Finally, some good news

[JuliaFaith]

Had Dr. appt. today and found out with testing that mold is the predominant problem. Tests results that showed this are:

 

C3a (lyme) - 157 (range 0-940)

 

C4a (mold) - 2632 (range 0-2830)

 

Son is holding steady and showing the beginnings of improvement. Was told that 18 months (now on 8 mos.) is the usual treatment time-frame, but since we did T&A, mold removal, air quality improvement, and supplements, as well as, his age, he may even be well enough before then. She said to give it a couple of months to start seeing some faster/better improvement in his symptoms (headache, stomache, muscle aches). Sounds like lyme will also be in his body but if he is healthy it will be dormant.

 

In terms of supplements we took a few out (CVE [bioPure]; Vitamin D3; & BRM4) thank goodness.

 

A Chlorella I found checked out good as well and cost way less than BioPure and is called Sun Chlorella A.

 

Dr. also recommended starting an acct. with Vital Choice in Bellingham to get salmon oil (the one we have is $40 a bottle!) and other more affordable options.

 

Lastly, she also said that the more my son has MILA (by Lifemax) the less he will need in terms of supplements. My guess is the salmon oil since MILA is high in Omega 3s. We put it in water overnight and add to his oatmeal, smoothies the next day. It has no taste but is jello-like in consistency.

 

Will refill BEG & VIP nasal spray one more time (3 mos. treatment) and not refill again. These are for the MaRCONS & Mold.

 

Recovery is on the way after 16 months of flu-like symptoms now including all drs./specialists combined! It has been 8 mos. of treatment with this ND. So glad we kept pursuing new doctors when other doctors had done all they could.

 

Best wishes to everyone else on this forum!

[Suzan]

That is so great and I am so glad he is doing so much better!! Good job!

 

Will you explain the testing you did more? I thought that C3a and C4a were not necessarily specific to lyme or mold but were indicators of (lyme for example) or other immune related conditions. Did you find of mold in your house? I have not tested my house at this point. I don't think we have any but you never know!

 

Thanks!

 

Susan

[JuliaFaith]

Will you explain the testing you did more? I thought that C3a and C4a were not necessarily specific to lyme or mold but were indicators of (lyme for example) or other immune related conditions. Did you find of mold in your house? I have not tested my house at this point. I don't think we have any but you never know!

 

Thanks!

 

Susan

Hi Susan:

 

Dr. did some of the recommended testing by Dr. Shoemaker (C3a; C4a; TGF Beta 1; MSH; VIP; TSH, Free T3, Free T4 per Dr.). Following is my research ideas about what they are for:

 

VIP--inflammation that develops in pheriphery (not the brain) and could result in production of regulatory harmones affecting MSH.

 

MSH--Melanocyte stimulating harmone. MaRCONS destroy this.

 

TSH+T4F+T3Free--These all have to do with thyroid function (my is taking thyroid medication)

 

TGF-Beta1-a high number here indicates lung problems (my son has been diagnosed with 2 pnuemonias in lungs and mold illness).

 

All of these just confirmed what the ART testing was telling us already. The Dr. today just mentioned the C3a & C4a and what they meant. Maybe she was referring to my son's case specifically, not sure.

 

We did do testing for mold, first with petri dishes from Home Depot (very inexpensive); then with ERMI testing. We were really surprised at how high ERMI came back. We thought all mold had been removed from our house... Since then we have found a bit of mold in our kitchen and bath and some yellow spots on the back of a large fine art painting that spent 3 yrs. in South Africa. Do not know what it is but we took it out of the house. Still have one more of those to take down, and not sure what we will find. We are still in the last 25% of cleaning the house top-to-bottom and remodeling our upstairs as a way to see if there is any other mold. Also, just wanted to remove the carpet in case it was in there.

 

Hopes this helps.

[philamom]

Wonderful Julia! Thank you for sharing. Keep us posted on his recovery.