DH and dd3's tests are back

[pixiesmommy]

I'll do these alongside mine and Pixie's, so you can see them all and compare.

 

dd3 Peri:

IGM

18+

41+

58+

 

IGG

30+

39+

41+++

 

dd10 Pixie:

18+

30+

31++

39 IND

41++

83+

 

IGG

18++

31 IND

34++

41++

58++

 

 

DH:

IGM

39 IND

41++

83 IND

 

IGG

41++

 

Myself:

IGM:

41 IND

 

IGG:

31 IND

39 IND

41++

 

 

 

We see the LLMD tomorrow. We were at the family dr today because we needed abx. Peri's PANDAS symptoms are through the roof and Pixie's knees were hurting. Pixie is on tx dose for Lyme, but family dr sees a lot of inflammation in her that he is concerned about, so he is ordering lots of other labs and wants to confer w/LLMD about things too. She has inflammation in her esophagus, knees, and her face has some swelling. He wants EKGs for both girls since we have had constant strep in our whole family for about 15 mos now. (Pixie gets one about every 6 months.) We tested pos on the rapid for strep again- surprise, surprise.

[sf_mom]

So sorry its becoming a family affair.. However, I know Peri's early diagnoses will be tremendously helpful to her long term success with this illness.

 

-Wendy

[Suzan]

Yowza! Glad you are seeing LLMD tomorrow. Look forward to an update on what he says. That is great that your doc will work with the LLMD and is ordering other tests too.

 

susan

[JuliaFaith]

So glad you are finding some answers. This is such a long journey but the more we find the closer we are to healing! I only hope all of this makes us and our children stronger, wiser, and more empathetic to others.

 

Thank you for sharing and best wishes.

[MichaelTampa]

Wow, yep, quite a "party" going on there. Yikes! Hope your doc has a good breakfast tomorrow!!! Would suggest talking with doc about plan to make sure enough of you are functioning well enough during treatment to keep the family going. So much of what happens will be unexpected, but still a good discussion point I think.

[ShaesMom]

M-sorry to hear its a family affair! I'm really curious about the inflammation in Pixie's esophagus since this is what Shae has and is being treated for in Cincinnati.

 

Good luck today.