i need words of wisdom

[EAMom]

Yup...wikipedia is a problem. For DH, it just became a matter of he didn't have endless hours and energy to battle SandyGeorgia. So, we decided his energy was better spent elsewhere. I think SandyGeorgia is some kind of strange Tourette Nazi...very threatened by PANDAS.

[Phasmid]

yah, isn't that wierd? It's a very defensive posture... I don't get it. Then there's a whole rant by TS folks against Dr. K. Is that warranted, or are these folks just very .. defensive? I don't understand.

 

 

 

Yup...wikipedia is a problem. For DH, it just became a matter of he didn't have endless hours and energy to battle SandyGeorgia. So, we decided his energy was better spent elsewhere. I think SandyGeorgia is some kind of strange Tourette Nazi...very threatened by PANDAS.

[kimballot]

Yup...wikipedia is a problem. For DH, it just became a matter of he didn't have endless hours and energy to battle SandyGeorgia. So, we decided his energy was better spent elsewhere. I think SandyGeorgia is some kind of strange Tourette Nazi...very threatened by PANDAS.

Many thanks go out to Buster for all he has done on so many fronts!

[browneyesmom]

lmbo!!! This thread is exactly what I needed this morning after our day yesterday!!

 

Yes, Buster did work extremely patiently for months with 'SandyGeorgia' and she is very fixated (hmm... I wonder... ) on this being "controversial". When I tried to post the Awareness Ribbon there... no simple feat as I'm having a lot of trouble figuring out how to use Wiki to get the thing posted on that article, she deleted it.

 

I also noticed that at the bottom of the Wiki page, it is listed under Childhood psychiatric disorders | Neurological disorders, but not Auto-immune disorders.

 

I did get it posted on the Green Ribbon page and someone is trying to help me get it listed on the Awareness Ribbon page... if I could find the note from Sandy, I would respond to her about more current research; however, Wiki does not have the most user-friendly navigation and with dd11 remaining in exacerbation, it's slow going to get the word out on this.

 

Doctoral in PANDASology... lol... love that one... I should work up some artwork for that and add it to the CafePress page where I'm uploading the Awareness Ribbon to raise funds for research!

Edited February 18, 2011 by browneyesmom

[jdude]

This is too eerie...my older (non-PANDAS) son, age 13, who knows everything, was looking PANDAS up just the other day in Wiki and he focused soley on the piece that states it is "controversial." He just thinks his brother is acting up (although I did have a long talk with him, made him watch "Mystery Diagnosis", and read several other articles). My PANDAS child is a somewhat mild case compared to others on this board, but he is currently displaying some "behaviors" like lots of potty talk that I now attribute to his PANDAS (he had this obsession when he first displayed symptoms, and it went away when he was symptom free).

 

After reading the article, I was kind of annoyed at the focus on the "controversial" aspect as well. Although Wikipedia can be informative, it is not even allowed as a reliable "source" in my older son's school when kids are reasearching topics. It is a helpful tool in obtaining other sources, but teachers won't allow Wiki as a source due to several innaccuracies.