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Posted

DS13 had tonsils out last week. Decided after a year of not having a lot of improvement (with 2 doctors) we should do the T&A. The dr. said that she would only remove the adnoids if they looked bad. T&A was done and we looked at the tonsils. They were enlarged and looked like they had been thru several infections. His adnoids were inflamed so they were removed as well. The tonsils were sent to a lab. LlMD also had a deep nasal culture testing for MARCONS, coagulase negative staph, and mold growth (inexpensive testing but really great to rule out certain infections) while he was asleep (my idea). Apparently, per DH it can be painful to have done while awake which is usually how it is done. On day 9 and recuperation is slow and painful. Have not notice any PANDAS-like behaviors creeping in which his LlMD suggested was possible for the first 2 weeks. He is still taking abx, slippery elm, homeopathic 'balls' which he says are very helpful, and his non-blood thinning protocol for Llmd.

 

This son has NEVER had strep or any problems that I knew about. He has had a sore throat off/on for the past year of feeling ill.

 

Next week, we find out about our ERMI mold testing results, T&A lab results, and continuing protocol treatment for Llyme etc. Wish us luck with the mold piece please!!!

 

Will post next week after visit if we survive. :)

Posted

Wow, great testing you were able to get and i hope you get a lot of information from the tests and cultures. I will be interested in hearing how it all turns out. T&A at older ages are so hard to recover from! Poor thing, good luck!

 

Susan

Posted

Wow, great testing you were able to get and i hope you get a lot of information from the tests and cultures. I will be interested in hearing how it all turns out. T&A at older ages are so hard to recover from! Poor thing, good luck!

 

Susan

Thank you for your support, Susan. Will wish the best for your family!

 

Julia

Posted

My dd11 a couple of years back went 9 full months with no meds at all after having the toncills and adnoids removed. Then it all came back with abundance. At least we had 9 normal months. I'd love to get back there. I hope his is gone for good!

Posted

My dd11 a couple of years back went 9 full months with no meds at all after having the toncills and adnoids removed. Then it all came back with abundance. At least we had 9 normal months. I'd love to get back there. I hope his is gone for good!

Thank you for your story. It sounds like having the tonsils out can prevent further havoc on the immune system with continuing infections/bacteria so may also be beneficial in the future. Right now we are just hoping it will make his treatment shorter and some more advanced short-term improvements. Who knows, maybe your daughter's treatment will be faster because of the T&A. So glad you had 9 months!! Am also looking forward to full recovery for your daughter as well. :)

Posted

DS13 had tonsils out last week. Decided after a year of not having a lot of improvement (with 2 doctors) we should do the T&A. The dr. said that she would only remove the adnoids if they looked bad. T&A was done and we looked at the tonsils. They were enlarged and looked like they had been thru several infections. His adnoids were inflamed so they were removed as well. The tonsils were sent to a lab. LlMD also had a deep nasal culture testing for MARCONS, coagulase negative staph, and mold growth (inexpensive testing but really great to rule out certain infections) while he was asleep (my idea). Apparently, per DH it can be painful to have done while awake which is usually how it is done. On day 9 and recuperation is slow and painful. Have not notice any PANDAS-like behaviors creeping in which his LlMD suggested was possible for the first 2 weeks. He is still taking abx, slippery elm, homeopathic 'balls' which he says are very helpful, and his non-blood thinning protocol for Llmd.

 

This son has NEVER had strep or any problems that I knew about. He has had a sore throat off/on for the past year of feeling ill.

 

Next week, we find out about our ERMI mold testing results, T&A lab results, and continuing protocol treatment for Llyme etc. Wish us luck with the mold piece please!!!

 

Will post next week after visit if we survive. :)

Any word on your mold testing and T&A lab results?

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