Some good news - update

[LNN]

This is a tentative "good news" update, at the risk of regretting this post. But for those contemplating KPU, or struggling with big brain fog, wanted to share some positive news. DS9 tested positive for KPU in July. We started 30 chlorella + Core 3 weeks ago. So we're just entering the time period (3-6 wks) where things could go south. But...for this moment, things are so so good.

 

Last night we had a 2 hr. talk where it was like talking to the sharp kid I lived with 3 years ago. He was so "present" in the moment. Instead of talking across the static, he was clear as a bell, and he grasped very adult concepts. Best of all, he was happy inside. There's a steadiness about him that I can't explain.

 

Like I said, it's way too early to be posting about this. But I've had so much support from my friends here and it would take too many PMs to share with everyone. What's working for us may not work for everyone. It's truly a journey of finding the puzzle pieces that are right for your unique situation. We still undoubtedly have a long journey ahead. There's still some mold investigation to be done, still some probable biofilms to be tackled. But for us, something as basic as minerals and vitamins have proven to be a missing piece. Something we never would've found by staying on the purely allopathic path. So to everyone who's given support over the years, a big thank you!

[SSS]

Ahhh, YEA!!

 

Really, really great :-)

[Suzan]

That is great news! If you do get herxing from this, I really believe that this is a sign of more and more to come.

 

We are doing KPU treatment for dd8. She is up to 2 core pills a day now (increasing by 1 pill every 2 weeks). The first 2 weeks she was struggling, getting kicked out of camp for hitting and stuff like that and getting increased rashes. Things have been status quo for now. I increase to 3 next week, just in time for school to start She did not test positive but my LLMD and I felt sure she was affected by it. I still can't tell if it will work for us so your post is reassuring for me too!

 

Susan

[lynn]

That is such great news! Sad that as parents we have to learn to save up these few moments when things are right for our children. On the other hand, the joy of getting to know your "real" son is more than parents of unafflicted kid will ever know.

[philamom]

That's really nice to hear. like, like, like!! And, thank you for sharing it with us.

[KaraM]

Great news! Hoping and praying for this to be the beginning of the end!

 

Kara

[momcap]

So happy! I hope the good news updates continue!! But even if it's 2 steps forward, 1 step backwards, we will all learn from you sharing this journey. Thanks for letting us in!

[JuliaFaith]

So great to hear your news! Best wishes as you move foreward in treatment.

 

My son continues to move forward (very little backward movement). He had his first 'flare' for 3 days after starting Alinia but it had been 4 mos. since his last one. This one seemed lighter than all the others. Just keep seeing improvement slowly. He is going to try public school again for the first time since May 2009. We are excited but nervous at the same time. Will review 504 and make sure whatever can be put in place is there.

 

Thank you for sharing your 'improvement' story!

[hawks]

Great News. Yeah!

[JAG10]

Oh Laura! I got that tingly feeling reading your post, pure joy!

 

Yes, after years of near hits and misses, caution comes naturally. But if nothing more, you are able to enjoy these moments and most importantly, confirm- yes! It's still in there! Remember, there are endless reasons why a child can present below their potential, but they NEVER present above their potential. Everyone needs to wrap their brains around that concept and never stop pursuing treatment options until that highest potential becomes the norm rather than a visitor.

 

Kudos to you both!