Bill Posted June 8, 2011 Report Posted June 8, 2011 My son is scheduled for IVIG with Dr. B. end of June. My local doctor noted that she had one patient who was also on minocycline and had an issue with IVIG - I think she said intracranial pressure. I did not take notes so wouldn't swear that's what she said and do not remember the reason but.... Anyone else on minocycline and had issues with IVIG that was attributed to the mino? I'm waiting for proper wording from my doctor and will be sending this question off to Dr. B.'s office but always appreciate the experiences here. TIA, bill
philamom Posted June 9, 2011 Report Posted June 9, 2011 Bill- my daughter started Minocin in December. She had an IVIG in March. She didn't have any issues with intracranial pressure, just the usual headache you get with the infusion. Lots of fluids help minimize the headache (along with benadryl).
momaine Posted June 10, 2011 Report Posted June 10, 2011 Bill- my daughter started Minocin in December. She had an IVIG in March. She didn't have any issues with intracranial pressure, just the usual headache you get with the infusion. Lots of fluids help minimize the headache (along with benadryl). My dd is also on Minocin and has not had any problems with IVIG other than typical side effects, which are usually minimal.
melanie Posted June 10, 2011 Report Posted June 10, 2011 Dans been on minocycline 3X and IVIG every 21 days for over a year .I definitly see a problem with it I dont like minocycline at all. HIs face clears quickly but his behavior is terrible.I have told his MD this and she thinks Im crazy but Im not!! I even look back at my posts and always I say the same thing.The MD says its the bacteria in his gut from taking it but I dont think so.Anyway I wish I could find an antibiotic that works for acne and doesnt cause issues . Melanie http://www.org/ANTIBIOTICS.htm
philamom Posted June 10, 2011 Report Posted June 10, 2011 (edited) Dans been on minocycline 3X and IVIG every 21 days for over a year .I definitly see a problem with it I dont like minocycline at all. HIs face clears quickly but his behavior is terrible.I have told his MD this and she thinks Im crazy but Im not!! I even look back at my posts and always I say the same thing.The MD says its the bacteria in his gut from taking it but I dont think so.Anyway I wish I could find an antibiotic that works for acne and doesnt cause issues . Melanie http://www.org/ANTIBIOTICS.htm Melanie- How many days was he on each time? My daughter did have a herx reaction when she started it and again another time after stopping it for 10 days. The herx lasted couple weeks. I was unable to open the link you posted. Mommy instinct is usually right! Before PANDAS/Lyme diagnose, my daughter was constantly prescribed allergy meds (sing,zyrtec,clar,steroid nasal spray) which she reacted negatively too. When I told her doctors the meds changed her personality, they looked at me like I was crazy. They said it could make her drowsy/hyper, but not change her personality. Of course, this was six years ago. Moms know best! Edited June 10, 2011 by philamom
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