Wet behind the ears here

[sis]

My son is 7 months old and I realize it might be too early to diagnose him yet. Even when I was pg with him, I knew he was "different". My "mothers instinct" is and has been telling me something was up.

My son has been shaking his head back and forth all his life. I tried and tried to breastfeed him for months and he would never latch on/settle down. I told the pediatrition many times, but of course, it was all shrugged off. I finally got her attention and she's given me a referal to a pediatric neurologist. Of couse it took FIVE weeks to get in. He usually only does it when hes tired, excited, hungry and lying down. There is no eye rolling, just side to side "No". Some times he stops after a few shakes sometimes its 10+ times. He is behind on sitting up and other motor skills but does roll over both ways. He also is very "jotty" with his head. at times hes fine with controling and others he head butts everything. I cry myself to sleep thinking of how this behavior is effecting our baby/mother bond. Its hard to hold/cottle a baby who is -at times-un-holdable!

My brother-in-law has tics of some sort, but never technically diagnosed with any thing, that he has admitted. But his tics obvious.

 

Im very ignorant on what I should do, how I should steer this treatment. I know alot of you have non-conventional remodies and I'm a believer of that.

I work in a hospital (unit secretary) and I know how easy it is to fall through the big cracks of the medical system. I want all the info I can get so I can make informed decitions.

I just don't want years to go by and know I could have done something NOW that would have helped his condition.My biggest fear is that he will stick out so bad in school. Kids can be so cruel.

 

Please share if you can, your/some else's story. Any input is greatly appreaciated.

Thank you,

Sarah

[Chemar]

Hi Sarah and a big welcome.

 

With a little one that young it really is hard to give any advice other than that you are doing the right thing by seeing a specialist, and to encourage you to keep his diet as natural as possible and avoid all articifial ingredients.

Also, if at all possible, when he gets his vaccinations, if possible try for ones that are not preserved with thimerisol which contains mercury, and to have them separate the MMR into 3 separate vaccinations, measles, mumps and rubella rather than doing the 3in1 shots.

 

A good pure liquid multivitamin ( no artificial colors or flavors) is also a good idea.

 

Till you have the neuro's input there really isnt much more to do other than this I dont think...tho others here may have further input on anything I have missed.

 

Once you have the neurologists take on things, there are a lot more pointers we may all be able to give.

 

try not to worry tho....this may all have a very simple explanation and solution.

[Andy]

Sara we have a DAN doctor for our eight month old child. He is in Tampa and has been featured in the Wall Street Journal. He only works with youngesters and has given us supplements to give to our child before and after vacination shots. Everything is based upon body weight and need so I will not give out any information inregards to that myself but the bottom line is prevention is better then future treatment. Our youngest seems to be fine but our oldest is not and he sees a DAN doctor in Miami.

[sis]

I'm thankful for your advice. I will print your reply and remember your advice.

Am I legally liable to get his immunizations? I don't know the law, and I'm afraid they would not have the kind of shots that are safer.

Thanks Sarah

[mmazz]

Hi Sarah;

 

Welcome to the forum. I believe that if you have a medical reason as why not to vaccinate, like neuro stuff, you do not have to. My views of vaccines are very tainted and I for one will not vaccinate my children anymore. My reasons will be for neurological ones and as long as you have a medical reason as to why to delay or not vaccinate the school system must accept your child. I know that there are also religious reasons, but I'm not really abreast upon that. You are smart to get to a ped. neurologist, that is a good start. Remember that TS or chronic motor tics are clinical diagnosis and that you leave the office with the comfort that things are not so bad. I too used to cry myself to sleep, and actually was in fear of and for my child (if that make sense to you). But through time you will learn that no child is perfect. The perfect child only exists in the movies, well pg rated ones anyway. But give yourself time, as a new mother you must be overwhelmed. Don't be so hard on your in-laws, no-one really wants to know about their geneic hiccups. Remember, my in-laws think they have allergies all year round

 

We are here if you need us. Oh, as for supplemenation carrot juice is really a great thing for infants. It is a great immune system booster, so you might want to read the threads for juicing. If you have any questions, just post.

 

Be well,

 

Marie

[kim]

Sarah,

 

Here is a web site I found that has some info. on vaccine exemptions.

 

http://www.909shot.com/state-site/legal-exemptions.htm

 

If your little one does turn out to have a neuro issue, just try to take heart in the fact that there is so much help available. I'm sure this has caused you a lot of anxiety, it's hard enough with an older child, but one day at a time, and try to enjoy the preciousness of his infancy, jotty head or not, I bet he's wonderful.

Is there a possibility massage would help sooth him when you feel you are unable to hold him?

 

Kim

[sis]

My son is 7 months old and I realize it might be too early to diagnose him yet. Even when I was pg with him, I knew he was "different". My "mothers instinct" is and has been telling me something was up.

    My son has been shaking his head back and forth all his life. I tried and tried to breastfeed him for months and he would never latch on/settle down.  I told the pediatrition many times, but of course, it was all shrugged off. I finally got her attention and she's given me a referal to a pediatric neurologist. Of couse it took FIVE weeks to get in. He usually only does it when hes tired, excited, hungry and lying down. There is no eye rolling, just side to side "No". Some times he stops after a few shakes sometimes its 10+ times. He is behind on sitting up and other motor skills but does roll over both ways. He also is very "jotty" with his head. at times hes fine with controling and others he head butts everything. I cry myself to sleep thinking of how this behavior is effecting our baby/mother bond. Its hard to hold/cottle a baby who is -at times-un-holdable!

My brother-in-law has tics of some sort, but never technically diagnosed with any thing, that he has admitted. But his tics obvious.

 

Im very ignorant on what I should do, how I should steer this treatment. I know alot of you have non-conventional remodies and I'm a believer of that.

I work in a hospital (unit secretary) and I know how easy it is to fall through the big cracks of the medical system. I want all the info I can get so I can make informed decitions.

I just don't want years to go by and know I could have done something NOW that would have helped his condition.My biggest fear is that he will stick out so bad in school. Kids can be so cruel.

 

Please share if you can, your/some else's story. Any input is greatly appreaciated.

Thank you, 

Sarah

8668[/snapback]

[sis]

I am trying to take this all in, and getting alittle overwhelmed.

My son is on a soy based Enfamil. No milk. I have given him some rice gerber cereal, bananas, pears, peaches and peas. Most claimed to only have asorbic acid in them. We also use some sunsweet prune juice that I water down. Our water is always Culligan water with flouride.

I thought it all was looking good till I read some old post on this forum board. Does this all sound natural to you? I see someone said soy formula has too much of some metal. What metals am I to look for?

Another one said flouride is bad too. Should I get plain?

 

God bless you all. We all love our children so much, and I am glad to have found this board to learn from/with you. I am so thankful to that everyone is so honest and frank and compationate, all at the same time.

Sarah

[mmazz]

Hi Sarah;

 

First things first nix the floruide. That is a chemical that you do not want in your body. Some people do have a sensitivity to soy. You may want to try your hand at goats milk formula. I cannot remember the brand, but it is a good alternative. It may be an avenue to start. But remember to go slow and keep a diary of things that you do so you can review what you dd if things flare or settle. I got to run, but wanted to post..I won't be on for the next couple of days..its a crazy week.

 

Be Well;

 

Marie

[kim]

Sarah,

 

I posted a couple of links after Chemar and Andy mentioned some things about soy not being favored in some things they had read. Both of my boys were fed Soy formula. Maganese is the mineral that is in question in soy formula in these articles.

 

This link will explain about the function of Magenease

http://lpi.oregonstate.edu/infocenter/mine...nese/index.html Notice the amount on the adequate intake for infants chart, and look at the toxicity statements.

 

Then check these two out

http://www.mercola.com/2001/jun/13/soy_formula.htm

http://www.mercola.com/2001/jun/23/manganese.htm

 

This one is a little hard to read, It's long and kind of technical, but it seems to reinforce some of the things said on the Mercola site.

 

http://www.dartmouth.edu/~rmasters/AHABS/Neurotox48dr22.pdf

 

Is your son on soy, due to a milk based formula sensitivity? If not, you may want to consider a switch. I think Dr. Mercola recommends Carnation Good Start?

 

I asked questions about this on a couple of sites, and from the lack of response, it didn't appear many felt soy formula had a connection with their childrens disorder, but I can definitley say, after reading these links, and having two sons with tic disorders, if I had it to do over again, I would not use it with out some evidence that this excess maganese has no validity. Also, on flouride as Marie mentioned, no more of those treatments at 6 month cleanings for my guys.

 

Kim

[kim]

Bumped