Free culture from Advanced Lab as part of a study

[Hopeny]

Posting this as this test is pretty pricey, down side is you need to be abx/anti microbial free for 4 weeks prior

http://lymedisease.org/news/touchedbylyme/lyme-test-research.html

[tpotter]

Posting this as this test is pretty pricey, down side is you need to be abx/anti microbial free for 4 weeks prior

http://lymedisease.org/news/touchedbylyme/lyme-test-research.html

 

 

Thanks for posting this. I just forwarded it to DH, who is CDC positive for Lyme, but had to stop tx early, because of mitral valve surgery in 2011. He doesn't believe he really has lyme, although he is diagnosed with RA, has all the symptoms, and as I said, was CDC positive. His doctors actually want us to prove that it's lyme, so this could be very good for him to get. He's not on abx, because he can't do that kind of tx.

[Hopeny]

I think most people with Lyme are in abx so they have trouble getting enough subjects for their study. If it works out please post results. Hope the other problems are resolved I'm glad it was useful, I wish we could do but it's hard to imagine four weeks off abx

[philamom]

Posting this as this test is pretty pricey, down side is you need to be abx/anti microbial free for 4 weeks prior

http://lymedisease.org/news/touchedbylyme/lyme-test-research.html

 

 

Thanks for posting this. I just forwarded it to DH, who is CDC positive for Lyme, but had to stop tx early, because of mitral valve surgery in 2011. He doesn't believe he really has lyme, although he is diagnosed with RA, has all the symptoms, and as I said, was CDC positive. His doctors actually want us to prove that it's lyme, so this could be very good for him to get. He's not on abx, because he can't do that kind of tx.

tpotter- the Dr. M that we see can order this for him. He is familiar with the test- I had him order it for dd last year (which she was positive). I think he may have some sample boxes in his office.

[tpotter]

Posting this as this test is pretty pricey, down side is you need to be abx/anti microbial free for 4 weeks prior

http://lymedisease.org/news/touchedbylyme/lyme-test-research.html

 

 

Thanks for posting this. I just forwarded it to DH, who is CDC positive for Lyme, but had to stop tx early, because of mitral valve surgery in 2011. He doesn't believe he really has lyme, although he is diagnosed with RA, has all the symptoms, and as I said, was CDC positive. His doctors actually want us to prove that it's lyme, so this could be very good for him to get. He's not on abx, because he can't do that kind of tx.

tpotter- the Dr. M that we see can order this for him. He is familiar with the test- I had him order it for dd last year (which she was positive). I think he may have some sample boxes in his office.

 

 

Thanks. That's the plan if his PCP won't do it. But, I have suspicion that his PCP will order it. That's one less doc for him to have to followup with. Dr. M. also ordered the test for my older son last year, when I gave him the info. DS tested negative (that's a good thing...I actually think it's accurate in this case.) I just reminded DS to call his PCP on monday to ask him to call. The other reason to get the PCP to do it, is that none of them believe that he really has lyme, even though he was cdc positive on the Quest WB, he is dx with RA, & which doesn't respond to meds. If this test comes back positive, the may just believe! Unfortunately, it's still going to be a little difficult to figure out the proper tx, because he's on coumadin, and that changes everything (can't pulse abx, for instance, because it affects his coumadin levels!)

[mama2alex]

My doctor is submitting me for this study. His office said we have to tell Advanced Labs when I was last on abx and what I took. I assume my doc will also give them a summary of my history. They said Advanced Labs is going to pick only 20 patients for the study, so its competitive to get the free test!