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Posted

We are new to Tindamax.

Tried 5 days of it (was suppose to go 7)

Pulled her off, it was crazy wild.

Told to detox more - okay, I have been.

 

Tried again this morning with 1/2 tablet, want to see if she can go 2 days, start a weekend thing.

The reaction is immediate, another difficult day.

 

Does the reaction go down the more weekends you get in?

 

Thanks-

Posted

While it was rough in the beginning for several weeks Tindamax made a huge difference in both my treatment and my DD's treatment. Hang in there...it will get better!!

Posted

We did 5? weekends - it got worse for us, not better. I don't think we allowed enough time between pulses to detox well enough. When we're done fixing the potholes in the road, I suspect we'll consider it again next spring or summer. I'd then start with only one day (2 doses) and consider every other weekend. Then build up as tolerated. In our case, there was just too much fall out to push thru it.

 

We did enjoy a great few months afterward, but to do it again, I'd go much slower. Listen to her body. If she recovered from last week, then maybe try every weekend, or 4 doses, and see how she recovers over the next week. If she's still not in a good place by next Thur, give her a break and skip a weekend. I think I made the mistake of doing another pulse before things had settled down from the last one.

 

Good luck!

Posted

Thank you for the feedback, much appreciated-

I am going to try and push through this with her on the weekends-

It is REALLY hitting infection.

We will see how it goes, whew, it is rough, but *maybe* a tiny better than last time since I am using detox powder 2x a day now,

and breaking from herbal drops on the Tindamax days.

 

I haven't been on Tindamax yet- on many other things currently, rough for me too.

Found an inexpensive 1 hour massage I am sneaking out to get this morning-

Hope I can get off the table and make it home ;-/

Posted

Thank you for the feedback, much appreciated-

I am going to try and push through this with her on the weekends-

It is REALLY hitting infection.

We will see how it goes, whew, it is rough, but *maybe* a tiny better than last time since I am using detox powder 2x a day now,

and breaking from herbal drops on the Tindamax days.

 

I haven't been on Tindamax yet- on many other things currently, rough for me too.

Found an inexpensive 1 hour massage I am sneaking out to get this morning-

Hope I can get off the table and make it home ;-/

 

 

I love the fact that you're getting the massage! I go through periods when I go over to the mall and get a 15 minute chair massage. It's just the best. Even my kids occassionally tell me I need a massage!

Posted

We had a love/hate relationship with the Tindamax, especially in the beginning. My dd took it on Sat/Sun, would herx for a few days and then we would see great improvement. I also feel it was the Tindamax that made a huge difference in her treatment. We did have problems with it though, when combined with IVIG. It caused an extreme herx...too much for her to handle.

 

I hope you had a relaxing massage - you deserve it!!

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