cdnmom Posted September 7, 2012 Report Share Posted September 7, 2012 Hi all, had phone consult with Dr. T. (NJ) to go over ds8 bloodwork results. My 3 children plus myself tested positive for Myco P. which Dr. T. is treating with abx. Ds also got a PANS diagnosis (after 6 months of trying to figure out what was going on). What is throwing me off though is that ds tested positive on 3 Lyme bands on the Western Blot(P23, P41, and P58). Dr. T. is not concerned about this but I am worried. I have a suspicion that I have Lyme, because I have been feeling horrible for over 2 decades now (extreme fatigue, chronic diarrhea for 8 yrs, chronic headaches, hair falling out) for which I've had numerous tests done, but no answers. I have never been tested for Lyme. I understand that band 23 is Lyme specific but I'm not sure why you need to test positive on 5 bands in order to get a Lyme diagnosis. If he's tested positive for 1 band that is Lyme specific, does that not mean he is in infected? I don't feel comfortable just letting this slide so I am looking for anyone who has a good LLMD for children who also understands PANS in the Buffalo area (we're from Canada). Or anyone who may do phone consultations would also work. Thanks Link to comment Share on other sites More sharing options...
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