So glad I've found this site!

[LisaH]

HI! I'm so excited to find this site. I have a 9yo dd with TS and other behavioral issues. We haven't had her "officially" diagnosed but our reg. dr agrees with us on it. She's had vocal and motor tics for about 3yrs but we've only known about TS for about a year now. We just always thought she was a little strange.LOL Wed get on to her about things she was doing or saying and she'd say I can't its a habit. I feel horrible now knowing she really couldn't stop.

 

We did have her evaluated by a psy. and they said she has ODD and intermittent explosive disorder and we tried meds but they made her gain weight and act worse and he just kept wanting to try more drugs, so we stopped it and started her on a sugar free/whole foods diet and she was a different child. Thats when we noticed the tics though, she may have had them all along but we were only focused on behavior and didn't know what we were looking for.

 

Anyway, her vocal tics have gotten really bad lately so I've been desperately looking for ways to help her naturally and stumbled upon this site. I've found so many things I've suspected with her mentioned over and over here, heavy metals (we have a family history of problems with this), allergies (it gets worse at certain times of the year), the dairy/wheat, and tv watching (she tics worse while watching tv).

 

Thank You, Thank You, Thank You!! We don't have insurance and can't really afford testing at this time but you've given me some things to start with and more things to research and try. For once I feel like there is hope that we can help her without the side effects of the drugs.

 

Lisa

[Chemar]

A big welcome to you Lisa

We are glad you found us too!

 

Just ask away about anything that you may have questions or concerns on...we have a great support group here of really helpful people who willingly share their experiences and knowledge.

[Giselle]

Hi Lisa, welcome! I'm happy you are here. We see the tics as warning alarms saying something not good is going on - when we have all things balanced my son's tics go away. Right now he's really fighting allergies to the fires close by (California) so is ticcing quite a bit - when his allergy goes down his tics stop. You have come to the right place and already seem to have quite a handle on what effects your daughter - bravo! Ask lots, read lots and good luck. And actually some of the tests hardly cost anything and are very much worth it so hopefully you can get some insight doing those. Welcome!

Giselle

[kim]

HELLO and Welcome Lisa!

 

I know just how you feel about finding this site. I can't beleive it has been close to 2 years ago, that I found it. Truly a God send!

 

 

Giselle,

 

My oldest son has been doing a little ticcing. He came in the door after school, and said that he hadn't ticced all day (mild head shaking). The abdominal tic disappeared with the removal of the absorbic acid/vit.C and the acidy feeling is gone. He cannot tolerate much (approx.1 gram or 1000mgs), even though it was buffered.

 

He said he thought it was the fumes from the buses, that were bothering him.

 

They all sit running in a line. He said it doesn't matter if the windows on the buses are open or closed, they fill with fumes.

 

Whether that's the problem or not, I'm so glad that he's aware, and giving these things some thought. Other parents may want to keep an eye out for this.

 

As he gets older, I want him to know that cigarette and second hand smoke contains lead, PCP's, arsenic and other horrors, beer is high in yeast and grains, wine/phenols, Marijuana (sp?) has to have a bunch of awful chemicals right?

 

If we have had to go through all of this as parents, there might as well be an upside!

 

kim

[Giselle]

Hi Kim, oh yes, Hoyt really reacts to car fumes too, any chemical smell really. I get a little frustrated with my husband who wants to work on models with him and the glue smell is horrible! What he does is go to the garage and glue stuff and then bring it back later when the smell is gone for my son to work on - but still the glue is off gassing! He came home the other day all excited because he found a glue that was non-toxic but still smelled horrible. I applaud that he was trying to be aware of the situation but perfume isn't toxic and Hoyt reacts to that too - instant headache. We were in church the other day and the poor kid got an instant headache from someone wearing perfume up the yin yang! Cigarette smoke bothers him too. Sometimes I wish he could walk around in a gas mask - ha! That would be a sight. As I always think of him - my canary in a coal mine. I'm so glad your son is figuring out what bothers him - that's very helpful.

 

Giselle