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BCH's gag order seems to be working from their point of view. Posts on their Facebook page have slowed to a trickle now that we are no longer getting updates from Beth and the family.

 

Could I encourage everyone to continuing posting to their page? The initial heavy stream was very effective in getting BCH to make not one, but two posts about how much they care about every child, even those with PANDAS/PANS. Hate for them to think the heat is off so they can now rest on their gag laurels.

 

Posts using names are taken down, but you can refer to the girl and her family etc. Comments are mainly coming through the "Post" section in the top left hand or the "Recommendations" section.

 

This is from a person who'd never been on FB before....am impressed that public outrage through FB postings got them to make even one public statement.

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Trying to think of what would get the most attention. Since Halloween is right around the corner, black and white striped shirts and ankle ball and chains would really be dramatic symbolizing that Elizabeth is a prisoner. Also if we could get the specific names of the doctors and social workers involved, for them to see their names on signs on TV might encourage them to back off. It has to hit them personally, not just BCH as a whole. I know if I saw my name personally,I'd be really upset as it would not be as easy to hide under the protective cover of BCH. also the parents should lodge a complaint with the state naming each person alone (not a complaint against 5 people in one complaint) They are not going to be so all fired powerful feeling knowing their reputation can be damaged from this.

 

Nancy

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Someone on Free EW posted the first news story on the situation--from an Italian online newspaper. From what I can make of the online transalation, some Italian senators have asked the US ambassoder in Italy to intervene on behalf of the family.

 

http://www.strill.it/index.php?option=com_content&view=article&id=143449%3Acalabria-senatori-pdl--gravissima-vicenda-di-e-w-a-boston-pandas-e-pitand-malattie-non-curate-nel-mondo&catid=1%3Aultime&Itemid=291&fb_action_ids=4629257606279&fb_action_types=og.recommends&fb_source=aggregation&fb_aggregation_id=288381481237582

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Someone on Free EW posted the first news story on the situation--from an Italian online newspaper. From what I can make of the online transalation, some Italian senators have asked the US ambassoder in Italy to intervene on behalf of the family.

 

http://www.strill.it/index.php?option=com_content&view=article&id=143449%3Acalabria-senatori-pdl--gravissima-vicenda-di-e-w-a-boston-pandas-e-pitand-malattie-non-curate-nel-mondo&catid=1%3Aultime&Itemid=291&fb_action_ids=4629257606279&fb_action_types=og.recommends&fb_source=aggregation&fb_aggregation_id=288381481237582

 

How do you get an online translation (my computer ignorance is showing)?

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Ok... I don't mean to be paranoid... but is the Facebook Page "Free E-------- W---" gone? I tried to look at it and it says it is not available.

 

I think there was a facebook error - I got a facebook post asking me to re-like it b/c they needed at least 25 likes to regain their seperate URL. Should be working again now.

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I got the translation by highlighting the entire piece and right clicking. There I got an option for a Bing translation. Another Italian online newspaper has written s tory--information on posts to Free EW FB, but I couldn't get the translation feature to work on that one.

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I e-mailed this state senator (not mine nor EW's), heartfelt plea blah blah, dunno if it will do anything but he's a high up honcho with an interest and if he got loads of mails..

 

http://www.pandasresourcenetwork.org/2012/05/23/crisco-wins-senate-vote-for-study-of-p-a-n-d-a-s-syndrome/

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I got the translation by highlighting the entire piece and right clicking. There I got an option for a Bing translation. Another Italian online newspaper has written s tory--information on posts to Free EW FB, but I couldn't get the translation feature to work on that one.

 

is there anyway you can copy and paste the translation on here? ;)

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