Lunesta

[momaine]

We're really in a bad place. Have a dr. apt. Tuesday to talk about OCD drugs. In the meantime, dd can't sleep due to ocd issues of needing to repeat things, so she doens't let herself sleep unless she has a friend over. We have a script for Lunesta, but not only is it very expensive, I'm not sure it'll work if she doesn't allow herself to go to sleep. Two Benedryl don't do the trick. She'll be exhausted, barely keeping her eyes open, and still stay awake. Do you think Lunesta would be any different? Our insurance will only give us 1 pill per night and that is still $60 per month. I don't want to spend the money if its not going to help anyway.

[kimballot]

I am so sorry to hear that you are having trouble. We've not used prescription sleep drugs, but have (do) use melatonin and 5 htp (in combination when necessary) and I've also added in valerian root when things were really bad. My son is adult-sized and he tolerated these well for short-term intervention.

[momaine]

I am so sorry to hear that you are having trouble. We've not used prescription sleep drugs, but have (do) use melatonin and 5 htp (in combination when necessary) and I've also added in valerian root when things were really bad. My son is adult-sized and he tolerated these well for short-term intervention.

We've tried Melatonin, which helps when she's not this bad off, but doesn't right now. We're going to try 75mg of Benedryl tonight and see what that gets us. Haven't heard of 5 htp. I'll look it up. And though I've tried Valerian root with success, I haven't given it to my dd. I figured it wasn't strong enough. Maybe I'll pick some up and try the combination though. Thanks. This sucks! Sleep is the one thing we can't do without. I hope we live through this.

[Suzan]

HUGS! You can also do the melatonin and benadryl if you have not tried to give both together. What dose do you go to with the melatonin?

 

Last night, d9 could not go to sleep after benadryl and almost 5 mg of melatonin because she was having bad thoughts and a lot of anxiety about what would happen if she could not go to sleep. I finally got out a tiny portion of Lorzepam which we have for her anxiety but don't use often. I put her in bed to read and that was the last I heard so not sure how long it took for her to go to sleep.

 

HUGS again!

 

Susan

[momaine]

HUGS! You can also do the melatonin and benadryl if you have not tried to give both together. What dose do you go to with the melatonin?

 

Last night, d9 could not go to sleep after benadryl and almost 5 mg of melatonin because she was having bad thoughts and a lot of anxiety about what would happen if she could not go to sleep. I finally got out a tiny portion of Lorzepam which we have for her anxiety but don't use often. I put her in bed to read and that was the last I heard so not sure how long it took for her to go to sleep.

 

HUGS again!

 

Susan

Susan,

Is your dd on the Lorzepam daily or just as needed? (can you do that) We've never tried an anxiety reducer that you take as needed but I'm thinking that may be a good thing. Tomorrow's apt. can't come soon enough.

[philamom]

HUGS! You can also do the melatonin and benadryl if you have not tried to give both together. What dose do you go to with the melatonin?

 

Last night, d9 could not go to sleep after benadryl and almost 5 mg of melatonin because she was having bad thoughts and a lot of anxiety about what would happen if she could not go to sleep. I finally got out a tiny portion of Lorzepam which we have for her anxiety but don't use often. I put her in bed to read and that was the last I heard so not sure how long it took for her to go to sleep.

 

HUGS again!

 

Susan

Susan,

Is your dd on the Lorzepam daily or just as needed? (can you do that) We've never tried an anxiety reducer that you take as needed but I'm thinking that may be a good thing. Tomorrow's apt. can't come soon enough.

My daughter had a strong negative reaction to Ativan (Lorzepam) with a single dose. I tried it a second time with the same reaction.

 

Good luck with your appointment!

[Suzan]

Susan,

Is your dd on the Lorzepam daily or just as needed? (can you do that) We've never tried an anxiety reducer that you take as needed but I'm thinking that may be a good thing. Tomorrow's apt. can't come soon enough.

 

 

I was very afraid to give this to her due to all the feedback that I received from other pandas/lyme moms and their experience with it. I finally tried it out of desperation one night and it worked. I only use it as needed and I try to wait until I see that nothing else is going to work.

 

dd told me this morning that she could feel her anxiety washing away after taking it last night. Maybe we are just the very few who don't have a bad reaction? I don't know but it might be worth it to see what the doc says and maybe give it a try although I would hate to recommend it and then have a bad reaction.

 

Susan

[ptcgirl]

Atarax seems to help my dd sleep better than benadryl. It is a cheap script antihistamine. Night time is always the worse time for her. Hope tonight is good for you!

[momaine]

I thought I'd post a quick update. Our family dr. continued the Celexa at 40mg, like I wanted. Said we could try to raise it after she'd been on it for a month. She also prescribed Ativan .5mg to use sporadically, as needed. We tried it the first night at the .5mg. Dd said it did nothing to help her anxiety, BUT, she was asleep by 10:30 and not midnight with much less complaining.

 

Second night, same thing. Tonight is the 3rd night. I actually gave her two of the pills to see what that does. (today is a Tindamax day) She was all in a tither when we got home because no one was here to see her get out of the car. But then my neice arrived and she got in the house okay and ate dinner and took her meds. (almost 9pm) Then to the couch where she spends an inordinate amount of time. I asked her to shower so she'd be ready for school tomorrow. She said not now, 5 mins...(that never happens)

 

5 minutes went by and she went and showered without yelling for help at all. I did get her clothes and she got dressed with no fuss and got settled back on the couch easily. (some nights dressing can take an hour with tears and repeating) Personally, I think it's helping, a lot. While it might not be taking all anxiety away, I think it's putting a damper on it. Wish I could give her bucket loads of it. ;P

 

Tomorrow she has company coming for the night so I'll skip it. Today and tomorrow are Tindamax days so the next 3 days are usually ######. we'll see what happens. I'm pleased so far.

Edited May 13, 2011 by momaine