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Posted

I am trying to gather more info on what this means from a practical real life approach and what doctors have told you as parents of Autistic/Aspergers/ADHD kiddos. The more I research, I am trying to make sense of the whole Pandas thing and how they are related. We have no diagnosis other than Pandas and Pyrrole disorder. Thanks in advance!!!!

Posted

My daughter was probably born with congenital lyme. She was very sensitive to sound, light and touch. She cried a lot, but reached all of her milestones until her 15 month MMR. The next day she developed a high fever and became very quiet. My first thought was "I've damaged my daughter". Neither she nor her older brother had ever responded to a vaccination in that way. Gradually over a couple of months she lost all acquired speech and began to show motor delays, never reaching proper developmental or social milestones after that. She began to have rages and became frustrated at the smallest things - these were mostly turned inward, and spent most of the time playing by herself. She was Dx with oral apraxia, ADHD, motor delays and an inability to properly filter incoming stimuli. After 5 years of private speech therapy, OT and PT she had pretty much caught up with her peers except socially where she lagged by 2-3 years. She developed motor/vocal tics and PANDAS reactions (increased rages and ticcing (no OCD though), loss of handwriting skills, increased urination) first to strep and then viral infections as well, after an insect bite with non-EM 1 inch diameter red rash. Around this time she was given her 6 year MMR booster - my PCP said not to worry, vaccinations are not harmful - but I do not recall an atypical reaction to that one. 3 years later she developed the bone pain and headache symptoms that I now know are bartonella. By this time she had also been Dx Aspergers, motor/vocal tic disorder, ADHD, motor delay. She is currently being treated for lyme/bartonella with an LLMD and has been on Abx for 1 year now. She has socially and developmentally caught up with her peers, her handwriting is wonderful, she is an A student in grade 5. She has no further PANS reactions to infections. She has a few pain symptoms left that show up on extreme exertion, but no fatigue or motor/vocal tics. Whether or not she can stay this way off Abx is now my concern.

I believe that the 15 month MMR delayed her development significantly, probably because of an underlying immune disregulation caused by lyme. She will not be having further vaccinations because I will never know if her lyme has truely been taken care of.

Posted

WorriedDADNMOM,

 

Not exactly sure what you mean by "a practical real life approach," but I thought there may be some things in this article that you may find helpful?

 

http://therefusers.com/refusers-newsroom/vaccines-neurodevelopment-and-autism-spectrum-disorders-russell-l-blaylock-md-neurosurgeon/

 

As far as what Dr.s have told parents, the most I have have heard is either condescending deniel of any connection, or "no more live viral vaccines," and a few "no more vaccines of any type." I don't think I have ever heard of a parent being given an explanation how a Dr. suspects vaccination could be causing a problem.

 

This is an excerpt form the link above, something that I hadn't read before. The "Hep B birth dose," was actually what made the vaccination program look like a house of cards to me. The risk/reward seemed so out of line for the majority of infants that it really made me question the others. Believe me, there was never a person who thought that vaccine alarm bell ringers were anything more than "nuts," than myself at one time.

 

Presently, vaccine authorities recommend every baby be vaccinated with the hepatitis B vaccine at birth. But, is this safe? A recent study looked at the immune reaction in newborn infants up to the age of 1 year who had received the hepatitis B vaccine to see if their immune reaction differed from adults getting the same vaccine. What they found was that the infant, even after age 1 year, did react differently. Their antibody levels were substantially higher than adults (3-fold higher) and it remained higher throughout the study. In essence, they found that the babies responded to the vaccine by having an intense Th2 response that persisted long after it should have disappeared, a completely abnormal response.

 

Autistic children have been described as having a Th2 predominance, which would explain their propensity to developing autoimmune diseases and being more susceptible to infections early in life. Elevated proinflammatory cytokines, particularly TNF, have been described in studies of the cytokine profile in autistic children. As we shall see later, an excess production of B-cell cytokines and suppression of T-lymphocyte Th1 activity, as seen in autism, is associated with a high incidence of neurological damage by excitotoxins.

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