CoQ10?

[ibcdbwc]

Am curious to know if anyone gives CoQ10 to their child and if so what is the reaction.

[Fixit]

Am curious to know if anyone gives CoQ10 to their child and if so what is the reaction.

 

i try stuff on me ahead of time or at the same time as ds.

though the panda side is my hubbies..i figure i might respond the same as ds being he is half mine.

i find i can sympathise before when he has a reaction.

i felt like i could think clearer ...idk if that was short lived, because i can't think now in the craziness. or did i get used to clearer thinking and this is just stress..

i gave to ds and still do sometimes. but i lowered the dose to 50mg from 150mg..

 

fcefxr has a thread on this..

it's also called idebedone, or ubiquinol

[911RN]

Am curious to know if anyone gives CoQ10 to their child and if so what is the reaction.

 

I give my DS12 100 mg daily. My husband also takes it. He takes 200 mg daily. I didn't notice any "reaction" but I think he is less fatigued and has a bit more stamina. This is a kid that complains of being tired all the time despite 8-10 hours of sleep at night. Seems to have more energy. He has been on it about 6 months. Don't expect to see results right away---it takes a few weeks to a month to see any difference. My husband was my control- they went on it at the same time. My husband states he feels better taking it.Same effect- more energy.

 

My reason for putting both my husband and my son on it was for different reasons. My husband is a on cholesterol lowering agent and high BP medicine.Cardiologists recommend it for their patients because cholesterol lowering agents can cause one to be lower in CoQ10. It's good for the heart:) Our bodies make this, we do not get it from our foods. CoQ10 production is inhibited by certain medications---my son is on antiseizure medication and low does Prozac and CoQ10 production is lowered from these drugs, as well.

 

I don't think it is one of those medications where you "see" a whole lot in way of behaviors or changes in child's abilities--- think they may just feel better and the benefits that may entail to their entire functioning--- it that makes any sense?!

[MichaelTampa]

I am taking 1500mg of CoQ10 daily, but just want to point out that it is in some foods, such as broccoli and walnuts.

[ibcdbwc]

Thank you to all. I was just curious if anyone had a negative experience i.e an increase in tics/emotional disturbance. As always constantly tweeking-- This was the latest supplement added to his regime a while back. And although he did report an overall increase in energy he also is now in the midst of a several week flare. That being said this is his classic time to flare-- I am fairly sure histamine allergy component. I don't think it's the CoQ10 but was curious to know if anyone had experienced a flare after adding. We are on lower dose-- 50 mg qDay.

[Fixit]

Thank you to all. I was just curious if anyone had a negative experience i.e an increase in tics/emotional disturbance. As always constantly tweeking-- This was the latest supplement added to his regime a while back. And although he did report an overall increase in energy he also is now in the midst of a several week flare. That being said this is his classic time to flare-- I am fairly sure histamine allergy component. I don't think it's the CoQ10 but was curious to know if anyone had experienced a flare after adding. We are on lower dose-- 50 mg qDay.

 

Yes i hate spring.

plus we are doing testing for crct...just a ton of stress...not good!

[911RN]

Thank you to all. I was just curious if anyone had a negative experience i.e an increase in tics/emotional disturbance. As always constantly tweeking-- This was the latest supplement added to his regime a while back. And although he did report an overall increase in energy he also is now in the midst of a several week flare. That being said this is his classic time to flare-- I am fairly sure histamine allergy component. I don't think it's the CoQ10 but was curious to know if anyone had experienced a flare after adding. We are on lower dose-- 50 mg qDay.

 

My son has significant history of tics- vocal and motor. Never noticed any increase in tics after starting. As I said- has been on it about 6 months or so. Maybe a little longer- give or take a couple months. Actually, had an all time low for ticcing from mid Jan to April then we (as everyone else it seems:) saw rise with beginning of April- allergies etc, I suppose.

[ibcdbwc]

April used to be such a great month :-( before PANS/PANDAS

Edited April 12, 2012 by bcdbwc