It has only been 1 week since the amox k/clav was added

[kferricks]

She was on Biaxin for a lil over a month and the amox was added last week. Now on Biaxin alone, her mood improved and while we were at the Pandas doctor, she actually sat down in the chair...I did'nt look because she always stood up anywhere that was not at home or my sisters. The doc pointed out! lol Then last week Lyme doc added the amox. Usually my daughter has the age regression at different times, she is 11 but the only other child she has interacted with since last Sept was my grandbabie almost 3yr...The other day I went and bought DD a couple comic books and picked up my grandbabie and pack of Barbie Cats. Then I saw the same thing with Dogs and picked it up for my DD, because i knew later that night she would be wishing she had one to play with. When I brought them home my DD said "mom, can you put this somewhere till I'm better?" I said but they are brand new and no one touched them. Then she said I know, but they remind me of my friends so they are kind of germy. But then she said, besides I'm getting older and kind of Barbied out. I have a whole box upstairs that I'm going to give Elli when she turns 4. Then I said well then Y don't you just go give her the dogs then? and SHE DID! This is hugh because she is a hoarder! This is a first all year!

Then yesterday, she opened the fridge with a paper towel! Before when it was suggested, well she just had too much fear to even consider it.

Then today she informed me that her homebound teacher at the library always eats crackers for thier break, and she shared them with her! Where as before that would've been a no go!

Also, becaue of two weeks traveling to and from CT and RI, her teacher has decided to add an extra day and a half hour to each day to make up for it, well all 3 days this week she has seen at least two busses from our district and while she has hidden and ws not happy, she did NOT NEED a shower!

To my family or outsiders this might not seem like much but I knew you guys would understand how hugh this is for us. While I"m excited and starting to get a lil more hope, I must say I have not started the Tindamax just yet. Waiting till after Saturday because we promised her she could go to a concert and help her dad set up stage and the sound system and she has been really looking forward to it. I was afraid that she would go backwards and not be in any shape to do it. I think I will start on Sunday night.

Oh, I forgot to add, she also wanted to brush her teeth and used the foam soap on her own!

Her contamination fears have ruled every part of her life including any thing to do with school. Many objects that were in her life before her sudden onset of symptoms are considered contaminated.

 

One more ? about the Tindamax and then I'll get off that subject. Do you guys give it a bedtime or early evening?

 

Jodi

Edited May 20, 2011 by shadowtails

[philamom]

Fantastic!!!

 

We give tindamax at dinner with other abxs.

[momaine]

That is so exciting! I completely understand. I am so happy for you.

 

I try really hard to give our antibiotics as close to 12 hours apart as we possiby can. It's rarely 12 hours, but I do my best. Breakfast as early as possible with the morning dose. Then the last snack of the night accompanies our night antibiotics. We are usually a good ten hours apart.

 

Something to think about. My dd's two worst days are the two days following Tindamax. I time them during the week when I know she'll have the most support on those two days. So, we do Thursday and Friday because Saturday and Sunday are days when we have the most going on so she keeps busy and doesn't suffer as much.

[kferricks]

Thanks! That is the kind of information I'm looking for. That will help me decide which two days I should do it.

[philamom]

I give the Tindamax at dinner (6:00 pm) and then a large dose of probiotics before bedtime (9:00 pm).

[sf_mom]

So glad you are seeing improvement already!!!!! Again, we could see worsening of some symptoms sometimes within hours of new antibiotic rotation and notice 'unexpected' improves as short as 48 hours or as long out as 6 - 12 weeks depending antibiotic/child.

 

-Wendy

[kferricks]

OH my gosh! She actually just pulled out a couple items that she got for Christmas that had to be placed behind the couch because some how or other they got contaminated (at Christmas time). Not playing with them but at least looking... If nothing else, the meds are making her a lil more braver. I am so glad I found this web site. So gratefull for the internet. Last October I was so numb and lost. I looked up OCD and found this site and was pretty put off when I read the ocd part of this site. Then I saw the cute little word Pandas and was curious so I clicked on it and read for a couple days. I was sure that was what my child had. In between I would click on the lyme board because I realized that the kids with lyme were suffering with the same symptoms often. When my child flew backwards on the Prednison, I knew from reading this board that she probably had it. All of our kids suffering the same. Antibiotics are helping both sets.

I'm pretty sure my family would have little hope left if it were not for the internet and ppl getting together and discussing what they are going though. and BRAVE doctors with hearts of gold who give of thierselves everyday to help all of our children.

 

Ok I'm just rambling, sorry. Thanks for all of your support, I pray for all of the children everyday. (and the parents)