MamaOnAMission Posted February 28, 2013 Report Share Posted February 28, 2013 Does anyone have high Cam Kinase and think its due to lyme and tic born illnesses? Link to comment Share on other sites More sharing options...
tpotter Posted February 28, 2013 Report Share Posted February 28, 2013 Does anyone have high Cam Kinase and think its due to lyme and tic born illnesses? Yes. Dr. Cunningham said that it could. BTW...anyone know how release of the Cunningham test is coming along? Link to comment Share on other sites More sharing options...
MichaelTampa Posted February 28, 2013 Report Share Posted February 28, 2013 Mine was high and so now I believe it was from lyme, as clearly I had lyme (and maybe still do). Is it still the case that you can no longer get the test? Link to comment Share on other sites More sharing options...
MamaOnAMission Posted February 28, 2013 Author Report Share Posted February 28, 2013 what were your numbers on the cam kinase? thanks! Link to comment Share on other sites More sharing options...
Bill Posted March 1, 2013 Report Share Posted March 1, 2013 Does anyone have high Cam Kinase and think its due to lyme and tic born illnesses? My son's Cam Kinase score was 126. High but not too high; not nearly as high as Dr. L. was expecting based on symptoms (initially thought to be "just" Pandas). After receiving the lyme diagnosis, I e-mailed Dr. C. with the update. She replied "His CaM score is so low that I suspect that the disease manifestations were primarily due to the infection alone and not as much to autoimmune responses..." Professional courtesy caveats - her reply was simply a professional opinion at the time and not (nor was it meant to be) a diagnosis of any type. That was two years ago so I do not know how the last two years of research might change her response. Link to comment Share on other sites More sharing options...
MichaelTampa Posted March 1, 2013 Report Share Posted March 1, 2013 Mine was 186. Link to comment Share on other sites More sharing options...
Suzan Posted March 2, 2013 Report Share Posted March 2, 2013 One dd was 118 (thought to be lowered due to her high taurine intake at the time) and the other was around 175 (can't remember exact number). Both had PANDAS symptoms and have been diagnosed with lyme. Both still react to strep but oldest dd with the highest cam k reacts the strongest and gets strep all the time still. Susan Link to comment Share on other sites More sharing options...
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