just called Pfeiffer at illinois my heart sinks a

[Guest daniel]

My heart sinks a little after hearing that they mainly do autism..and not sure about tourette. The staff member thinks not much success on tourette with heavy metal treatment. Let me rephrase this, they have not seen many patience that have tourette.

I left a voice mail with Dr Walsh. I hope he calls back.

Number I called at pheiffer (630) 505-0300, press 6

[Claire]

Sorry Daniel,

 

I had assumed that you have been reading the posts on Pfeiffer.

 

Those of us who have been to Pfeiffer know that they claim only 15% success rate in treating TS. Dr. Walsh at his seminar I attended said that this is higher for tic syndromes.

 

If you will track some of the posts, what we are finding on this board is that tic syndromes have many of the same underlying immune issues as autism. Thus testing for and treating those same immune issues is a help. Caz posted that certain members of the DAN doctor community is starting to investigate tics.

 

I personally think that a DAN doctor who is really up to date with DAN and sees tics as related to these issues is ideal, plus Pfeiffer -they focus on different elements. However, you were concerned with food restrictions and Pfeiffer's MT promotion has potential to treat this. We all made appointments there, and it is too early to see results, so we can't say for sure, but this has promise.

 

So ignore the receptionist/nurse who tells you this. Say, I know this, but I would still like to progress (assuming you do). They will have you fill a health history and proceed. Though it may be too late for the outreach in your area--I think it was this week.

 

Claire

[kim]

htthttp://www.mercola.com/2001/jun/23/manganese. read second

http://lpi.oregonstate.edu/infocenter/mine...nese/index.html

htmp:/www.mercola.com/2001/jun/13/soy_formula.htm read first

http://www.dartmouth.edu/~rmasters/AHABS/ read third

http://www.dartmouth.edu/~rmasters/AHABS/N...rotox48dr22.pdf read last

 

Hi all,

 

It sure seems like a lot of different things can cause tics.

If you used soy yourself or not, I think there is info here that everyone would get

something out of, the last link was written by a Research Professor, Department of Government, Foundation of Neuroscience and Society, Dartmouth College.

 

Soy products are found in so many common foods, if our kids have damaged abilities regarding enzyme production or uptake pathways, I can see where this may relate, wether you used soy as infants or not.

Daniel, I agree with Claire, get your appt. with Pfeiffer. They are mentioned in the last article- link I posted, as is a lot we are all dealing with.

Claire, are you using the enzymes? When you get a chance, can you update on results. Also, wondering what your DAN Dr. had to say regarding low zinc/copper.

and if he was in agreement with Karen's description of what Pfeiffer had to say regarding the the body kick starting and eliminating it along with metals?

 

Kim

[kim]

Claire,

 

Did you possibly get any idea of the criteria Dr. Walsh used to distinguish TS from tic syndromes? I know Daniel just talked about low zinc on another thread, but I'm assuming Chemars son had low zinc at one time or another also. Just curious.

 

Kim

[Claire]

Hi Kim,

 

Dr. Walsh sees the world from biochemical imbalances. This isn't that different from DAN doctor's I approach it, but a bit in that he has only certain biochemical issues that his clinic looks at--not the whole picture for the tics group.

 

Basically, I agree with him that zinc/copper ratios (or a zinc deficiency) is key.

 

Chemar's son improved from alternative medicine. Even TS kids get improvement with correcting immune issues IF they have them. Basically this is my view: test for the immune issues and correct them. Dr. Walsh's tests are NOT as comprehensive as we went through, so he can only comment on immune issues that he tested for and treated. To me, this is why his success rate is lower.

 

For example, they don't do food sensitivity tests and we know that is a biggie. Yeast tests aren't standard for them.

 

If immune issues are there, they need treatment. It sounds to me that the good news here is that he saw tics improve when a zinc deficiency was corrected.

 

Claire

[Guest daniel quan]

Claire,

So all the treatment for your child is not on TS but tic syndrome?

So I have less hope for my son who is diagnosed with TS.

Was your child diagnosed with cronic tics, transient tics or TS?

Claire, I am now little worry that TS is more worrysome.

 

daniel

[Claire]

Daniel,

 

No one knows these answers. It is like autism, some cases may be genetic, some triggered by an environmental insult.

 

I personally think a TS diagnosis can sometimes damage for one reason: It makes people think their is nothing they can do to change it. Plenty here might have had a TS diagnosis and lost in through tic trigger avoidance and treatments.

 

Chemar's son is proof that a TS diagnosis doesn't stop you from marvelous improvements.

 

I think it is a mistake to delay treatment. If there are underlying issues, the sooner the better. You are not drugging your kid. You are testing for immune issues--if he doesn't have them, no harm. If he does, they need treatment anyway and there is an awesome chance of success.

 

I feel like you are spinning a bit Daniel. I pray that you can focus that energy instead on proactively helping him. It will help him more, and I believe it will help your own cycling/stress to know you are doing something.

 

But you need a doctor--Pfeiffer or DAN or whatever, you need to get started.

 

Claire

[Claire]

Hi Daniel,

 

I hope I didn't sound impatient, just worried! This would be very difficult without both spouses in agreement. The unfortunate part is that you won't have 'proven studies' to show your wife.

 

Does your child watch much TV/play much computer/gameboy? (I forgot the age..5?). You might want to go to the path of just eliminating screens for the week (some people here said the TV's just didn't work and their was no trauma about it).

 

For 80% who tried this, they saw significant improvement. This isn't a long term solution but it might prove to your wife that this has cause and effect (if it does work), and then she might let you just take your son in for testing to see what is causing the photosensitivy.

 

Claire

[Chemar]

Daniel, if you would like to send me a private message with the area that you are in I will try to help you find a good integrative doctor that knows about alternative treatments. We did not use Pfeiffer or a DAN doctor, but rather a team of physicians who are very knowldegable about alternative therapies, nutrition, toxicity etc, yet are also qualified in conventional medicine, and work in conjunction with a group of alternative therapists eg the accupuncture/biofeedback, a homeopath, a NUCCA chiro etc etc

That combined with my own research really was what helped my son. As I learned about things online, I was able to consult with these folks and get expert input and guidance.

 

If I had tried to go it alone I would have been a basket case!

If I can help you, I will be more than willing to

 

ps Also remember, just because you have a TS diagnosis doesnt mean you cant make things better naturally.........and it also may not be an accurate diagnosis. So take a deep breath and dont lose hope!

[Guest daniel]

Thanks Cheri and Clair,

He is going to a chiropractor once a week. We will start reflextology around mid june(school's out).

Cheri,

I don't know how to send you a private message, but I do like the antique website :-).

 

Matt at 4 1/2 went to an environmentalist. Great plain found 2 things, yeast issue

and something high medium trigylceride fat..(I think from Pediasure,a can of soymail

with other stuffs in it). The report said something about possible fatty acid disorder.

I showed the report to 2 mainstream docs and they have no idea.

We left it there. He started Nystatin and the died off (now I know) scared us.

The enviromental allergist attrib that to viral infection. I disagree. We stopped.

He was gonna prescribe enzymes for matt...I don't remember what kind.

My wife and kids were stressed out w/the diet restriction. I did notice one week he was tic free. My wife attribute that to waning but since then he has not a week of tic free day.

He has not watched tv at home for almost 8 months now. I am not sure it improves his tic. He still watches movies at school. I don't want to say no to that or he will cry.

 

When I read him a book he tick none stops but if he reads it himself it does not.

 

He is taking 1 teaspoon of flaxseed oil per day but never at the same time. Wife mixes it with non-plain yogurt one buy from store.

 

I do see improvement in his mood..cries less.

 

Then on braintalk it talks about medium triglycerides fat helps tic..but he was taking

enormous amount of that prior 4 1/2. I am confused.

 

Thanks, and claire you don't know how much you Cheri and others..have helped.

I have an appt with Sheila tonight.

 

Looking forward to it.

 

thanks

daniel quan

[kim]

Daniel,

 

Look at you go! This is great. Maybe as you're trying to get back into treating this the second time you will have a better understanding and hang in there with it; with the help of this group.

 

I can relate to what your going through. I am you and your wife, rolled into one. I want to know everything that may help and DO IT ALL, and the other part says "they're fine" quite looking at them like their walking deficiencies.

The smell of what ever they had sprayed the ball field with last night was driving me crazy, especially as I was watching my 8 year old standing on second base, shoulder shrugging away.(my husband helps coach, he said Duresban (sp) I came home and read Chemars post asking about the same thing at the soccer field. It's nice not to be alone with this.

 

I had a pity party for myself yesterday, trying to get the yeast thing right. Of course I will order the test. If it's high I will go where ever I have to, to get treatment started. I don't think it's that big of a deal, but it sure seemed like it yesterday

 

Anyway good luck with your consult with Sheila. I hope it helps and I'm sure it will.

 

Kim