Doing great 1 1/2 years post ivig

[joshuasmissingpeace]

Just a note of encouragment to hang in there. We did 3 hd ivigs starting a year and a half ago. We went from an angry, anorexic, OCD, vocal tourettes, hallucinating insomniac to a sweet little boy after 2 1/2 years of ######. He is on prophylactic antibiotics and fish oil but doing great...not perfect..but great. He is 20# heavier, sleeps like a baby and is in a typical small school (where he is comfortable telling his friends about PANDAS) I never thought we would find him again. Hang in there, they can get better.

[Chemar]

bumping up so others see this

 

Just a note of encouragment to hang in there. We did 3 hd ivigs starting a year and a half ago. We went from an angry, anorexic, OCD, vocal tourettes, hallucinating insomniac to a sweet little boy after 2 1/2 years of ######. He is on prophylactic antibiotics and fish oil but doing great...not perfect..but great. He is 20# heavier, sleeps like a baby and is in a typical small school (where he is comfortable telling his friends about PANDAS) I never thought we would find him again. Hang in there, they can get better.

[bigmighty]

Glad to hear the good news. Can you tell us, please, what his main symptoms were and what recovery process was like? Did you do CBT/ERP? Thanks for posting. Best, Suzanne

[missjo]

How old is your son? When do you feel he first developed Pandas?

[Pandasmex]

Great news!!!

Specially during this time of the year....thanks for share.