Jump to content
ACN Latitudes Forums

school questions

Recommended Posts

Hi all,



What are people doing for school for kids/teens who are severely ill? And if in school, how do they handle the cognitive challenges and fatigue that go along with treatment?


My son has not done schooling since April, and before that was homeschooled. Homeschooling was good for the health issues, but he wasn't happy. He prefers to be in school but at this point doesn't feel like he could keep up with the demands.


We are considering having him try and attend an LD school (school for kids who are learning delayed/disabled) , and I am thinking of trying to legally maintain homeschooling status so he doesn't have to meet their required seat hours.


How are others coping with school?

Share this post

Link to post
Share on other sites

We did K12.com which is a public and private school. Only some states offer the public school option. It worked well because of the flexibility in doing work on the weekends and any time my son felt good enough. He is still working on his school all this summer to get caught up with his grade. At the 7th grade level, 25% of his assignments are on the computer and the rest are out of books etc. If public school, they provide the books and some supplies (i.e., science, art) by sending them to you in the mail. As they increase in grade, the percentage of work on-line increases.


He was required to put in 25 hours/week and we worked towards that but sometimes were a bit short. He did have a 504 plan set up with the school,as well, which helped them be able to be more flexible with us as well. At one point his dr. recommended taking a month off and so we provided the school with a note from her and they said 'ok'. I did have my son continue to do a bit of the school work though - thank goodness.


Since he is starting to feel better, we are hoping he can return to a public school this Fall but not sure yet.

Share this post

Link to post
Share on other sites

I feel a bit different about education than most main stream parents, but I thank God we were already homeschooling when PANDAS hit our home. My feeling is and always has been that children learn naturally when given the chance to learn what they are interested in, in a supportive environment. We have never pushed education onto our kids but we act as facilitators in helping them to further their interests, and they learn just fine as a side effect of this. Human beings are naturally curious.


My 14 yo dd has been unable to read a book for over 2 years.(unless in the company of others) She has been unable to write much as well, except on the computer and texting. (she was severely disabled from pandas/lyme and these are things that have not completely resolved yet)


So, last year, she decided to take some classes at the high school for the first time ever. She was young for her grade, having her birthday only a few days before the cutoff. She had not taken any formal classes her entire life, but had learned as a result of following her interests in a rich caring environment. She took 3 classes and during that time she missed several weeks due to leaving the state for multiple IVIG. She had the complications of migraines, ocd, tics, etc. She scored in all 3 classes in the high 80's.


My point is that after two years of being unable to read and write, not having a formal education like most kids, and being somewhat disabled during the time of the classes, as well as missing quite a few, and on top of that, being bored by the end of each sememster and not really feeling like trying....she managed to do quite well.


I felt confident that she was a bright kid and could fit right in, but it was nice to have it validated by having her try public school on her own terms. The school was actually happy to have her because they get tax dollars for her attendence and they were all quite nice to her. She made one good friend too. They never bitched about her attendence either. She was late a lot due to ocd. No one ever even mentioned it to me. She was registerd as a homeschooler, so it took the pressure off the school, I think.


When she took the first class, I told her teachers she was ill (I had one of her teachers when I was there) and I told them a little about PANDAS, but I never formally told the school. She was in mainstream classes.


I personally feel that you can "homeschool" your kids and just let them get well and they will not miss out on enough to set them back. Keep their environment rich and help them follow their interests to the best of their abilities. What more can you do? Most states make homeschooling quite easy. It's best to ask people who have homeschooled for years the easiest way to go about it. If your state has an unschooling list, they are likely to know the most relaxed teachers if you need a portfolio review or testing, like in my state. Different teachers have different educational philosophies and you can likely find one that matches your own.


Dd was glad to have tried public school but at this time has no plans to go back this year.

Share this post

Link to post
Share on other sites

Well, I am not sure myself how 1st grade will go with my dd, which starts in 15 days.

Last year, in K, I was able to put a 504 (medical) in place with our school, with a letter from our treating Dr. for Pandas- the letter explained the up and down nature of the illness, etc.

We had a 2nd IVIG done last Spring, and after that one, I pulled her from the last 6 weeks of K, because I didn't want her exposed to strep again- our public school was amazing, and sent a tutor to come into our home for one on one teaching, and she passed/graduated K. I am unable to homeschool her- she won't work for me like she will with a teacher- it's that holding it together for others part.

However, now we are looking into lyme, and with that very likely treatment, not sure how she will be able to deal with full day school.

What can we do? The child has health issues- it is difficult and sad, since she does well academically, and I feel the social aspect is very helpful for my anxious girl.

But getting her health in order is the most important thing.

Hang in there. My heart is heavy too with it. I found putting a medical waiver of sorts (the 504) and having the school 'aware' took pressure off.

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Announcements

    • Administrator

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010