post-streptococcal glomerulonephritis

[colleenrn]

This question relates to my nephew.

 

My 4 kids have PANDAS and my sister's two kids have it (and I think her 3rd also). My brother has two children who get strep a lot, sometimes have night terrors with strep, once had very mild tics with strep, and I have observed extreme irritability with his two kids while my kids are in a flareup (I think his kids had strep and exposed my kids, causing their increase my kids to have an increase in PANDAS symptoms). SO, I am very suspicious that they will develop PANDAS possibly.

 

My nephew was diagnosed with strep last Friday and put on Amoxicillin (UGH... it has not worked for my kids or sister's and I told him to go for bigger guns...) A week later, today, he is still so sick. Today he is diagnosed with post-streptococcal glomerulonephritis. After a conference call between myself, my brother, and his dr. (b/c dr wanted to just stay with amoxicillin), we convinced dr to switch to Biaxin. His 3 year old sister developed what sounds like a nasty perianal strep rash yesterday also (dr put her on Biaxin after agreing to switch brother to it).

 

My question is, does this lend any evidence that these two children have PANDAS? I know non- PANDAS kids can get it, but it is not very common. My thought is that he had untreated strep for a long time and that is why he developed it (and the amox did not clear it). He tends to not get physical symptoms (fever, sore throat) with strep, so he may haver had it and they just did not know.

 

Just wondering if anyone can shed light on this.

TIA.

Colleen

[Chemar]

hi Colleen

did you mean to post this on the PANDAS forum? as I would think the parents there would have most info on it.....................

[colleenrn]

Chemar

Yes. I posted it on the Lyme board by mistake, then posted it on PANDAS side. Thanks!

Colleen