bulldog24 Posted April 26, 2012 Report Posted April 26, 2012 Open to anyone who wants to go. Lets meet up for dinner or drinks next week! Daytime is hard for me so evening works best. We can pick a central location. Whos game?
fightingmom Posted April 26, 2012 Report Posted April 26, 2012 Oh man, I wish I could. I have finals starting next week and need to study. Have fun!
lmkmip67 Posted April 26, 2012 Report Posted April 26, 2012 Maybe! It would just depend on when and where. I am in central MA.
minimaxwell Posted April 27, 2012 Report Posted April 27, 2012 Would love to meet. We live in Southborough and I work in Natick.
minimaxwell Posted April 27, 2012 Report Posted April 27, 2012 I am thinking about crashing the Boston Pediatric conference on Tuesday May 1. Dr.'s Cunningham,Leckman and Swedo are presenting. Think I can sneak in?
Dedee Posted April 27, 2012 Report Posted April 27, 2012 LOL.....I crashed a conference a few weeks ago while attending another conference at the same hotel. It was the Anxiety Disorders Association of America (ADAA) and they were talking about anxiety in children so I just went in like I belonged there. Didn't go so well for me though cause it nearly made me sick when every child they described sounded like a PANS case to me. I got brave enough to ask the lecturer if the kids in the studies she refereed to had been screened for PANS prior to entering the study. She was a bit indignant, and said "of course they were screened for abrupt onset." When I asked if they were screened medically, she skipped the question and went on to other questions. So basically, I came out of there depressed and feeling like there are hundreds & hundreds of kids out there who need help but are only getting psych drugs and a bipolar diagnosis. I would love to crash the Boston conference with you but unfortunately it doesn't look like I'm going to be in that area. Shucks... I say go for it! Also, I wish I lived close enough to have dinner with you guys. I really enjoy spending time with other PANS parents. Just don't get the opportunity very often. Have fun! Dedee
HanHan Posted April 27, 2012 Report Posted April 27, 2012 LOL.....I crashed a conference a few weeks ago while attending another conference at the same hotel. It was the Anxiety Disorders Association of America (ADAA) and they were talking about anxiety in children so I just went in like I belonged there. Didn't go so well for me though cause it nearly made me sick when every child they described sounded like a PANS case to me. I got brave enough to ask the lecturer if the kids in the studies she refereed to had been screened for PANS prior to entering the study. She was a bit indignant, and said "of course they were screened for abrupt onset." When I asked if they were screened medically, she skipped the question and went on to other questions. So basically, I came out of there depressed and feeling like there are hundreds & hundreds of kids out there who need help but are only getting psych drugs and a bipolar diagnosis. I would love to crash the Boston conference with you but unfortunately it doesn't look like I'm going to be in that area. Shucks... I say go for it! Also, I wish I lived close enough to have dinner with you guys. I really enjoy spending time with other PANS parents. Just don't get the opportunity very often. Have fun! Dedee I am in for drinks or dinner or both. I would def. crash that conf. When and where is it? I will go too if I can.
HanHan Posted April 27, 2012 Report Posted April 27, 2012 Open to anyone who wants to go. Lets meet up for dinner or drinks next week! Daytime is hard for me so evening works best. We can pick a central location. Whos game? Do you want to or I can send an email out to the support group people. I don't think they all are on latitudes.
Momto2boys Posted April 27, 2012 Report Posted April 27, 2012 Open to anyone who wants to go. Lets meet up for dinner or drinks next week! Daytime is hard for me so evening works best. We can pick a central location. Whos game? I'm in Rhode Island but would be up for dinner in SE Mass. If you happen to be doing it on Tuesday or Wednesday I could. There are no support groups around me and no other PANDAS/PANS parents so I'd love to have others to meet up with.
NancyD Posted April 28, 2012 Report Posted April 28, 2012 Want to go together? I'm game... I am thinking about crashing the Boston Pediatric conference on Tuesday May 1. Dr.'s Cunningham,Leckman and Swedo are presenting. Think I can sneak in?
fightingmom Posted April 28, 2012 Report Posted April 28, 2012 Want to go together? I'm game... I am thinking about crashing the Boston Pediatric conference on Tuesday May 1. Dr.'s Cunningham,Leckman and Swedo are presenting. Think I can sneak in? I so badly want to go to this if the public is allowed...but my final in psychology is on Tuesday! So jealous. Please take notes if you go!!
bulldog24 Posted April 28, 2012 Author Report Posted April 28, 2012 Someone suggested middleborough for dinner? I was also thinking plymouth might be nice. I am trying to think of pplaces that are kind of in the middle of everyone. Suggestions???
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