Question about Lyme

[mar]

So I read on this site that brain fog and muscle pains could be a sigh of Lyme. So my question is that this sounds like DH. Is Lyme treatable even if you had it for who knows how many years? Like what if DH had it for 20 years if this makes sense. Just curious. If you don't catch is right away how long to you have to treat. And if so I have read that tests might not be so accurate. Any info would be appreciated.

 

Mar

[JuliaFaith]

So I read on this site that brain fog and muscle pains could be a sigh of Lyme. So my question is that this sounds like DH. Is Lyme treatable even if you had it for who knows how many years? Like what if DH had it for 20 years if this makes sense. Just curious. If you don't catch is right away how long to you have to treat. And if so I have read that tests might not be so accurate. Any info would be appreciated.

 

Mar

My DH had the same symptoms and after 8 yrs. of it continuing to get worse, he finally saw my son's dr. recently. She did a CD57 test which showed '90' and her ideal is above '100' so she said he probably has lyme but that was not the biggest deal for him. It was high inflammation from continuing sinus/lung issues, hormone regulation (including thyroid), HHV-6 virus (same as son's). So while he may be getting treated for lyme, these other issues were just as bad or worse. He loves 'ProCalm' (probiotic/gaba mix) and so now both my son and dh on it. He is also taking B-12 injections (which he does himself) along with other meds/supplements/nutrient support.

 

He says that the fog is slowly clearing and he is feeling better than he has for 8 yrs. He also had some other, rather painful treatments, which, if you really want to know about those just PM me. He looks so much better and people at his work have commented too.

 

She said treatment for him would be 12-18 months. This is a ND that treats the whole body, not just one thing. I told him he is going to be like a 20 yrs. old when he is done and I will still be the same old age!

 

Good luck!

[Suzan]

I think I have had lyme since I was very young. My only known tick bites were when I was a kid (I'm 45 now). I feel fairly confident I had it when I was 18 but I started getting more sick when I was 28. Then, various issues through the years until 2 years ago when I got very sick and diagnosed with lyme. After 2 years of treatment, I'm doing much better. My brain function, which was drastically affected, is about 90% back. The remaining is due to feelings of being overhwelmed, poor name and face recall and forgetting what I was going to say. The fog has lifted!

 

Good luck!

 

Susan

 

Oh yeah, also, most pain is gone but I have to stick to a pretty strict diet of no grains or sugar otherwise the pain returns.

Edited July 16, 2012 by Suzan

[MichaelTampa]

My symptoms were different than you describe for your dh, but I believe I had lyme since childhood, with slowly progressing symptoms that got much worse in 2006. I finally got diagnosed, and then started treatment over a year ago, and I am much improved, although still working on it. I am 44 years old now, so I had it for a very long time. I do believe the longer you've had it, the more work you'll have to do (and I've heard that from other lyme docs as well), but it all can be done regardless.

[mar]

What is the name of the test you did for Lyme? Is it reliable? I guess it is with you recovery.

Thanks

Mar

[MichaelTampa]

It is a matter of degree with all of the tests, in terms of how reliable/unreliable they are. Personally, I used IGenex western blot, and LabCorp CD57 (HNK1), and also had someone familiar with energy testing/muscle testing/applied kinesiology (whatever you want to call it) test me against vials containing the energy of lyme and also a vial with coinfections. For me, the CD57 was low (indicating lyme), my body reacted to the vials (indicating lyme), and the western blot reacted to band 39 and band 41, meaning I had some antibodies against lyme (indicating lyme, even though some people nonsensically think that just showing one or two different types of antibodies against lyme isn't enough to show there is lyme).

[Suzan]

I also used IGenex western blot, and LabCorp CD57. My Igenex test was positive Igenex, negative CDC standards. I worked with a lyme doctor and also a chiropractor who does muscle testing and natural treatments.

 

I hope my regular doc will check my cd57 when i go back for a physical.

 

Susan