Worried_Dad Posted March 23, 2011 Report Share Posted March 23, 2011 As somebody who's been on here since summer 2008 (when our son had his "exorcist syndrome" overnight PANDAS symptom explosion), I can say that Buster's contribution has been enormous. He's been patient and generous in clarifying some of the trickiest aspects of the science around PANDAS, and the links below contain invaluable info that he distilled from his exhaustive research, then graciously refined with feedback from the whole online community. I miss his posts... but I'm awfully glad that things are going well enough that he doesn't have to live on this forum anymore! I don't spend as much time posting as I used to, because so many others post responses that cover everything I could have offered. But I still read the new posts almost every day (my addiction, I guess). Thankfully, our ds is doing much, much better now... but he's not 100% yet. So I'm always interested in new developments, links to new research, and shared results of new treatments. Mostly, though, I feel an obligation to check in regularly in case I can help somebody else the way so many helped us. When things seemed hopeless in 2008, folks on here like Buster, EAMom, Diana P, and others provided a lifeline. They pointed us in the right direction time after time, when local docs had nothing to offer us. They kept us sane when my wife and I felt like our world was crumbling. I honestly believe that this online community saved my son and our whole family (kind of sappy, but it's true). I want to return the favor, at least to the extent possible. So a lot of us "old-timers" still lurk on here but aren't as vocal as we used to be. And some have moved on, because the posts can be painful reminders of the darkest days of their lives, too traumatic to relive. Interesting question... We're doing well and I'm not on the forum all the time. When I do check in, there's a lot of great advice and I'm finding I don't have a lot to add -- this is frankly a bit of a relief. Back in 2010, I started documenting everything I had collected or learned in hopes that I'd save someone the hours I spent searching. History: http://www.latitudes.org/forums/index.php?showtopic=5144&st=0&p=36300entry36300 Summary: http://www.latitudes.org/forums/index.php?showtopic=6265 FAQ: http://www.latitudes.org/forums/index.php?showtopic=6266 Flowchart: http://www.latitudes.org/forums/index.php?showtopic=6688 Comparison: http://www.latitudes.org/forums/index.php?showtopic=11715&view=findpost&p=98115 How IVIG works: http://www.latitudes.org/forums/index.php?showtopic=7855&view=findpost&p=63932 Survey Results: http://www.latitudes.org/forums/index.php?showtopic=9495&st=0&p=79704entry79704 I hope these resources continue to be beneficial and I update them occasionally. Buster Link to comment Share on other sites More sharing options...
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