Steroid burst.

[Wilma Jenks]

What can I expect to see with this burst? Is there die off. Will she look really bad b4 she starts to look good? She goes wild and crazy with most meds. so I want to b prepared. He prescribed 40mg. for 6 days. At first I thought he said she would do something that would taper off each day. what is the usual dose?

[KaraM]

We did a 21 day tapered dose. She tolerated it fine...it did not cause her to go crazy or anything, but it didn't seem to help her OCD either. After doing it, we found out she was positive for Bartonella, so that may have been why. There were a few posts talking about steroid bursts in late January that you may want to look at...

[thenmama]

xx

Edited March 26, 2013 by thenmama

[butterflymom]

=

Edited October 9, 2015 by tampicc

[rockytop]

Wilma--

 

go for it! in the conditon my child was in anyone in their right mind would have EVER given her prednisone. We started seening an improvement just before 2 weeks- though we were tapering down- so maybe the high dose for the first week would have done it ? It was not a cure- but it was unbelieveable how much it helped her. I know it is nerve-wracking giving a child in this condition anything at all that will ramp them up- but please try it.

I second tampicc's advice about just getting throught this- whatever it takes. Yes, nutrition and sleep and education are important-- but getting that prednisone in her however you can maybe more so.

 

take care and good luck!

Edited May 26, 2011 by rockytop

[amyjoy]

HI Wilma, Just jump in and do it. If your child really has PANDAS, you'll see a positive change. You all could use one!! Just, do it.

[Wilma Jenks]

Doing it. Going to buy some Twinkies right now!!! LOL

[philamom]

HI Wilma, Just jump in and do it. If your child really has PANDAS, you'll see a positive change. You all could use one!! Just, do it.

y

Edited April 29, 2012 by philamom