Feingold diet

[rockytop]

We are thinking of trying the feingold diet. any devotees have any advice?

 

this is not too big of a leap- we eat pretty well now - but there is definite room for improvement!

 

We will be undertaking this in a household of 8 kids. wish me luck

 

Where do I get liguid zithromax that is not pink?

 

I am seeing so many tics from my 3 PANDAS children- I am wondering if Tourette's would fit in their "diagnosis" box, too. Maybe it is all one big happy disorder

[justinekno]

We have done the Feingold diet for the past three years. We are not as rigid as we were but we are still following the basic principles and then some! My kids read labels and know the foods to stay away from (artificial colors and flavors, hydrogenated oils and preservatives to name a few). We tend to eat alot of organic but the diet can be done on a budget as the packaged foods are what is so expensive. We get all of our prescriptions through a compounding pharmacy.

 

We are thinking of trying the feingold diet. any devotees have any advice?

 

this is not too big of a leap- we eat pretty well now - but there is definite room for improvement!

 

We will be undertaking this in a household of 8 kids. wish me luck

 

Where do I get liguid zithromax that is not pink?

 

I am seeing so many tics from my 3 PANDAS children- I am wondering if Tourette's would fit in their "diagnosis" box, too. Maybe it is all one big happy disorder

[SSS]

We also get all our prescriptions at a compounding pharmacy- found one right in the next town over by googling: Compounding pharmacy in _____________. Was surprised to find one so close.

 

My dd5 is not on Feingold, but we have been GF/CF/SF for a year and a half. I removed all food dyes from our house 2 years ago. She eats much better now, more healthy, but we still have gut problems :-(

[amyjoy]

We were on every diet known to mankind and few were helping...but every child is completely different.

DS did the feingold for 2 months, not any appreciable change, as we were already off of nearly all food additives and apparently he does not have a problem with salicylates.

 

Prior to that we had done Igg testing, went off of those foods and we saw some change at first but it didn't last. A few months later when we retested the igG, many of the positive foods were completely different than the prior test. it almost looked like a different person's test?????

 

later i discovered that this is because he had celiac, true sprue, but it does not come up on an igg panel. IgG positive foods are a developed sensitivity due to some kind of gut problem, they are not inborn. they can be transient, and clear up and new ones develop all the time until the actual cause of the leaky gut is figured out. it took us years. we had done a blood test for celiac through kaiser without realizing you can't really know with even 90% certainty about celiac with a blood test. it really needs to be done through a poop test or aggressive testing like a biopsy.

 

also, i hadn't totally realized that IgG responses were so secondary. i had known they were developed and that they could go away. but i thought that if we removed those foods for a number of months, that would be enough for the proteins to clear out and the foods to be re-introduced. i didn't know that unless you dig deeper for the actual cause, you could be missing the boat.

also, i now couple the igG test with an igE test- these are inborn blood-based allergies (not gut based) and thus even more important to know and remove from the diet than the igG.

 

meanwhile, for poor DS, when we finally went off of gluten a little over a year ago, everything changed, everything. the stomach pain cleared up in 3 days. the joint pain, the foot and heel pain that has tortured him since he was 7 years old - went away in entirety. after all that PT....oy vay. Then, the tics went down some - it lowered the overall baseline of the tics. The pastey bloated skin, so much of it improved...rashes went down, sleep improved, head cleared up alot.

 

I'm not saying that everyone has celiac, but i do believe that each child is different and that there is no substitute for good testing. I read alot on this forum about the igG food testing, which i do think is important to know- but its not a be-all end-all testing.

 

Good Luck with the Feingold. Its actually pretty simple, since just a few things are kind of allowed, it makes throwing meals together quite routine.

[philamom]

amyjoy- is the stool test recommended to check for celiac done with Quest? Thanks.

[SSS]

I checked my dd5 for celiac disease after we have already had her gluten free- so I did not want to put her back on gluten for celiac testing- I did the DNA cheek swab test- it was through Kimball Genetics Lab- it did give me a definitive no celiac.

[smartyjones]

S&S -- i didn't know there was a cheek test -- i thought it was only blood or biopsy. did you need a dr's signature? did insurance cover? thanks.

Edited March 7, 2011 by smartyjones

[SSS]

S&S -- i didn't know there was a cheek test -- i thought it was only blood or biopsy. did you need a dr's signature? did insurance cover? thanks.

 

 

Hi, it does need a Dr. signature, our regular Ped. did sign it for me, but my insurance did not pay for it- I paid for it myself.

Here is the link:

http://www.kimballgenetics.com/tests-celiacdisease.html

[Kiera]

I just read recently where you can mail order the cheek test, go to wwwmyceliac.com, no Dr signiture, you pay yourself (I think around $400) do the test yourself and mail it in. This tests for the genes for celiac, a negative test can rule out celiac definitely but a positive test just means you have the genes that predisposes you to celiac but don't necessarily have it. Only definitive way to diagnose is small intestine biopsy while taking gluten! Blood tests can screen but not 100% accutate.

[amyjoy]

amyjoy- is the stool test recommended to check for celiac done with Quest? Thanks.

 

I think the best one is probably Enterolab.

 

But i also use the metametrix 2100, as it is a stool test that includes the microbes but also anti-gliadin IgA ab, immune profile of gut, chemistry, absorption and fermentation.

 

There is an option with the Enterolab kit where you can include a cheek swab and actually look at the genetic component, which was so interesting in our case. my son has a celiac gene and a sensitivity gene. i'm so sure my (ex-)husband has the celiac gene, as he has had GI stuff ever since i've known him. but i had no idea i had the sensitivity gene, as i never think of myself as having any symptoms. but once we went gluten free in our house, i noticed a couple of weeks later that i never had any post nasal drip anymore, which sometimes i would get at night. i guess that's how that manifest in me.