Our final verdict

[SSS]

Hi. DD6 and I had some more testing done, more appointments, and it is

definitive Lyme, Bartonella, Babesia, and MOLD.

I can't even research or read about mold, so overwhelmed.

Hoping it was our nasty new GE wash machine that developed black mold around it's

front rubber ring- I kept it too long. Disposed and replaced a year ago.

But sending away for kit to test our home, and dd is getting the HLA test done to see if we have this

genetic issue.

 

I also got in trouble yesterday. Was told I am too aggressive, kill, kill, push, push, and I am not in charge, that is, unless I want to crash my body.

Humbling. I am so used to running the show. Guess God picked the right Dr. for me.

Anyway, I start doxy and biaxin, dd amoxicillin and biaxin, a powder to help detox, more detox, can't fit all dd's supps and meds in, going to have to get the school to help. Lots of herbs, too.

 

Overwhelmed, thanks for listening.

S.

[LNN]

Yeah, that kick in the gut really smarts for awhile. How much are you supposed to wrap your head around all at once? Looking back, doesn't Pandas feel so "easy" - one bacteria, kill it, dampen inflammation, be psycho-vigilant and get your kid to puberty. (Pandas moms - I'm being facetious - never thought Pandas was "easy"). Now you have bacteria permanently setting up shop and mold, that's ubiquitous in your home, her school, the woods in your back yard. Bubble wrap and the Sahara desert never seemed so attractive!

 

As for being "too aggressive" - you have company. That's my big tendency too. Killing me to try to take the time to prepare the body for what may be ahead on our journey. tick tock. They're not staying little forever. Let's get this show on the road so they can have normal, healthy childhoods. But sometimes, other forces have answers that get unfolded in their own time.

 

Getting the school involved stinks. I got so many strange looks. I now pick them up at the end of the day and shove pills in them as soon as they're buckled in just to avoid the nurse issue. And we eat dinner/abx a little later, and give bedtime pills at the end of reading time instead of when we brush teeth, just to gain a half hour further away from abx. It's a nutty way to live.

 

But it sure beats the alternative of doing nothing. My advice - wallow for a few days. Good for the soul. Then drop DD at school one day and walk past the OT classrooms, remind yourself that others have their own struggles. Remember that the teachers who seem so normal are struggling with divorce, sick parents, an unemployed spouse, an abnormal mammogram...A rich life doesn't mean a carefree life. They're not the same thing.

 

You will get her well. You will get yourself well. It will take time. Probably a long time. There may be more labels. More pills. And along the way, you will both grow from it and you will have an amazing young lady who has a wise, reluctantly patient mother who can both look back and be proud of the people they've become.

[cobbiemommy]

Isn't it wonderful to have a doctor who is willing to be in charge? For a long time, I wanted a doctor to "drive the bus" so that I could just sit back and enjoy my children. Now I feel like we are more in a partnership, where sometimes I brainstorm on where to go and sometimes he does. It is working OK but we are a little stalled out at the moment.

[JuliaFaith]

Yeah, that kick in the gut really smarts for awhile. How much are you supposed to wrap your head around all at once? Looking back, doesn't Pandas feel so "easy" - one bacteria, kill it, dampen inflammation, be psycho-vigilant and get your kid to puberty. (Pandas moms - I'm being facetious - never thought Pandas was "easy"). Now you have bacteria permanently setting up shop and mold, that's ubiquitous in your home, her school, the woods in your back yard. Bubble wrap and the Sahara desert never seemed so attractive!

 

As for being "too aggressive" - you have company. That's my big tendency too. Killing me to try to take the time to prepare the body for what may be ahead on our journey. tick tock. They're not staying little forever. Let's get this show on the road so they can have normal, healthy childhoods. But sometimes, other forces have answers that get unfolded in their own time.

 

Getting the school involved stinks. I got so many strange looks. I now pick them up at the end of the day and shove pills in them as soon as they're buckled in just to avoid the nurse issue. And we eat dinner/abx a little later, and give bedtime pills at the end of reading time instead of when we brush teeth, just to gain a half hour further away from abx. It's a nutty way to live.

 

But it sure beats the alternative of doing nothing. My advice - wallow for a few days. Good for the soul. Then drop DD at school one day and walk past the OT classrooms, remind yourself that others have their own struggles. Remember that the teachers who seem so normal are struggling with divorce, sick parents, an unemployed spouse, an abnormal mammogram...A rich life doesn't mean a carefree life. They're not the same thing.

 

You will get her well. You will get yourself well. It will take time. Probably a long time. There may be more labels. More pills. And along the way, you will both grow from it and you will have an amazing young lady who has a wise, reluctantly patient mother who can both look back and be proud of the people they've become.

Beautifully put LLM! Thank you.

[philamom]

Yeah, that kick in the gut really smarts for awhile. How much are you supposed to wrap your head around all at once? Looking back, doesn't Pandas feel so "easy" - one bacteria, kill it, dampen inflammation, be psycho-vigilant and get your kid to puberty. (Pandas moms - I'm being facetious - never thought Pandas was "easy"). Now you have bacteria permanently setting up shop and mold, that's ubiquitous in your home, her school, the woods in your back yard. Bubble wrap and the Sahara desert never seemed so attractive!

 

As for being "too aggressive" - you have company. That's my big tendency too. Killing me to try to take the time to prepare the body for what may be ahead on our journey. tick tock. They're not staying little forever. Let's get this show on the road so they can have normal, healthy childhoods. But sometimes, other forces have answers that get unfolded in their own time.

 

Getting the school involved stinks. I got so many strange looks. I now pick them up at the end of the day and shove pills in them as soon as they're buckled in just to avoid the nurse issue. And we eat dinner/abx a little later, and give bedtime pills at the end of reading time instead of when we brush teeth, just to gain a half hour further away from abx. It's a nutty way to live.

 

But it sure beats the alternative of doing nothing. My advice - wallow for a few days. Good for the soul. Then drop DD at school one day and walk past the OT classrooms, remind yourself that others have their own struggles. Remember that the teachers who seem so normal are struggling with divorce, sick parents, an unemployed spouse, an abnormal mammogram...A rich life doesn't mean a carefree life. They're not the same thing.

 

You will get her well. You will get yourself well. It will take time. Probably a long time. There may be more labels. More pills. And along the way, you will both grow from it and you will have an amazing young lady who has a wise, reluctantly patient mother who can both look back and be proud of the people they've become.

Beautifully put LLM! Thank you.

I second that!

[SSS]

Thank you :-)