-and-health.com/2009/04/tufts-university-confirms-that-vitamin.html I also came across this, but didn't read it yet: New Evidence of Synergy Between Vitamins A and D: Protection Against Autoimmune Diseases: http://www.westonaprice.org/blogs/cmasterjohn/2012/01/22/new-evidence-of-synergy-between-vitamins-a-and-d-protection-against-autoimmune-diseases/ Edited July 20, 2013 by Kayanne Link to comment Share on other sites More sharing options...
philamom Posted July 23, 2013 Report Share Posted July 23, 2013 Thanks smarty - I read your response in yourr post. We stopped it again. Dd shows symptoms immediately at 400iu. We r headed south to Rothman and need her at her best. I cannot get my dd on vitamin d. She becomes extremely oppositional and grumpy. Also cries a lot on it. This is at 400 iu. Her llmd wants her at 4000 iu daily. This seems more than a herx because it does not diminish. I've tried 3 separate times and different brands. Her level is 24. Llmd says it needs to be higher for treatment to work. Time in the sun does not budge it. We've been monitoring it for 2 yrs.Smarty- did you ever get your son past 200 iu? I recall you had problems as well.LLM- do u have a possible explanation? Would the 23 test give a suggestion? Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now