EmilyK Posted December 11, 2012 Report Share Posted December 11, 2012 So DS is on the Augmentin/Azythromycin combo with good results for OCD and anxiety and appetite, but I don't see much improvement in attention, processing speed, math. Is there anything to do to help that along more quickly? Been on Augmentin since early Sept with one week break in Nov and on Azythromycin since Oct. He also takes, D, melatonin, omega 3's, probiotics, etc. Link to comment Share on other sites More sharing options...
smartyjones Posted December 11, 2012 Report Share Posted December 11, 2012 we've seen improvement in attention for both boys, ds8- diagnosed pandas, ds-10 - not 'diagnosed', but has pans - with zinc supplementation. at first, we did ds10 with zicam melts. now both take supp caps. Link to comment Share on other sites More sharing options...
LNN Posted December 11, 2012 Report Share Posted December 11, 2012 I second Smarty's experience. My son has pyroluria (aka KPU). Once we started treating this with a supplement called CORE, that has a high amount of B6 (the P-5-P form of B6) and zinc, it was like someone turned on the light switch. He still struggles with brain fog during flares, but the a much lesser degree. I also just ordered PS-100 (100mg of phosphitidyl serine) that is reported to help with attention and memory. Link to comment Share on other sites More sharing options...
rowingmom Posted December 11, 2012 Report Share Posted December 11, 2012 LLM - you had mentioned trying Neuroprotek. Did that help in any way. We have been using Lutimax, and DD11 is showing perhaps a little improvement from it, although I should probably use it twice a day. Link to comment Share on other sites More sharing options...
LNN Posted December 11, 2012 Report Share Posted December 11, 2012 LLM - you had mentioned trying Neuroprotek. Did that help in any way. We have been using Lutimax, and DD11 is showing perhaps a little improvement from it, although I should probably use it twice a day. The neuroprotek was for my daughter - who doesn't have attention/processing issues. I got the neuroprotek for her b/c I had freaked myself out over a genetic mutation Greeks can have (DD is 50% Greek from DH side) that causes anemia if you consume fava beans (which is what most Quercetin is made from). DD was taking quercetin daily. Turns out this wasn't her issue. Fatigue continued with or w/o quercetin or the neuroprotek. It may be related to B-12 but still experimenting. My son is the one with the attention/processing problems. I considered Lutimax but never pulled the trigger. I just ordered PS-100 yesterday after months of hemming and hawing. Will let you know if I see any improvement worth opening your wallet for. Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted December 11, 2012 Report Share Posted December 11, 2012 I will "third" the vote for zinc. It has definitely helped my DS. We, too, started with the Zicam melts but now use a product called Opt-Zinc by SolaRay which is supposed to be a maximally bio-available form of zinc. Highly recommend it! Link to comment Share on other sites More sharing options...
EmilyK Posted December 12, 2012 Author Report Share Posted December 12, 2012 Well zinc is easy enough to try! Thanks. Was weight are your kids and how much do you give? My son is 48 lbs. The USDA guidelines say about 5 mg but I wonder if that is low-balled just like most other vitamin recommendations that they give? Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted December 12, 2012 Report Share Posted December 12, 2012 Well zinc is easy enough to try! Thanks. Was weight are your kids and how much do you give? My son is 48 lbs. The USDA guidelines say about 5 mg but I wonder if that is low-balled just like most other vitamin recommendations that they give? My son is considerably larger than yours (15 yo, 155 lbs.), but for comparison's sake . . . he's getting 30 mg. twice daily (morning and night), for a total of 60 mg. Link to comment Share on other sites More sharing options...
trggirl Posted December 12, 2012 Report Share Posted December 12, 2012 LLM, we are taking the PS 100mg now. I feel like it has been a good thing so far. My daughter's mind was constantly moving and PS has allowed her to slow down a bit with her thoughts. We still need the Amantadine for the focus and follow-through. I will be curious to hear how it works for your son! Link to comment Share on other sites More sharing options...
LNN Posted December 12, 2012 Report Share Posted December 12, 2012 Well zinc is easy enough to try! Thanks. Was weight are your kids and how much do you give? My son is 48 lbs. The USDA guidelines say about 5 mg but I wonder if that is low-balled just like most other vitamin recommendations that they give? My son (85 lbs) takes 40 mg elemental zinc - but he has pyroluria - a condition that causes him to pee away a lot of zinc before his body has a chance to use it. So we over-supplement to compensate. Not sure how 40mg elemental zinc compare to "regular" zinc? Not exactly sure how "elemental" changes things. Trg girl - if it's a success, I'm sure I'll be posting about it! Link to comment Share on other sites More sharing options...
Fixit Posted December 12, 2012 Report Share Posted December 12, 2012 Just to chime in what i know as this is some of the stuff i have been investigating. Ds5 seems to be having some add issuses, along with ds12 allergy etc, and dh issues. we are using zinc picolate, it is already chelated. zinc depletes manganese, zinc and b6 deplete copper, zinc works better with magnesium(we use mag taurate) this balanceing act is tinuous. i think i found a dr who will help me keep these in balance as i go forward. i can investigate, realize the effect/ but need to realize secondary effect ...get that down and it trickles into something else. the wonderful thing about this guy is that he believes in chronic infection and thinks that ds12 is infected with stuff that he is not even tested for based on the fact of the number of things that do show up. he feels like once the body is functioning properly and in balance, that he will start purging these infections on his own. he hopes to get ds off of his thyroid meds, allergy shots, abxs.... FROM HIS MOUTH TO GOD'S EARS!!!!!!!! i had ps100 here for around a year but never started anyone on it, DH just started and really likes it..he is also my guinea pig for "active child" which dh seems to like. i am giving ds5 a 1/2 a chewable...at first i thought it may have helped..but maybe he needs the whole thing. also, it has only been about a week, 10 days and may need more time to absorb...i feel like less is always better....it has DMAE Link to comment Share on other sites More sharing options...
SurfMom Posted December 12, 2012 Report Share Posted December 12, 2012 (edited) DD15 is doing Honors Geometry very accurately but at the speed of a solid since her exacerbations kicked in. She seems to do better after she has exercised (running, cycling, surfing) or just being outside for a few minutes. I have her work in cool air, sitting up and taking frequent breaks. Reading aloud to me as she progresses and talking about the logic of her steps to keep her stimulated too. Edited December 12, 2012 by SurfMom Link to comment Share on other sites More sharing options...
trggirl Posted December 12, 2012 Report Share Posted December 12, 2012 Fixit, What does your husband say about PS? Does it calm him? Help him focus? Be watchful of the combination products. We used one that had DMAE, PS, and a few other things and while it did help with focus, it also increased her tics. We never did figure out what it was in that particular product that increased the tics. Link to comment Share on other sites More sharing options...
Fixit Posted December 12, 2012 Report Share Posted December 12, 2012 Fixit, What does your husband say about PS? Does it calm him? Help him focus? Be watchful of the combination products. We used one that had DMAE, PS, and a few other things and while it did help with focus, it also increased her tics. We never did figure out what it was in that particular product that increased the tics. Besides increase in tics, did it increase hyperness or stimulatory issues, or just the tics? dh does have tics as well. he is also in a better place than a couple yrs ago when he was getting continual strep infections. He has finally gotten on board to be more active in treating his massive yeast issue. so the tics, if i haven't lost my mind..seem slightly better. i have always felt he could use something for add/adhd, but i would never want him to go on rx's for fear of increasing tics and other side effects. he says he can't quite articulate it...but a little bit less distracted and slightly sharper(maybe because he's less distracted?) he is out of town, but i will ask if he can expand on it. He takes 1 100mg pill in the a.m. He is 6' and 195ish. I will keep an eye out for an increase in tics and tell him to do the same. i will definitly keep an eye out for ds5. He has been in pandas remission for about 2yrs. I find things that affect my kids during flares, do not affect them when they are not in an episode. I only have him on 1/2 a wafer and it is a combo product. But i also wonder if the teacher is too pickey. i don't know if she has any children herself. She even says he gets the material. He is the youngest in the class, and a boy,..... who,...has 2 older brothers to teach the young grass hoppper their clown like behaviors! Link to comment Share on other sites More sharing options...
EmilyK Posted December 13, 2012 Author Report Share Posted December 13, 2012 Fixit, What does your husband say about PS? Does it calm him? Help him focus? Be watchful of the combination products. We used one that had DMAE, PS, and a few other things and while it did help with focus, it also increased her tics. We never did figure out what it was in that particular product that increased the tics. Good reminder on the combo products - hard to sort out what causes what! Link to comment Share on other sites More sharing options...
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